🗺️PUTTING MITO ON THE MAP!🗺️ Fiadh's family and friends completed their hike up to Croagh Patrick in Ireland!! Their hike was in loving memory of Fiadh who sadly passed away. Fiadh would have just turned 1 years old, and although she is no longer with us her legacy continues!🩷

‼️ IMPORTANT ‼️ 🩷LAST CHANCE TO SIGN UP TO THE ROYAL PARKS HALF MARATHON!!!🩷 YOU HAVE UNTIL THE 2ND OF SEPTEMBER!⬇️⬇️⬇️ ow.ly/kuej50TaGNC SIGN UP TODAY! #royalparkshalf #royalparks #halfmarathon #important #signup #charity #run #charityrun #lilyfoundation #running

💚LIGHT UP GREEN FOR MITO💚 ✅This involves you asking the authorities / council to light up landmarks, buildings, bridges etc in YOUR local area!!!✅ Click here for more information, and the email template!!⬇️ thelilyfoundation.org.uk/charity/get-in…

🗣️IT'S THE FIRST OF THE MONTH!!🗣️ 💚SEPTEMBER IS HERE!!💚 ✅💚UPDATE YOUR PROFILE PICTURE WITH OUR WORLD MITOCHONDRIAL DISEASE WEEK TWIBBONS!!💚✅ 🗺️HELP US #PutMitoOnTheMap !!!🗺️

Super excited for our team of 17 runners, taking part Great Run this weekend in support of The #LilyFoundation This is a great opportunity to put #mitoonthemap in the North East. Raising awareness of #mitochondrialdisease 🏃‍♀️🏃‍♂️💪

Delighted to see Muscular Dystrophy UK investing in a #mitochondrial research project led Horvath Lab Cambridge University to explore whether a dietary supplement of specific amino acids could be a new treatment for people with mitochondrial myopathies. bbc.co.uk/news/articles/… #mito #hope

🗺️WE'RE PUTTING MITO ON THE MAP, AND YOU CAN TOO!!🗺️⬇️⬇️⬇️ thelilyfoundation.org.uk/charity/get-in… Find out how you can raise awareness around mitochondrial disease during world mitochondrial disease week (16th-22nd of September)! #WMDW #mitochondrialdisease #mitochondria #awareness #research

💚LIGHT UP GREEN FOR MITO💚 Light Up for Mito will be on Saturday 21st September! Monuments and landmarks around the world are lit up green to raise awareness about mitochondrial disease. Click here for more information, and the email template!!⬇️ ow.ly/njBj50T6sYB

⬇️‼️Two Weeks Today‼️⬇️ Comedian, writer, broadcaster and avid Crystal Palace support Kevin Day will be taking to the streets of London to raise awareness of mitochondrial disease.💪 DONATE TODAY: ow.ly/iCK550TcpGh GET INVOLVED: ow.ly/Fhgx50TcpGg

Another amazing team, fundraising for The #LilyFoundation this weekend Great Run Katie & Heidi are running for Ruby… little Lancaster girl with rare disease inspires Great North Run challenge lancasterguardian.co.uk/health/we-are-… #mitoonthemap #mitochondrialdisease #charity

A follow up to our 2018 JAMA Neurology paper funded by The Lily Foundation describing #mito disease patients with RTN4IP1 variants (jamanetwork.com/journals/jaman… ). Now we show that both these newly identified RTN4IP1 functions are disrupted in #mito disease

#TK2dTuesday is on Sept 10! Come together to learn more about TK2d (Thymidine Kinase 2 deficiency) & support those affected. Together, we can take on TK2d. For info & resources: TK2d.com #TK2dTogether #TK2dAwarenessDay #Mito #TK2d #raredisease #mito

🥳TAKE A STAND WITH LILY !!🥳 #TakeAStand Put #MitoOnTheMap by having your very own Lily stand! This could be at a school fete, within your local community, sports center, health center etc...! To sign up check out this link!! ow.ly/QORa50Tfc9T

💚LIGHT UP GREEN FOR MITO!!!💚 ✅This involves YOU asking the authorities / council to light up landmarks, buildings, bridges etc in YOUR local area!!!✅ Click here for more information, and the email template!!⬇️⬇️⬇️ ow.ly/Eln250TfglM

💚ONE WEEK TO GO! WHO'S EXCITED!!!?💚 WORLD MITOCHONDRIAL DISEASE WEEK IS ONE WEEK AWAY! ❔For those who don't know World Mitochondrial Disease Week runs from September 16th -22nd❔ Find out how you can get involved today!!⬇️⬇️⬇️ thelilyfoundation.org.uk/charity/get-in…

Today is #TK2dTuesday Learn more about thymidine kinase 2 deficiency (TK2d) and support those affected. tk2d.com #mitochondrialdisease #TK2dAwareness

Team Lily are looking forward to returning to this fabulous event with our friends Cure EB There is still time to sign up to run/walk/wheel for The #LilyFoundation at this accessible event Queen Elizabeth Olympic Park bit.ly/4aMyuxm

Get behind the amazing Kevin Hunter Day as he helps The #LilyFoundation put #mitonthemap during World #MitochondrialDisease Week. Find out more: bit.ly/3MsNGpB

Thymidine kinase 2 deficiency (TK2d) is an ultra rare #mitochondrialdisease Find out more: tk2d.com #TK2dTuesday #muscleweakness #mito #TK2dAwareness

#LilyFoundation are joining together with the global #mito community to raise awareness of Thymidine kinase 2 deficiency (TK2d), an ultra rare #mitochondrialdisease Find out more: tk2d.com #TK2dTuesday #muscleweakness #mito #TK2dAwareness