#ISSAID2023 I'm honoured to have finally met Chris Kinchlea @ckinchlea, the President of The Canadian Autoinflammatory Network Canadian Autoinflammatory Network, & the rest of the board in person! Photo credits by Will Kinchlea Will Kinchlea. #AutoinflammatoryAwareness

Genetics for Gummies

#DisabilityPrideMonth is a time for ALL OF US TO CELEBRATE OUR DIVERSITY AND THE DIFFERENCES THAT BRING US TOGETHER, TO FIGHT FOR EQUITY and to continue to show the world WE ARE PROUD AND WE EXIST! #DisabilityTwitter #Disability #Inclusion #Equity

#DisabilityPrideMonth is an opportunity to bring awareness of the struggles and discrimination that people with disabilities face, to honour those who fought for rights for the disabled, broke down barriers, and to celebrate their achievements! #DisabilityTwitter #Disability

It's the start of International Autoinflammatory Awareness Month, and there is so much to share and get involved in, from wherever you are! Here is our "Get Involved" Page w/ ideas, past programs, videos, the event page link & shops supporting the month. autoinflammatorymonth.org/get-involved

Visit the events page to find events in your area, and the growing list of illuminations of buildings, bridges and more! autoinflammatorymonth.org/events/ #shine4autoinflammatory #hope4SAID

The 10th-annual Color The World Orange for CRPS/RSD Awareness is here! The easiest way to participate is to wear orange and post a picture to social media with the hashtag: #CRPSORANGEDAY colortheworldorange.com #CRPSORANGEDAY #CRPSORANGE10YEARS

❤️‍🔥🧡💥CRPS & THE MCGILL PAIN SCALE EXPLAINED, PART 1❤️‍🔥🧡💥 🔥CRPS can reach 47/50 on the McGill Scale of Pain, which is currently the gold standard to measure high impact pain. #Nervember #CRPSawareness #CompleRegionPainSyndrome #ChronicPain #CRPS instagram.com/p/CzjsUokOR1r/…

❤️‍🔥❤️‍🔥🧡💥CRPS & THE MCGILL PAIN SCALE EXPLAINED, PART 2🧡💥 🔥CRPS can reach 47/50 on the McGill Scale of Pain, which is currently the gold standard to measure high impact pain. #Nervember #CRPSawareness #CompleRegionPainSyndrome #ChronicPain #CRPS instagram.com/p/CzjsabGO0cp/…

Created this graphic to illustrate the high impact pain that people with CRPS suffer from on a daily basis. Awareness is key. CRPS can land anywhere between 42 and 47. #NERVEmber #CRPS #ComplexRegionalPainSyndrome #ChronicPain #McGill #CRPSawareness #ChronicPainAwareness

The journey has just begun! We're excited about what lies ahead.  Stay connected with CRDN as we continue our mission for rare disease research, innovation, and care. 🌟 Visit canadianrdn.ca and get involved: qrco.de/bepCkz #CRDN #RareLivesSharedStrength

Thank you so much for your kind words about my story!

Meet Sylvie Tress🌟, a beacon of strength and rare disease advocate. Her journey of late diagnosis and intervention has been devastating. To learn more about Sylvie, watch her story: youtube.com/watch?v=X5bebU… #RareDisease #CRDN #RareLivesSharedStrength #Canada4Rare #Empowerment

Rencontrer Sylvie Tress🌟, un symbole de force et un défenseur des maladies rares. Son parcours de diagnostic et d’intervention tardifs a été dévastateur. Pour en savoir plus sur Sylvie, regardez son histoire : youtube.com/watch?v=X5bebU… #MaladieRare #RCMR #ViesRaresForcePartagée

On #RareDiseaseDay,@rarediseasesint unveiled the Rare Mapping Project, a dynamic platform highlighting the achievements of the global rare disease community! Explore the interactive map and see if you can find the CRDN 🇨🇦 rarediseasesinternational.org/mappingrare/ #CRDN #RareMappingProject