We got our ass whooped… Good stuff Oregon. We’ll NEVER let a loss make us forget who we are. We still gone turn up & we still gone do it our way. So rejoice & take advantage of us while we in this position - I expect nothing less. Just Remember, We gone get up

It's still PRIME TIME!

Last chance to take part in our study researching new medicine to help protect people with an impaired immune system from contracting COVID-19. Contact us on: 0208 869 5446 or email: [email protected] to find out more about the SUPERNOVA Study. Closing date: 31/10/2023

How much do you know about Sickle Cell and eye health? The North West London Clinical Research Network are holding an art installation at Westfield Shepherds Bush from the 23-27 October, 10am - 7pm. You can also learn more about #sicklecell and get a free eye scan.

Had a really good chat with Dr Christina Dinah the Director of Research & Development for NorthWest London Hospitals Trust. Christina is leading a number of Sickle Cell Research projects some with a specific eye care focus. The art depicting Sickle Cell was great

2 of 2 Whereas the general public has a better understanding of a disease like diabetes even if they don't have personal kowledge of someone who has diabetes

It has been such a privilege to share what we know about sickle cell disease and retinopathy. Art is it's own universal language , drawing people in and framing the conversations. #eachoneteachone Ganesh Sathyamoorthy 💙 London North West University Healthcare @LNWH_PCTT #sickleeyeproject #sickleretinopathy

Researchers at King’s College London, King’s College Hospital + SCS are doing a project with young people with #sicklecell to develop tools that enable them to be involved in research. Email Jane Chudleigh ([email protected]) or Pru Holder ([email protected]) for info

I still cannot believe Westfield graciously provided a whole unit to showcase beautiful art reflecting on lived experience with sickle cell disease, retinopathy and clinical research. People lining up for OCT scans! Incredible! Sickle Cell Society @NIHRCRN_NWLdn London North West University Healthcare

As always - impactful output from LNWH!

Floretina 2024 was one for the books! Attended with a 9-strong team who presented and thoroughly enjoyed Rome.Standing room only Ang-2 symposium to crown it all! Till next time!

Another early start, another London-bound visit. This time Royal College of Ophthalmologists—potential UK-wide collaboration supporting inclusive practice and clinical research! The Centre for Research Equity OxPrimaryCareSci Nick Thomas Royal College of Ophthalmologists Faruque Ghanchi Cathy Harrison Hope no travel problems 🙏🏽

Many thanks for sharing your experience and impact with us. We look forward to the fruits of the collaboration with the Centre for Equity at Oxford to support inclusive research in eye care!

Clinical research making a difference!

Our patient physician perspective collection continues to grow with a new article from Christiana Dinah, London North West University Healthcare on proliferative sickle cell retinopathy. Article: link.springer.com/article/10.100… Full collection: link.springer.com/collections/db…

Glad to contribute to the growing literature on the impact of sickle cell retinopathy on quality of life!

Disappointed by NICE's draft decision on Exa-cel gene therapy for sickle cell. With Anthony Nolan, we urge NICE to reconsider. Share your views in the consultation by April 11. Let's ensure NICE hears from everyone impacted. Details: ow.ly/s2BS50QT7HJ

Pleased to share this Call for Proposals to #narrowthegap of #healthinequalities Diagnostic Equity Research call from AcademyHealth and Jeffrey Moore opens March 25. Further info @ : ow.ly/sYS550QVZbi Mary Dixon-Woods Timely, following publication of gov.uk/government/pub…

All Sickle Cell patients, caregivers, & relatives in London! Help improve ambulance care by sharing your experiences. Submit as a Microsoft Word doc to [email protected] by April 12. More information and questions can be found at: sicklecellsociety.org

🚨 Today's the deadline, April 12th! Please ensure all submissions are sent before the day ends. Your feedback is crucial to enhancing ambulance response and providing better care for Sickle Patients. Thank you for your contribution! 🏥#SickleCellCare