A brilliant interview on BBC Radio 4's Inside Health with Jimi Olaghere about his experience with a pioneering new gene editing treatment for sickle cell: bbc.co.uk/sounds/play/m0… #SickleCell #GeneEditing #Treatment

June 19 is #WorldSickleCellDay and we're shining the light on #SickleCellDisease through the nat'l #ShineTheLight awareness campaign. Support our efforts to improve quality of life for members of this community! #SickleCellMatters #kNOwSickleCell #CureSCD #SickleCellMN

Join us for our online event ‘Sickle Cell: Back to Basics’ on Monday 28th November at 6:30pm! Do you have unanswered questions about sickle cell disorder? Click the link in our bio to register for this event! bit.ly/3GO8feq #sicklecell #sicklecellawareness

NHS to deliver world first blood-matching test to aid sickle-cell and thalassemia patients news.sky.com/story/nhs-to-d…

Would love to speak to people, living/born in Essex, who get treated for sickle cell/lost someone to the disease This includes Greater London places that used to be Essex (Romford, Barking, Ilford etc.) #journorequest #prrequest

Sickle Cell Awareness Day Thread🧵 Former NHS mid-wife Cecilia Shoetan started a sickle cell support group Lorraine's Sickle Cell and Thalassemia Foundation in 2002 after losing her daughter to the disease in 2000 essexlive.news/news/essex-new…

Children with sickle cell anemia are vulnerable to serious infections and stroke, but many do not receive the preventative care that could help them stay healthier for longer, a Children's Hospital Los Angeles study found: news-medical.net/news/20240306/…

Pursuing an education while living with sickle cell disease just got easier!🎓 The Pfizer Sickle Cell Scholarship Program is now accepting applications until May 31, 2024. Don’t let finances hold you back from your dreams. Learn more here. tinyurl.com/2hme8axm

*Supercell* is #1 globally! Our CEO John spoke with The Guardian about its impact on sickle cell awareness. "Sickle cell gets very little attention. This show portrays it differently." Thanks, @realrapman! Read more: buff.ly/3S8B0rk #SickleCell #Supercell #Netflix

We are thrilled to share some exciting news! The NHS will soon offer gene therapy to patients over 12 with transfusion-dependent #Thalassaemia, thanks to NICE's groundbreaking recommendation under the managed access agreement! 🌟

Could you help to support people living with Sickle Cell Disorder, Thalassemia and Rare Inherited Anaemias in East London and Essex, by providing welfare and benefits advice? Read more about the role and download the job description on our website buff.ly/3XNzuxR

On average 12,000 people a day become unpaid carers, we want to halve the time it takes them to recognise themselves as carers.

#ICYMI Our Campaign Director David Barclay on the BBC Radio 4 Today today, talking about the growing numbers of #WarmWelcomeSpaces supporting communities in this freezing weather. These spaces are a lifeline to thousands of guests every day. ⏪Rewind to 07.12 bbc.co.uk/sounds/play/li…

Brixton’s new Blood Donor Centre is officially open! This centre will help the NHS achieve its goal of finding 12,000 extra Black donors every year to give blood to support patients with Sickle Cell, the UK’s fastest growing genetic condition. I was glad to visit this morning.

bbc.co.uk/news/articles/…

NEW TREATMENT APPROVED FOR SICKLE CELL! We are delighted that NICE has today approved the groundbreaking gene therapy, Exa-cel, or Casgevy, for use through the NHS in people living with sickle cell disorder. Our CEO John James OBE comments here.

Big thank you to The Open University for bestowing upon Cecilia Ayisi-Shoetan an honorary doctorate degree. All the work she put into raising awareness of sickle cell and Thalassaemia wasn't for this but definitely well deserved. So proud of you. Sickle Cell Society UK Thalassaemia Society

New apheresis machine at Luton and Dunstable University Hospital : University College London Hospitals NHS Foundation Trust share.google/2DcqAWsuBCS7Wf…

🚨 Group blood donation bookings are now nationwide! 🩸 Black donors are urgently needed to support people with sickle cell. Join friends, colleagues or community groups at upcoming sessions. 🔗 Book: buff.ly/6owks2e #GiveBloodSpreadLove #SickleCell

Thank you to Disabled Police Association for making space, in September, for Cecilia Shoetan to speak on sickle cell. Full interview link below youtu.be/2pW9STH0ytY?si…