#Nashies we are currently having numerous talks w/ interested networks! Keep tweeting #BringBackNashville & thank you all for the support 🙌💪

@PTN1008 Whaddup yo!

Please help us raise awareness on World Rare Disease Day - February 28th! WE ❤ SOMEONE RARE!!! #WRDD2017 #CureSPG47

Transatlantic discussion about AP-4 yesterday with Darius Ebrahimi-Fakhari Boston Children's & Jenny Hirst Ravi Rajpurohit, connected by @CureSPG47.

May has been exciting! It's SPG47 awareness month in PA and Molly is Hero of the Month from Kids Wish Network! @JeffChirico Rose Minutaglio

Help 3-yr-old Ethan raise money to fight an ultra rare disease that will likely stop him walking altogether. He is the only child in Tx w/this diagnosis. His story tonight on KVUE News at 10. Suchan Rosenberg