Pascale Burmester, presented at the Alexion sponsored Complement Masters: PNH 2023 on the Alliance, its projects & challenges; how to encourage patients to form a patient organization. 70 #PNH specialists from 26 countries attended
#patientsinvolved #NothingAboutUsWithoutUs
#HPN

IPPOSI empowering patient advocates! #PatientsInvolved #PatientAdvocate

#LongCovid #pwLC #COVID19 #CovidIsNotOver #LongCovid Kids #Ireland #Irish #PatientsInvolved IPPOSI

Very proud to be graduating from the IPPOSI patient education programme in Health Innovation #patientsinvolved #PPI IPPOSI Beaumont RCSI Cancer Centre

Really looking forward to the WECAN Academy 2023 in Frankfurt with colleagues from all over Europe across all Cancer indications. We learn together and support each other. Safe Travels all Smartstarters and Masterclassers WECAN #PatientsInvolved

Early start to #StBrigid #BankHolidayWeekend to join Lobular Research Legends Cathrin Brisken and George Sflomos EPFL Life Sciences for #WorldCancerDay event in Lausanne & meeting #ILC #Breastcancer #Researchers in Prof Cathrin Brisken's Lab EPFL later today.
#PatientsInvolved

We've just begun with the first presentation of the afternoon in The Olympic Museum Lausanne with CANCERPREV #WorldCancerDay Cancer Prevention Forum
#Breastcancer #SkinCancer #LungCancer #Melanoma
#ResearchMatters #PatientsInvolved

Today at #bigdataforbloodcancer awareness day: 30 Sept, we invite you to listen to@JanGeissler of CML AdvocatesNetwork and LeukaNET about data sharing and #research questions #ThisIsBloodCancer #bloodcancer awarenessmonth #patientsinvolved @horizonEU #hematology #bloodcancer

Stop by the ESR Patient Advisory Group booth on level 1 of the ACV, where you can meet our patient representatives and learn more about #ESR_PAG activities.
#ECR2024 #PatientsInvolved

What an opening! Thanks for heaving me Boehringer Ingelheim
#patientsempowered #GPPS2023 #PatinetPoweredProgress #PatientsInvolved #keynote

Day 2 starting now IPPOSI
PPI in Practice in Ireland.
#PatientsInvolved

We asked Jan Jan Geissler - HARMONY Alliance Patient Cluster - what kind of #research questions can be addressed by HARMONY that could not be answered otherwise. #bigdata forbloodcancer #patientadvocacy #hematology #bigdata #research #patientsinvolved Horizon Europe🇪🇺 Innovative Health Initiative

Modifiable risk factors in development of cancers in people with #LynchSyndrome is an important area of research.
Love to have more Irish participants contribute to the data. Please consider taking part!

#CancerResearch #Patientsinvolved

forms.office.com/e/VSsEQyA73D

Join us in room K1 now for the session “Value-based radiology: a vague idea or practical reality?” and learn from Judy Birch what patients value from imaging departments: connect.myesr.org/course/value-b…
#ECR2024 #PatientsInvolved #ESR_PAG

Flashbacks 💚 My highlights of #ECR2024 🙌 Well worth the early get up! 👏 Thoroughly enjoyed this session particularly 🏳️‍🌈Dr Emma Hyde PhD, MEd, BSc, NTF, FHEA🏳️‍🌈 talk focusing on compassionate communication 🙏 #PatientsInvolved myesr ESR EU & International Affairs #ECR2024
EFRS
SCoR Members

Really insightful discussions at Health Research Charities Ireland - HRCI IHRF event this morning on #biobanking for research in Ireland. Uncomfortable truths aired and real passion to mobilize national level approaches. Maith thu.. #healthresearchmatters #patientsinvolved

Helen Shaw from Athena Media
IPPOSI
'Do we see ourselves in the vision statement of our organisation..'
#PatientsInvolved
#PPI

Pauline O'Shea Advocacy Campaign Manager Irish Heart Foundation has the room captured with her personal overview and the work of the Patient Champions.
IPPOSI #PatientsInvolved

Epilepsy Foundation We’re kicking off our next session looking at how we can double epilepsy research and the priorities for South East Asia, with a reminder from our President, Francesca Sofia about the importance of patient relevant outcomes measures #PROMs #PatientsInvolved

There are so many opportunities for training and education.
Fantastic information sharing at this session on PPI training and supports.
ICPO
IPPOSI
#PatientsInvolved