“..reviews of clinical trials have found levels of reported patient involvement ranging from less than 1% to 18% of identified trials..1/3

Who are Indians descended from? Aryans from Europe? Dravidians who've been "here" forever? The Indus valley civilization? A controversial question for 150+ years, but now we have DNA evidence that answers these questions with a high degree of certainty. 🧵

Can you prevent Parkinson's disease with exercise? Not so sure, however Oosterhof, Darweesh, Bloem and de Vries, take on this 'what if' scenario in Journal of Parkinson's Disease and they think through what a clinical trial may look like in the future. Who would you include? Key Points: - The

New review paper just out today NEJM on Parkinson's disease by Professors Jill Ostrem and Carlie Tanner UCSF Health. Check out the gems they include like this chart of all the current medication options. I added the 'hot' new article sign as we presented in Aspen

The DBS field is changing, and soon we will be deliberating targeting the circuit, rather than pointing at a simple grey matter target. In fact, several folks have already shifted in this direction, such as in this recent paper by Erik Middlebrooks, MD and colleagues. Nice discussion

Want a comprehensive table summarizing the treatment of non-motor Parkinson's symptoms, look no further than this article just out NEJM by Tanner and Jill Ostrem. #Parkinsons

It’s been a while. But I gotta post about Day 2 of #SealeyChallenge #sealeychallenge2024. Spent my time with Amorisco by Khaled Mattawa. A complex, evocative book of poems with so much meaning. Thankfully, it had a notes section in the back. #reading #poems

🚨 Call for submissions! 📖 Artist Barbara Salsberg Mathews is creating a #Parkinsons comic book called "What Parkinson’s Feels Like". This image is one example. She needs YOUR descriptions of what #Parkinson's feels like - comment below! 👇 👉 Read more: buff.ly/3WTe9BN

“We at Parkinson’s Ireland feel that at EU level, a similar plan should be adopted to end Parkinson’s. Such an act would create measurable objectives and would in turn be another way to hold key decision makers to account,” said Shane O’Brien, CEO of Parkinson’s Ireland

For the past few years, I’ve lived the thrill of a lifetime working with the team at @natgeo. Last week brought more deep cuts. This time I was on the list. Time to take a breath and figure out what’s next, but first I want to celebrate the amazing work I’ve gotten to do here: 🧵

Sir Isaac Newton discovered gravitational theory in 1666. Albert Einstein discoverer the theory of general relativity in 1915. Carl Beech Carl Beech 🌷 has had his eureka moment in 2024. Amazing 🤩 He may have just changed the projection of #Parkinsons 👏🏻 👏🏻 👏🏻

I accidentally picked up the wrong pill and took CL ER 90 minutes earlier than needed. I’m already very dyskinetic for me. And I have a work meeting in 1 hour. This is where I could use a magic eraser. #yopd #parkinsons #dyskinesia

Here's a new illustration of 'What Parkinson's Feels Like'. "When unmedicated or some days even medicated - Parkinson's feels like I'm walking through wet cement." Lisa Harris-Murphey

At least I know it’s not me. As much as I have concerns over this platform it is still the first place I go to for up to date information on any news.

Someone please tell me that it’s not just me. That data clean up is really tedious and time consuming. Especially data migration. Let’s not even get into systems and structures yet. And if it is me, please bring me some wine. And shots. And chocolate. And strawberries.

Was Instagram’s great app update changing the order of posts, followers, and following or is that just a weird bug? Because if it’s the former, I really wonder what their thought process was.

I stand in front of my aunt, who just lost all her children, trying to find words that can comfort her. I hold back my tears and anger in front of her, but I want to break down with her.

Just when my dyskinesia stops, I need to take another pill. It’s been rough today. Nonstop dancing, as a family member likes to call it. I wish it looked as elegant as that. At least I could perform somewhere. #youngonsetpd #yopd #parkinsonsdisease

This is the first time I’ve experienced #dyskinesia where it feels like my stomach and abdominal muscles are twisting like the snakes on Medusa’s head. It is incredibly exhausting and painful. This might be my journey to get that flat belly six-pack! #yopd #Parkinsonsdisease

Hello friends! We will be shutting down the Women’s Parkinson’s Project this year. We will be contacting those we have video interviewed so we can find a new home for that content. It has been a gift sharing with you these past few years. Sree, Kat, Richelle