Social Health Network
@socialhealthnet
A community for patients, caregivers & healthcare professionals with the goal of bringing empathy & humanity to healthcare.
ID:14528306
http://socialhealthnetwork.com 25-04-2008 16:04:38
58,0K Tweets
57,6K Followers
40,6K Following
Stacy Hurt (she/her)🌻
@stacy_hurt
Chief Patient Officer @Parexel 🫶 Cancer survivor, Rare disease mom/caregiver, Advocate for the unseen/unheard in healthcare 📣 Opinions are my ownCathy Chester
@CathyChes
Certified Health Advocate. Patient Leader for MS community. Lifetime Achievement Award, @socialhealthnet Living with #multiplesclerosis for 38 yrs #IBS Wife/MomA Chronic Voice
@AChVoice
I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depressionEffie Parks
@OnceUponAGene
Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓Natalie Hayden
@nataliesparacio
Former TV Journalist in MN, WI & IL. Wife. Mom of 3. Blogger: Lights, Camera, Crohn’s. IBD Advocate. Marquette alum. Instagram: @natalieannhaydenThomas Kline MD, PhD
@ThomasKlineMD
42 yrs rehab medicine; Hosp-in-Home Chief@Harvard-MGH; Stanford Peds,UOre PhD; JATH LLC CEO; National Pain Council Senior Advisor https://t.co/rRaWMYj6KuBeth Morton
@beth_morton
Researcher/advocate/#MigraineChat host 🧠 She/Her/Dr (the PhD kind). Links ⬇️ Header: @/dinosaurcouch.Aaron Boster MD
@AaronBosterMD
MS Neurologist & Spasticity Doc. Founder of The Boster Center For Multiple Sclerosis, https://t.co/EoJjH5eoVz. He/Him. Tweets ≠ medical advice. 🏳️⚧️🏳️🌈Eileen Davidson - Rheumatoid Arthritis Advocate
@chroniceileen
Rants @CreakyJoints Blog https://t.co/ghdlGYZy4h Research Partner @Arthritis_ARC Ambassador @ArthritisSoc Staff @IfAiArthritis Host @Arthritis_SHYVRRARE Revolution Magazine
@RareRevolutionM
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]Carrie Kellenberger - SpA & Fibro Advocate
@globetrotteri
♿️ #Disability Advocate @spondylitis @TeamFibro ➡️ I write so you can learn about life w #Arthritis #axSpA #Fibromyalgia #MECFS #ChronicIllness #ChronicPainCreakyJoints.org
@CreakyJoints
CreakyJoints is a digital community for millions of arthritis patients and caregivers worldwide. | Part of @GHLForg | [email protected]Jo Taylor
@abcdiagnosis
Founder of After Breast Cancer Diagnosis & living with secondaryBC, #breastreconstruction, signposting, support #patientadvocate #blogger, #campaigner #activistLene Andersen
@TheSeatedView
Author, #ChronicIllness #Rheum #Disability Advocate, Photographer, Writer & @HealthCentral #RA site Power Advocate. Is your woke accessible? She/herLiz Salmi
@TheLizArmy
Be one, do one, teach one. Co-Investigator for @myopennotes at @BIDMChealth. Bringing punk rock to health care. @thelizarmy on all platforms.Enlightening Results 💡
@GraceCordovano
#Cancer #PatientAdvocate | Healthcare Navigating Solutionist | De-Frictionizer | ⬇️ Patient Administrative Burden | #Techquity | co-founder @UnblockHealthAbout IBD: Amber-Writer, Journalist, Podcast Host
@aboutIBD
#UC '89, #jpouch '99. Creating evidence-based #IBD patient education to help you know more about IBD. Find #AboutIBDPodcast in any podcast app.Brennan Spiegel, MD, MSHS
@BrennanSpiegel
Gourrich Chair of Digital Health Ethics @CedarsSinai. Prof of Medicine & Public Health. GI doc. My lab studies how spatial computing and #AI can improve health.Taylor Kane
@rarelikeher
Patient engagement consultant, #raredisease advocate, author, speaker, founder @remember_girls, and more!Tina Aswani-Omprakash, MPH
@ownyourcrohns
#IBD #Ostomy Patient Advocate • Senior Director, Strategic Partnerships @sommerconsults @theinsighters_ • President @southasianibd @ibdesisKindness for Kidneys
@KKidneys
Committed to educating, encouraging, and empowering kidney warriors and their families.Judy Feldhausen
@LifeEmpower
Dynamic, Inspiring and full of fun, Wellness Advocate, Referral Master.Kate Nicholson
@speakingabtpain
Executive Director: @national_pain https://t.co/8dirShsP88 | Civil Rights JD writing/speaking re: #pain/#opioids/#COVID19 | @Harvard @Dartmouth |Angela (she/her/hers) 👑
@MoveOverMS
Exploring health & wellness for better living & loving #MS #Dx2002 #MSActivist #PatientLeader #Advocate #Bohemian #Goddess #sideBliving #GroupFitnessInstructorChronic-Kidney-Disease.net
@ChronicKidneyHU
A community for people affected by chronic kidney disease (#CKD). Learn, share, and connect with peers and healthcare professionals.A. R.
@areeln
Cancer survivor. Enjoy art, music, crafts, sewing, nature. Enjoy seeing prophecy fulfilled, my pets and especially my family.RareDisease_HU
@RareDisease_HU
A community for people affected by rare diseases. Learn, share, and connect with peers and healthcare professionals.Soojin Jun 전수진
@jun_soojin
Cofounder of @pfps_us,Patient/Safety Activist,empathy,DEIB & communication enthusiast.RPh, fellow @patientrev views r my ownJonathan
@Parkinsonsandme
Hi - I'm 55. In June 2010 at age 42 I was diagnosed with Parkinsons disease. MASSIVE shock. Will tweet now and again with my progress.Dr Jenaya Calderilla
@Doctor_JeNayNay
Physician, educator, advocate. Come for the laughs, leave with new knowledge.Sherry McCracken
@SherryMPhoto
Producer | Dir | DP 🎬 Web3 Thought Leader | Pioneer | Doer ☄️Founder @NAXfilms Never Alone Xperience 🎬🚀 “The Future of Film is Community!” #web3xfilm #film3Mxiety
@mxiety
Inexpert overthinker | Writing, researching and talking mental health-related stuff since 2017 |Free digital hugs| Twitch Partner | [email protected]|🏳️🌈she/herKristin Ito
@KAdvocate_LCAM
Lung Cancer Advocate @IASLC #HopeLives #NoStigma #LCSM #MoreResearchMoreSurvivorsiPain Living Magazine
@iPainLivingMag
iPain Living Magazine® - Official Mag of the International Pain Foundation @iPainOfficial Subscribe https://t.co/642SF1ikF5 #iPainLiving #ChronicPain #NERVEmberJake Goodman, MD, MBA
@JakeGoodmanMD
I fight for mental health. Psychiatry Resident Doctor | Mental Health Activist | Psychiatry For Kids Book ⬇️ | tweets are always my ownYoung Epilepsy
@youngepilepsy
Epilepsy can be one of the most frightening and isolating conditions a child can experience. With your help, we can change that. Together we create possible.ALK Positive
@ALKPositiveinc
We are a patient-driven organization, dedicated to improving the life expectancy & quality of life for ALK-positive cancer patients worldwide. #StrongerTogetherLuke Rosen
@lukebrosen
Dad of 2 amazing kids. Founder of https://t.co/M8dxuYqmgL. Works with families affected by rare neurological diseases and cancer. Baseball and hockey. Firefighter.DISORDER: The Rare Disease Film Festival
@DisorderRare
Two rare disease dads took their films for Menkes Disease and USP7 & built them into a festival for all films on rare disease. https://t.co/Qjsl21HRH4Christine Hodgdon
@christeeny513
Stage IV Breast Cancer Survivor & Advocate treated at Johns Hopkins #BCSM. Extroverted introvert who loves nature & traveling. Co-founder of GRASP @grasptweetsLungCancer.net
@LungCancer_HU
A community for people affected by lung cancer. Learn, share, and connect with peers and healthcare professionals.Lung Cancer Halflung (K Latzka)
@LungCancerHalfL
#halflung lung cancer survivor in #AZ #MN advocating 4 #lungcancer research, & #LDCT screening esp 4 #veterans #LCSM #lungcancerpeople #milspouse #LCAMCURE Epilepsy
@CureEpilepsy
CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 18 countries to date.NERVEmber®
@NERVEmberProj
The @iPainOfficial hosts #NERVEmber project each Nov since 2009 - NERVEmber® brings awareness to 150+Conditions that have nerve pain involvement including #CRPSTerriConneran
@TerriConneran
T like Trouble @KRASKickers Too spunky for #LungCancer Kicking cancer’s #KRAS #research #advocate #survivor #hope ❤️🤣🙏#biomarker NO #KRASholesProject Blue November
@PBlueNovember
A cohesive social media campaign to raise awareness for Type 1 diabetes - bringing together the ideas from a variety of people and organizations.Migraine Meanderings
@migrainemeander
Migraine Meanderings seeks to encourage, support, educate & inspire people living with #migraine. https://t.co/tVAxBG8JGS…Erin Moriarty Wade
@EMoriartyWade
Comms Dir at @carrainc - @AtlBizChron alum - mom of child w/#raredisease - #pinksocks @savvy_coop #clinicaltrial design board & #scleroderma workgroupIvy Elkins
@ivybelkins
Co-Founder, @EGFRResisters LC Patient Group; writer for https://t.co/W6HLnN0ibZ; lc advocate/survivor; dx stage IV 2013, @Princeton & @Wharton alum.Donna Fernandez
@livewithcancer1
Living with stage IV lung cancer since Oct 2012. Gotta love clinical trials, immunotherapy, and awesome doctors.Linda L Wortman
@LindaLWortman
13 yearLungCancerSurvivor-never smoker-#FIRST2BURST -5K 10K 10 mile runner Lung Cancer …https://t.co/lIsB7tUcgQ =MayoClinic Research FundsKC Dill
@kasedill
Native Texan, Stage IV lung cancer survivor and immunotherapy advocate, wife, mother, college & Duke Basketball fanatic. #immunotherapy #Nivolumab #LCSMDaniel Cadigan
@LungRoadAhead
Proud dad. Primary care doctor. Stg 4 EGFR lung cancer 04/13. Screening saves lives. Opinions are my own.kakukkelly
@kmichelle1969
Mom first foremost & forever, lover of life, adventure seeker, travel junkie, living with Stage IV lung cancerDeena Cook
@DeenaRoger
Lucky 2x Lung Cancer Warrior & Activist. Mom to 3; GaGa to 8 and head over heels in love with my husband!Laura Greco
@lgreco_ny
Mom, Lawyer, Lung Cancer Activist, Stage IV Lung Cancer, ALK +, MET amplification. Co-founder of ALKFusion and MET group, plus others. #beatlungcancerLisa Goldman
@GoldmanLisa
ROS1der lung cancer patient/advocate, formerly a fitness instructor and lawyer, I blog at https://t.co/JwF7z3IUND she/herPaula A
@paulalv
Retired & living my best life in FL. Lung cancer advocate, Mom to Lysa Buonanno who has been living life w/stage 4 lung cancer since 2011. All cancers matter!kevin_08sabado
@Kevin_08sabado
My Chronic Brain
@mychronicbrain
My Chronic Brain is a digital magazine helping Chronic Migraine sufferers live their exceptional lives. | Latest edition 👇MacularDegeneration.net
@maculardegen_hu
A community for people affected by macular degeneration. Learn, share, and connect with peers and healthcare professionals.TheRareFair
@therarefair
Powered by @tda4rare, The Rare Fair is the original virtual event designed for all members of the rare disease community. https://t.co/m4Ar9FuzklTwo Disabled Dudes
@2DDPodcast
@kyleabryant and @seanbaumstark have a rare disease. This podcast is all about cultivating the courage to live beyond any circumstance and laugh along the way.CheckRare
@CheckRare
Leading publisher and learning platform focused on rare diseases. Rare Diseases Are Our Focus, Expertise, and Passion.Cancer Kids First
@CancerKidsFirst
🎗️CKF works towards providing kids with cancer with the chance at a normal childhood #cancerkidsfirstAnna Leggett
@LoveBrainReset1
Concussion awareness. Writer on post-concussion syndrome recovery. Coach. Fascinated by the power of neuroplasticity and how amazing our brains are. #concussionMore Than Lupus
@LupusMore
More Than Lupus is a patient focused nonprofit run by Kelli Roseta aimed to amplify the patient voice through lupus advocacy, support, and patient educationDravet Syndrome Foundation
@curedravet
The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.