Sydney Stelmaszek
@sydneystel
Supporting African leaders with @LifeChildAfrica to restore communities for generational change - Rare disease mom to Emmitt @cureSYNGAP1 - Wife to @UFDTech
ID: 1317217901678657536
https://lifechild.org.za/lifechild-our-work/ 16-10-2020 21:36:44
674 Tweet
488 Followers
641 Following
Sandy Smith
@sandysmith317
#RareDisease #SYNGAP1 auntie. Working for a cure with @cureSyngap1. Healthcare IT professional. Micah 6:8 💜#epilepsy💙#autism💚#id
Michael
@mmiles2
Michael Joseph Dole
@dolemj
South Texan/Seasoned Political Operative/State Government Relations Director/Fightin’ TX Aggie. Note: My Tweets are my own but I'm not a keyboard warrior.
Jehee Suh
@jeheesuh
Peter Halliburton
@phalliburton
Raising $$ for #SYNGAP1 🧬 gene therapy // @cureSYNGAP1 501(c)(3) Board // Carter & Presley’s Dad // @cyberark Channel Sales // TX 🇨🇱
hans p schlecht
@hanspschlecht
#SynGAP1 Papa, Husband, ID and drug dev doc, Science fanboy, #RareDisease Advocate alongside @cureSYNGAP1, Music fan... here to help so just ask *views=my own*
The Real Eric Moulton
@etmoulton
Mike Graglia 🌻
@jmgraglia
CEO @cureSYNGAP1 🧬 Pod SynGAP.Fund/10 🎧 Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
Justin is now on 🦋 and 🧵, not 𝕏
@yourmindaches
cancer fighter, video editor and music producer, programmer, voice actor | DM for info!
Ana Mingorance
@cnsdrughunter
🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others. @cnsdrughunter.bsky.social
johnnie lee henley
@jr6955_the_1st
Divorced
Becky Sansbury
@aftrtheshock
Emotional Support Specialist | Rare Disease | Palliative Care | Author of "After the Shock" | former hospice chaplain | always a mom
Mayank Saraswat
@mk_saraswat
Scientist, poet, writer, all things glycan, proteins and personal views (sugars shape life etc.) unless retweeted or shared!
Virginie McNamar
@virginiemcnamar
Rare Disease advocate, Syngap1 mom, @CureSYNGAP1, Founder of Betterflye
Helen W. Hernandez
@hg_chemistry
Life-long learner. Founder of KAL Reseach Initiatives, LLC. Opinions here are my own.
Reece | UFD Tech
@reecethefirst
Design & Deals | UFD Tech | pfp: @BagletsOfficial
Zach
@zschrink
Game playing, insomniac, IT tech with a coffee addiction!
Nick Light
@nicklmg
COO @ Creator Warehouse, @linustech
Dr. Abayomi O Ojetayo(He/Him)MD/MBBS,MSc.IPH,MSCRA
@drojetayo
I am a Medical Doctor with several years of clinical experience, MSc Degree in International Public Health and M.S. Degree in Clinical Research Administration.
Laura Palmer
@laurapalmer712
Language Arts teacher, parent of 3, lover of reading and running, epilepsy and rare disease mom.
Dean Kennedy
@caneman1158
It's your road, and yours alone. others may walk it with you, but no one can walk it for you.
Brett @ UFD Tech
@ufdtech
Some dude on the internet looking to @curesyngap1 for his son.
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Shahida Moosa #StopTheGenocide
@shahida_moosa
Professor & Head of Medical Genetics @ TBH-passions= #genomics & caring for my patients with #RareDiseases in Africa 🇿🇦🇵🇸 @RareGenomicsRSA
Ashley S. Evans
@syngap1mom
Investor Francisco Partners Board @payscale @thisisgslate @litmos @SourceScrub @ZoomInfo Alum @OneCarlyle & @MorganStanley Founder @cureSYNGAP1 #SYNGAP1 🧬
MANZI Ndamukunze
@mndamukunze
Renforcement des Capacités - AT en finance inclusive (capacity building-TA in i.f.) Engaged for Persons Living with a Rare Disease (PLWRD) with CENTRE-ALLIANCE
Brain Ablaze
@brainablaze
As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Jill Hawkins
@fam177a1mamma
Founder and President, FAM177A1 Research Fund
Lauren Perry
@laurenperry80
#ColoradoNative☀️⛰️ | #RareDisease Advocate🦓 | #ISFJ✌️| #melomaniac 🎶 | #Xennial💾 | #SYNGAP1🧬 mom | Ops Mgr📃 at #SyngapResearchFund | @cureSYNGAP1💜💙💚
Vicky Arteaga
@vickyaarteaga
Directora para America Latina Fondo Syngap / Co-founder SHER (Sociedad Hispana Enfermedades Raras) / @cureSYNGAP1 Board #SYNGAP1 #RareDiseases
WILL PARFITT
@will_parfitt_36
Catch me if you can onlyfans.com/will_parfitt t.me/will_217_parri… my telegram link
Oxford-Harrington Rare Disease Centre
@ohraredisease
Rare Disease Centre @UniofOxford in partnership with @HarringtonDI_UH @UHhospitals, accelerating cures for rare diseases
Beata Tarasiuk
@beatasyngap1
SynGAP1 Mom @curesyngap1 #syngap1 volunteer at SRF
CRID - Unique Patient ID/clinical research
@_thecrid
More data sharing, less data silos. I prefer BlueSky . Find me at: bsky.app/profile/thecri…
Olivier SIBOMANA
@oliviercurie
Founder | Published researcher| #digital and #smart health enthusiast #AI #ML #DL #healthtechnology
Corey Baysden
@coreybaysden
#RareDisease mom to Saylor w/ #Syngap1 🧬 Director of Community Activation @cureSYNGAP1 🧠Working 2 find a cure for #epilepsy #autism #hypotonia #nonverbal #ID
a nap plz #ForTinu
@808nobody
Free Britney & Amanda 💖 CPP, adhd, disabled, anti-colonialism. #freeWendy Wendy is currently enslaved by a white woman and a financial institution
Aishwarya Ramamurthy
@aish__ram
Biomedical PhD Candidate @CarvillLab |🧬Neurogeneticist in training 🧠
suzy ! saw zb1 🫧
@swanpinkss
gyuvin lovebot
🌟Paige Starlet🌟
@paigebliss_
Photography and anime lover Looking for someone to vibe with!
Mary
@roundtree_mary3
Jessica
@lee_jessica2
Lola
@lola_wright_
Sadie
@ramirez40sadie
Bertha
@scott10bertha
たちはらみあ
@tachiharam62372
Kacie
@kacieevans31
Katie Murray
@kkatiemurray
CFO at The Royal Bank of Scotland / Natwest Group
April
@april6244969285
Smeythou
@smeythou23271
digital Art
The Med13L Foundation
@med13l_fdn
Supporting MED13L families through awareness, research, and community. Connecting hearts and minds to overcome challenges. #NDD #Epilepsy #Autism #ID 🧬💙🧠
THIS IS DWAYNE
@dwaynd_loves
Dwayne official private account
Shyteat
@shyteat25444
babywarped
@babywarped30450
Barry Edward Robinson
@barry_edwa52639
AKA 👏
Eg0re80
@eg0re1980
Joel berken
@jackbrown590342
photographer📸#designer#@MODEL NYDJ. pray for successful but not to be Rich: NO PORN please.. proud of American 🇺🇸
CatSu
@catsu_osm
Amani foundation. [email protected]
@amanimaure43248
In the symphony of giving, every note resonates with the power to transform lives. As we extend our arms to embrace the vulnerable, we invite you to join us❤️
Jason Stanek
@jasonstane21505
THE GENERAL
Ann Torsort
@torsortc8jj
Scott William
@scottwilli6432
Ezekiel Jayden
@ezekiel79jayden
Caravan House Car FULLEdition with Textures 1080 New and complete model
Evelyn
@netroan_ogul
Loneliness is probably like this No one can accompany your laughter, and no one worries about your sorrow x.com
Noojut
@noojut878
Syngap Research Fund Australia
@syngapaus
teletubbytalibantabouliravioli36
@talibantwitchtv
猫、鳥、絵と写真。RT多いです、無言フォローします Professional FPS and gacha malder, avid shitposter, art/photography/tech connoisseur, booty admirer and cat/bird appreciator
The Notorious EEG (M. Scott Perry MD)
@thenotoriouseeg
Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Danny
@errorbitez
Bloxburg builder, Minecraft player, total idiot.