If you would like to volunteer to help with TTP Network with their events or social media or enrol in the buddy system for others who have #TTP drop them an email at the below addresses #TTPAston23

We mostly focus on the acute disease and manage with plasma exchange, rituximab and caplacizumab but new research from Shruti Chaturvedi teaches us that TTP pts continue to have silent and symptomatic cerebral infants even in remisssion. ASH Johns Hopkins Hematology

Signs to watch for when you’re dealing with #TTP Bruises: These bruises, called #purpura, are caused by bleeding under the skin. Feeling tired or weak. Confusion, changes in speech, blurry vision. Chest pain, trouble catching their breath. TTP (Thrombotic thrombocytopenic purpura) TTP Network

Long-term complications of aTTP such as brain fog, fatigue, and PTSD can take a toll on emotional and physical wellbeing for people with this #RareBloodDisorder. Learn how early intervention and diagnosis can help support improved outcomes at #EHA2023.

It’s 2023 Volunteers’ week; A big thank you to all our Volunteers, Trustees, our in house medical professionals… Everyone that has help us in any way to raise awareness of TTP, raise funds and shares the message about what we do. We are grateful, we cannot do it without you.

Coming to join the discussion if you are going to 2023 ISTH Congress in Montreal, CA this weekend. Should prophylaxis be recommended to all patients with hereditary TTP?

Diagnosing and treating acquired/immune-mediated thrombotic thrombocytopenic purpura (aTTP/iTTP), a serious rare blood disorder that demands immediate attention, can be challenging. Discover how a multifaceted approach to treatment may make a difference in long-term outcomes.

Why do we chase the miracles of science? To help redefine what it means to live life to the fullest for people living with #RareBloodDisorders, like hemophilia, ITP, CAD, and aTTP. Learn how we’re advancing innovation at #ISTH2023.

Sharing two studies - mailchi.mp/142b2f0d3d6b/2…

Are you living with or caring for someone with a rare condition such as TTP? Your thoughts/opinions on newborn screening such as: – Should rare conditions be screened at birth? Take the survey now: 7eu2l.r.a.d.sendibm1.com/mk/cl/f/98n9J8…

You are invited to our Annual Thrombotic Thrombocytopenic Purpura (TTP) awareness event. This year after our sponsorship walk, we will return to the High Street to raise awareness of the condition. Registration: eventbrite.co.uk/o/aofac-founda… Sponsorship: justgiving.com/AOFAC

Thu 12 Oct 7:00 PM - 8:00 PM: Webinar - October 2023 tickettailor.com/events/ttpnetw…

Hello TTP patients, We've been invited to speak at the USTMA 2023 patient meeting. Is there any specific topic or areas where you believe patients might not be receiving enough attention or information that should be discussed during our presentation? Your voice matters to us…

This event is next Tuesday - a week today It is a must not miss event! Have you registered yet? Here is the Registration links: aofacfoundation.org/treatment-upda… Time: UK (GMT): 7:00pm USA (EST): 2:00pm West Africa: 8:00pm

🧵Thread on frontline caplacizumab and plasma exchange in TTP🚨 With advancing care for immune thrombotic thrombocytopenic purpura (iTTP), let’s discuss frontline caplacizumab (capla) and the future for therapeutic plasma exchange (TPE) ⤵️ #hemetwitter #TTP #caplacizumab 1/22

This account will leave this platform. Please follow our new account on Bluesky: survivingttp.bsky.social hope to meet there!

TTP (Thrombotic thrombocytopenic purpura) Thrombocytosis asyel #thrombocytosis #NaturopathicDoctorRandiShannon @TheBodyCAN The Body Shop Indo @TaraBull808 Died Suddenly John W. Pork Chaya Raichik

What is TTP? “Thrombotic Thrombocytopenic Purpura (TTP): A rare, life-threatening condition … Awareness and prompt treatment are crucial.” #TTPAwarenessEverywhere #TTP #TTPSurvivors #TTPWarriors #AOFACFOUNDATION #TTP #NHS #NHSEngland #RareDisease #HowRareIsRare #EssexUK

It is Mental Health Awareness Week, themed ‘Community.’ #TTP survivors face physical and mental health struggles. AOFAC Foundation Foundation, we’re here to support, uplift, and walk with you. No one should face this journey alone.❤️ #MentalHealthAwareness #TTPCommunity #YouAreNotAlone

Are you a patient with iTTP? Would you like to take part in research on the Psychological Impact of iTTP? read more here: liveuclac-my.sharepoint.com/personal/ucjum… take part here: forms.cloud.microsoft/pages/response…