The Sumaira Foundation(@TheSumairaFDN) 's Twitter Profile Photo

🇺🇸 “Scientists, researchers, clinicians: please don't give up on us patients because we need you. You are our voice and our light in our darkest moments, so thank you,” Marie patient & TSF Ambassador

Thank you Univ. of New Mexico for the feature! asresearch.unm.edu/news-events/20…

🇺🇸 “Scientists, researchers, clinicians: please don't give up on us #raredisease patients because we need you. You are our voice and our light in our darkest moments, so thank you,” Marie #NMOSD patient & TSF Ambassador

Thank you @UNM for the feature! asresearch.unm.edu/news-events/20…
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The Sumaira Foundation(@TheSumairaFDN) 's Twitter Profile Photo

🌺In collaboration with Amy Kunchok, Mary Rensel MD FAAN ABIHM & Justin Abbatemarco at Cleveland Clinic, you're invited to TSF's Cleveland Patient Day for & on June 15th, a special day dedicated to patients, caregivers, clinicians and researchers.

Registration: tinyurl.com/TSFCleveland

🌺In collaboration with @AKunchok, @MRenselMD & @JRAbbatemarco at @ClevelandClinic, you're invited to TSF's Cleveland Patient Day for #NMOSD & #MOGAD on June 15th, a special day dedicated to patients, caregivers, clinicians and researchers.

Registration: tinyurl.com/TSFCleveland
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Sumaira Flower 🍉(@SumairaFlower) 's Twitter Profile Photo

Sorry to miss ; I’ve had a busy week celebrating life (my niece arrived 16 days early on eclipse day) & love (my friend’s wedding) ♥️💃🏽

Looking forward to hearing about all the updates about & . Hope it is a productive meeting for all 🧠

Sorry to miss #AANAM; I’ve had a busy week celebrating life (my niece arrived 16 days early on eclipse day) & love (my friend’s wedding) ♥️💃🏽

Looking forward to hearing about all the updates about #NMOSD & #MOGAD. Hope it is a productive meeting for all 🧠
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ゆぅ*MS(@yun0623) 's Twitter Profile Photo

難病に指定されている

関連する疾患、
のスペースは今夜開催

私は聞いたこともない疾患でした
正確で最新の情報に触れられから助かってます

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Demystifying NMO/MOG Podcast(@DemystifyingNMO) 's Twitter Profile Photo

For , Marie Abrego & AnneMarie joined us to explore the powerful bond between pets and their owners. Hear their stories and insights on the benefits of pets and dealing with loss.

The Sumaira Foundation Genentech sd ad

podcasts.apple.com/us/podcast/epi…

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Vindico Medical Education(@VindicoMedEd) 's Twitter Profile Photo

Have you earned your credits with this activity yet? Topics include best practices that aid in the differential diagnosis of . Learn & earn your credits now >> ow.ly/6BqC50QqvNx Heather Moss, MD, PhD

Have you earned your #CE credits with this activity yet? Topics include best practices that aid in the differential diagnosis of #NMOSD. Learn & earn your credits now >> ow.ly/6BqC50QqvNx @HeatherMossMD
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Mount Sinai Neurology(@MSHSNeurology) 's Twitter Profile Photo

Dive into the complexities of management with stephen krieger & Aaron E. Miller, MD, FAAN today from 3:30 - 5:30 pm. Gain insights into DMT selection, NMOSD management, and navigating social & medical situations in MS care.

Dive into the complexities of #MultipleSclerosis management with @SKriegerMD & Aaron E. Miller, MD, FAAN today from 3:30 - 5:30 pm. Gain insights into DMT selection, NMOSD management, and navigating social & medical situations in MS care. #AANAM #MSManagement #Neurology
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Healio CME(@HealioCME) 's Twitter Profile Photo

The therapeutic landscape for NMOSD has widened with FDA approval of eculizumab, satralizumab, and inebilizumab. These target 3 different components of inflammation and damage in NMOSD: complement, the inflammatory cytokine IL-6, and B cells. bit.ly/3OFD8UM

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NPO法人 日本視神経脊髄炎患者会🇯🇵nmosd(@nmosdjapan) 's Twitter Profile Photo

とある機会を頂き…

都内某所にて

素敵なNMOSD先輩に力強けられ。

先生  先生 からは、メモ帳が一杯になるほどの
贅沢な学びの時間。

ありがとうございました😊

sd スペクトラム障害

とある機会を頂き…

都内某所にて

素敵なNMOSD先輩に力強けられ。

#富沢雄二 先生 #野原千洋子 先生 からは、メモ帳が一杯になるほどの
贅沢な学びの時間。

ありがとうございました😊

#nmosd #視神経脊髄炎 #視神経脊髄炎スペクトラム障害 #nmo #難病
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MSキャビン(@mscabin) 's Twitter Profile Photo

次の日曜日(4/21)です!
私もおじゃますることにしました😊
「MS/NMOSD/MOGADセミナー」
mscabin.org/news/oshirase_…

次の日曜日(4/21)です!
私もおじゃますることにしました😊
「MS/NMOSD/MOGADセミナー」
mscabin.org/news/oshirase_…
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NeuroCME(@Neuro_CME) 's Twitter Profile Photo

Have you earned your credits with this activity yet? Topics include best practices that aid in the differential diagnosis of . Learn & earn your credits now >> ow.ly/6BqC50QqvNx Heather Moss, MD, PhD

Have you earned your #CE credits with this activity yet? Topics include best practices that aid in the differential diagnosis of #NMOSD. Learn & earn your credits now >> ow.ly/6BqC50QqvNx @HeatherMossMD
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坂井田真実子 sakaida mamiko(@MamikoSakaida) 's Twitter Profile Photo

患者会の超有能ボランティアさん達が
我が家に集結!
みなさーん、ありがとうございました!

自らを「NMOSD推し!」と言ってしまうほどの
行動力もあって、アイデアも抜群の
華代さん。

wheelogのイベントで隣同士になったのがご縁
そこから、患者会イベントの際
富士通の会場提供でご尽力くださる…

患者会の超有能ボランティアさん達が
我が家に集結!
みなさーん、ありがとうございました!

自らを「NMOSD推し!」と言ってしまうほどの
行動力もあって、アイデアも抜群の
華代さん。

wheelogのイベントで隣同士になったのがご縁
そこから、患者会イベントの際
富士通の会場提供でご尽力くださる…
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Alexion Pharmaceuticals U.S.(@AlexionPharmaUS) 's Twitter Profile Photo

Dysregulation of the complement system is a key driver of , a disease that can result in destruction of cells in the optic nerve, spinal cord and brain. Learn more about NMOSD and our efforts to accelerate innovation for the community: spr.ly/6019wnBB5

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SRNA(@wearesrna) 's Twitter Profile Photo

Sign up now to attend Guthy-Jackson Fdn patient day in Los Angeles this June! 💚

This event connects the community of patients, caregivers, and families to the world’s leading neurologists and NMOSD experts.

Learn more and register here: gjcf.regfox.com/2024-los-angel…

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ゆらこ(@yurakoy) 's Twitter Profile Photo

nmosdで免疫グロブリン療法やったことある方、どのくらいで効果でましたか...?
今日で2日目ですが5日間で効果出てくるのかな...
これも人によるのかな??

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