Tara Collazo
@taracollazo1
Victim of #ALS, fighting for survival. You may see me struggle but you’ll never see me quit. #ALS is destroying my family. #DyingWaiting
ID: 247095436
04-02-2011 02:31:45
1,1K Tweet
448 Followers
122 Following
Please hear the voices. News reporters, influencers, politicians. Speak for the 1 million being silenced. Elex Michaelson Marcus Lemonis HopOnACure Antonio Sabato Jr U.S. Fire (USFA) FIRE UNITED C.F.C. J
Sheriff's Office Detective Phil has #ALS. As the incidence of 100% FATAL #ALS keeps increasing & younger and younger people are afflicted, will #Congress fight to end the regulatory RIGIDITY of the FDA Biologics & Dr. Robert M. Califf? #ALS IS NOT RARE. #NurownWorks #NoAdComNoVoice
Sean Mino FDA Biologics Dr. Robert M. Califf @RepAnnaEshoo Jan Schakowsky Rosa DeLauro CathyMcMorrisRodgers Brett Guthrie @RepJohnCurtis Larry Bucshon, MD @SenatorBraun Sen. Lisa Murkowski Bill Cassidy, M.D. it's still baffling to me as to why the demographics of #ALS or any & all terminal/chronic illnesses are not better tracked. We didn't seem to have a problem tracking COVID across he country, county by county!
802 pgs of signatures... On behalf of 32,000 fighting for their lives today. Asking FDA Biologics & Dr. Robert M. Califf to accept the #NurOwn BLA & give #ALS community & their top #neurologists a chance to be heard at a public AdCom. #NoAdComNoVoice #NurOwnWorks #neurotwitter #MedTwitter
Asking members of the media, politicians , to cover this story. Over 1 million patients, worldwide have begged for the USFDA Guidelines to use flexibility to approve #Nurown Elex Michaelson HopOnACure Marcus Lemonis NBC News Brooke Eby Sarah Nauser Phil Rosenthal @GaryGodfrey25
Firefighter Greg has ALS ALS IS NOT RARE. You/your loved one could be next #Congress, tell Dr. Robert M. Califf the FDA Biologics regulatory RIGIDITY for 100% FATAL #ALS MUST end. Patients & neurologists MUST be allowed due process & scientific debate in an #AdComm hearing. #NurownWorks
While we're enjoying #NFLPlayoffs today, 2 #Ohio Dads died of #ALS, leaving their young kids RIP Jeff Karam & Jon Stewart Meanwhile #NurOwn has been halting progression since 2015 & #FDA is allowing people to die President Donald J. Trump Secretary Xavier Becerra These kids needed their Dads I'm so angry
Brian Wallach U.S. FDA BrainStorm U.S. FDA approve #NurOwn #EndALS #patientadvocacy #GoodTrouble #MamaBears