lynch syndrome irl
@Lynchsyndromirl
Central point to chat about Lynch related issues, build a bank of information and support for families affected by Lynch Syndrome in Ireland
ID:3294924027
http://www.lynchsyndromeireland.com 23-05-2015 08:12:38
23,4K Tweets
2,3K Followers
4,3K Following
CancerMeHole (Niamh) 🇮🇪 what a inspiration you are, working tirelessly for improvements & change across the entire colorectal cancer pathway, & all whilst living with metastatic colorectal cancer. And what a team: Clodagh Downing Patricia stack & other patient advocates in Bowel Cancer Ireland org.
Flavia, thank you for your closing. It reminds us of the humanity of us all, scientists included, and cancer affects us all. You remind us of why we do what we do and vice versa. #StrongerTogether
An amazing event focused on colorectal cancer patients and their needs.
We highlithed how much Research is essential in finding new treatments. Sign the petition to decrease the age for screening!! Marie Keating Foundation
Thanks to Roberta Horgan 🇮🇪 Bowel Cancer Ireland lynch syndrome irl
Thank you so so much RCSI Dr. Sudipto Das Dr Flavia Genua Grainne, Sudil and team for this important showcase of Bowel Cancer. Past, present and future. You placed the patient at the very heart of the story, connecting us all together. Thank you so much 💙
Well done Niamh from Bowel Cancer Ireland. Brilliant presentation at today's RCSI #BowelCancer Event. It's amazing what a group of motivated patients can do to create support where none exists - Highlighting unmet needs, the work to date & putting out the call for collaboration ⬇️
Fantastic introduction by Niamh Conroy and Brendan Muldoon at today's conference speaking about unmet patient needs #bowelcancerawareness Bowel Cancer Ireland IPPOSI Beaumont RCSI Cancer Centre
The importance of the patient perspective in Bowel cancer research being discussed RCSI today
Humbling to hear from Niamh Conroy & Brendan Muldoon about their disease and advocacy journey
Early engagement
Better communication
Research
Bowel Cancer Ireland RCSI School of Pharmacy and Biomolecular Sciences
Great presentation by Roberta Horgan about Lynch Syndrome as part of Bowels, basics and breakthroughs #PPI session RCSI
The importance of patients being part of multidisciplinary teams along with researchers & healthcare providers
#Teamwork
RCSI School of Pharmacy and Biomolecular Sciences @EpiGastroDRG
Bowel Cancer seminar is on today! Join us at 2pm online here⬇️
tinyurl.com/m4jj2rnf
RCSI Marie Keating Foundation lynch syndrome irl and Bowel Cancer Ireland
What a poignant picture. Bravo to Mick and Patricia for everything they have done to raise awareness around bowel cancer. There is hope, but early diagnosis is the best way to ensure that more of us live longer #checkyourpoo #bowelscreening #bowelcancerawarenessmonth
Aisling Barry NCCP HSE Ireland Simon Harris TD Here to support as a patient advocate group, this is a huge issue for RT in Ireland with many bowel cancer patients affected. With you all the way 💯
This makes me so sad 😞
We literally cannot provide radiotherapy to anyone without #RTT radiation therapists! Voices aren’t being heard…and neither are feet it seems… #patientadvocate groups we need you @hsenccp HSE Ireland Simon Harris TD 📣Help!
Lower the Age of Bowel Cancer Screening in Ireland from 59 to 50 - Sign the Petition! chng.it/k7LG8cPwG9 via Change.org