Thanks so much to Andy Evans CEO QPR FC for giving up his time to meet with Kevin Hunter Day and show us all around the stadium. Great support for Kevin's walk and The #lilyfoundation ❤️

One more sleep! Please support Kevin Hunter Day as he embarks on his 3 day, 61 mile walk for The #LilyFoundation from 17th-19th Sept to raise awareness of #mitochondrialdisease Find out more about this #charitychallenge & sponsor Kevin via justgiving: ow.ly/vA2t50SUwiK

Mito is a rare disease than can affect anyone at any age. The #LilyFoundation proudly supports over 1300 families in the UK. Find out more about our support services: thelilyfoundation.org.uk/affected-by-mi… #raredisease #mito #mitochondrialdisease #WMDW #mitoonthemap @4LilyFoundation

Mito can be a common cause of #strokes and #seizures in children. Read about a Lily funded #research into treatments to improve seizure control: thelilyfoundation.org.uk/affected-by-mi… Please share. Help raise awareness of #mitochondrialdisease #lilyfoundation #raredisease @4LilyFoundation

Just noticed a bit of my workshop on this! It was an absolute pleasure to work with the children, families and team at #LilyFoundation amazing charity

#LilyFoundation are joining together with the global #mito community to raise awareness of Thymidine kinase 2 deficiency (TK2d), an ultra rare #mitochondrialdisease Find out more: tk2d.com #TK2dTuesday #muscleweakness #mito #TK2dAwareness

NHS HSS for Rare Mitochondrial Disorders Oxford Thanks so much to the amazing team NHS HSS for Rare Mitochondrial Disorders Oxford for inviting us along to meet with #mito patients and professionals to talk about the work of The #LilyFoundation This events are key in working together to improve the lives of people affected by #mitochondrialdisease Thank you!

Get behind the amazing Kevin Hunter Day as he helps The #LilyFoundation put #mitonthemap during World #MitochondrialDisease Week. Find out more: bit.ly/3MsNGpB

Team Lily are looking forward to returning to this fabulous event with our friends Cure EB There is still time to sign up to run/walk/wheel for The #LilyFoundation at this accessible event Queen Elizabeth Olympic Park bit.ly/4aMyuxm

Another amazing team, fundraising for The #LilyFoundation this weekend Great Run Katie & Heidi are running for Ruby… little Lancaster girl with rare disease inspires Great North Run challenge lancasterguardian.co.uk/health/we-are-… #mitoonthemap #mitochondrialdisease #charity

Super excited for our team of 17 runners, taking part Great Run this weekend in support of The #LilyFoundation This is a great opportunity to put #mitoonthemap in the North East. Raising awareness of #mitochondrialdisease 🏃‍♀️🏃‍♂️💪

Kevin Hunter Day Hungover and in the sun Kevin Hunter Day Respect!! Thanks so much for your support in helping The #LilyFoundation fight #mitochondrialdisease

‼️ IMPORTANT ‼️ 🩷LAST CHANCE TO SIGN UP TO THE ROYAL PARKS HALF MARATHON!!!🩷 YOU HAVE UNTIL THE 2ND OF SEPTEMBER!⬇️⬇️⬇️ ow.ly/kuej50TaGNC SIGN UP TODAY! #royalparkshalf #royalparks #halfmarathon #important #signup #charity #run #charityrun #lilyfoundation #running

⬇️🗣️YOU make a difference🗣️⬇️ Not only do your donations fund crucial research but also provide incredible experiences for those living with mito! To check out more statistics check out the link below! ow.ly/6UOm50T8AHX #lilyfoundation #family #mito #charity

There is still time to sign up to run Cure EB #ButterflyRun in support of The #LilyFoundation More details: thelilyfoundation.org.uk/charity/get-in… #inclusive #charity #London

Kris Boobyer Gospel Touch Choir The Bedford, Balham Thanks so much Kris Boobyer for joining this amazing group of people helping to put #mitoonthemap with a fabulous concert, raising funds to support the work of The #LilyFoundation in memory of precious Otto. Thank you! ❤️

🍀Good luck to Kelly from #TeamRuby who is doing the Ironman Tallinn Estonia which consists of a 3.8km swim, 180km bike course and a 42.2km run!🍀 Kelly's inspiration to support The #LilyFoundation is friend's daughter Ruby, aged 3, who bravely battles #mitochondrialdisease

Thanks Thomas Malina Suffolk News for sharing 15 year old #mito warrior Joshua's story, helping The #LilyFoundation put #mitoonthemap ahead of World Mitochondrial Disease Awareness Week (16th -22nd Sept) suffolknews.co.uk/hadleigh/famil… #mitochondrialdisease #mitoaware #facesofmito

✈️Good luck to Peter Guille who is doing a Skydiving fundraiser for The #LilyFoundation today! ✈️ Peter has a daughter named Lily who is fortunately fit & well. When he heard about our charity, Peter wanted to do something to make a difference for people affected by #mito ❤️

Kildare parents to hike Croagh Patrick mountain in memory of daughter Fiadh who died from #mitochondrialdisease kildarenow.com/news/home/1583… We're so grateful to the team of 12 family & friends taking on this challenge, helping #LilyFoundation put #mitoonthemap & supporting our work.