As someone living with scleroderma, Tiffany P. believes in the power of research to drive change. This Scleroderma Awareness Month, she’s joining us to #SayScleroderma. Join us: srfcure.org/sayscleroderma SRFCure SclerodermaCa Scleroderma Fndtn GC

Did you know? Juvenile systemic scleroderma accounts for less than 10% of all systemic scleroderma cases, with an estimated annual incidence of just 0.27 to 1 in a million.

Did you know Scleroderma Awareness Month started in 1992, when SRF Founder Sharon Monsky and Board Member Susan Feniger met with President George H. W. Bush to advocate for national recognition of the disease?

For #SclerodermaAwarenessMonth, join us to # SayScleroderma. #SayScleroderma with us—share your story, raise awareness, and help us move closer to finding a cure. Check out these resources to get started: 🔗 srfcure.org/support-us/say…

A new paper using CONQUER data was recently published in the journal Arthritis and Rheumatology using data from the CONQUER Registry and GENISOS cohort. Learn more about the study: bit.ly/44dS4l4

It’s Scleroderma Awareness Month, and Brian is telling us why he chooses to #SayScleroderma! Every action brings us one step closer to a future without scleroderma. Let’s #SayScleroderma—this month and every month—until we find a cure.

For Scout L., her mother Jackie’s experience with scleroderma is why she chooses to #SayScleroderma: to help drive research that leads to better, more personalized treatments. You can #SayScleroderma too: srfcure.org/sayscleroderma

On June 11-14, SRF representatives attended the 2025 EULAR Congress in Barcelona, Spain, to raise awareness about CONQUEST—the global clinical trial created by the SRF to accelerate potential new treatments for scleroderma. Learn more about EULAR: bit.ly/3zcljZp

Finding a cure remains in focus, because of you. Please make a gift today to help us advance our research efforts this year. When you make a gift of $100 or more to our Research Challenge, you’ll unlock a matching donation dollar-for-dollar. Join today: bit.ly/40s2zzQ

“I #SayScleroderma because although it is rare and may feel isolating, it is not one to be alone with," says Ryan M. (dx 2019). "I see organizations all over the world where the conversations are going strong, and I encourage patients new and old to jump in."

It’s #WorldSclerodermaDay—a time to come together to raise awareness, fuel hope, and move toward a cure for scleroderma. Here are just a few of our incredible community members, and why they #SayScleroderma to raise awareness.

Bringing research progress into focus—read the 2024 SRF Annual Report! Together, we’ve helped fund groundbreaking scleroderma research, expand access to trusted educational resources, and raise awareness on a global scale. Read the full report: bit.ly/3Bbw673

“I’m a fighter. I have faith. And I’m going to push to get a doctor that cares to fight for me too," says Sherry D. (dx 2024). Read the full story: bit.ly/46AZbqj

Breaking news: The Scleroderma Research Foundation (SRF) is proud to become a Strategic Collaborator of Vie Ventures. Learn more: bit.ly/3InAgwl

What is CONQUER—and why is it so important for scleroderma research? 🔬 Learn more about how CONQUER is accelerating progress in scleroderma research: srfcure.org/research/conqu…

Thanks to Boehringer Ingelheim for their generous Diamond sponsorship of the 2025 Patient Forum. We are so grateful for their commitment to helping us connect the scleroderma community with leading experts, and to share the latest information in research.

On June 30th, all four Grove Wine Bar & Kitchen locations in Austin, Texas, celebrated Scleroderma Awareness Month by donating 10% of their net sales to support the SRF's research programs. Read the full story: bit.ly/4o1ZG38

Early-stage clinical trial suggests CAR T-cell therapy may impact skin thickening in scleroderma. 🔬 Read the full article to learn more about this promising research: bit.ly/4nPQ2R1

Thanks to Johnson & Johnson for their generous Diamond sponsorship of the 2025 Patient Forum. We are so grateful for their commitment to helping us connect the scleroderma community with leading experts, and to share the latest information in research.

Introducing the Scleroderma Forum: A new learning hub for scleroderma clinicians Become a member and explore the forum today: bit.ly/4m6NMmN