Smart Patients
@smart_patients
An online community where patients and caregivers learn from each other. We believe patients are the most underutilized resource in healthcare.
ID: 777075630
http://www.smartpatients.com 24-08-2012 00:45:33
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Berci Meskó, MD, PhD
@berci
The Medical Futurist, Author of "Your Map to the Future", Global Keynote Speaker, and Futurist Researcher
Dave deBronkart
@epatientdave
@ePatientDave.bsky.social Participatory Med. Past: OpenNotes adv bd, HL7 #PatientsOnFHIR co-chair, Mayo visiting prof. #HeForShe, #AntiRacist
Digestive Cancers Europe
@dice_europe
DiCE is the voice of digestive cancer patients in Europe. Its aim is to save lives by bringing together all key stakeholders in the fight against these cancers.
Susannah Fox
@susannahfox
Author, "Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care" (@MITPress 2024) She/her. SusannahRFox on bluesky &🧵& insta & gmail
Stanford University
@stanford
Our mission of discovery and learning is energized by a spirit of optimism and possibility that dates to our founding.
Kidney Cancer
@kidneycancer
The KCA is a global community dedicated to serving and empowering patients and caregivers, and leading change through advocacy, research, and education.
Claudia Williams
@claudiawilliams
Building the nation's health infrastructure #Medicaid #Policy #Data Alum @ManifestMedEx @WHOSTP44 @MarkleFdn @peacecorps 🎙️Host of The Other 80 podcast
Fight Colorectal Cancer
@fightcrc
We FIGHT to cure colorectal cancer and serve as #RelentlessChampions of hope for all affected by this disease.
Children's Alopecia Project
@capkidalopecia
Changing the emphasis from growing hair to growing confidence, building self-esteem, providing support, and raising awareness of Alopecia.
Matt Smith 🎙️
@nightlightguy
Podcaster and occasional merchant of words. A muppet of a man. I make: Emperors of Rome, When in Rome, Asia Rising, Raising Standards. Carthago delenda est.
Stacey Tinianov (she/her) MPH, BCPA
@coffeemommy
Patient Advocacy & Engagement. Co-Creation & Community Building. 💗 Coffee drinker. Gardener. Wife. Mom. Cancer 🙃 @AdvocateCollab Also @coffeemommy on BlueSky
EndBrainCancer Initiative
@endbraincancer
Our mission is to EndBrainCancer by providing patients immediate access to specialists, advanced treatments, and comprehensive support programs. Hope Award ⬇️🧠
Sonia Rhodes
@soniarhodes
Founder + CEO The Experience Lab Transforming the health care experience from the inside out. Possibilitarian. Wearing a mask to heal humanity.
Ovations ForThe Cure
@ovations4cure
A 501(c)(3) non-profit organization dedicated to supporting ovarian cancer research, awareness and patient programs.
Stanford Medicine Magazine
@stanmedmag
Stanford Medicine magazine is produced by Stanford Medicine’s Office of Communications. Editors: Rosanne Spector and Patricia Hannon.
Claire Snyman
@clairehsnyman
#Braintumor | Healthcare advocate | Patient partner | Pnt Engagement/Pnt Experience are essential | Author & #TEDx speaker | Two Steps Forward | Tweets are mine
Stacy Hurt (she/her)🌻
@stacy_hurt
Chief Patient Officer @Parexel 🫶 Cancer survivor, Rare disease mom/caregiver, Advocate for the unseen/unheard in healthcare 📣 Opinions are my own
Solve ME/CFS Initiative
@plzsolvecfs
Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ ow.ly/jQji50Srbuv
Julia Maués
@itsnot_pink
She/Her. Living w #MBC since '13 & advocating for people w MBC to LIVE. #AntiRacist #InclusionPledge @GRASPtweets @the_right_dose @Oncoalert 🇧🇷🇺🇸🇩🇪
SRNA
@wearesrna
The Siegel Rare Neuroimmune Association advocates for people with rare neuroimmune disorders (ADEM, AFM, MOGAD, NMOSD, ON, and TM).
Dena Battle
@rccadvocate
Kidney cancer advocate involved in Patient 2.0 and Health 2.0 communities.
Christina Lizaso
@btrfly12
I build community. Patient Voice, Power of Story believer. Tweets: Cancer, Clinical Trials, Volunteerism, Gender, #patientchat. Co-mod #gyncsm. CHEK2 previvor
Mike Thompson, MD, PhD, FASCO
@mtmdphd
#MedSky - VP Clinical Partnerships @TempusAI #PrecisionMedicine #mmsm #lymsm #CCC19 @COVID19nCCC @ASCO COI: coi.asco.org/share/RBB-TT6R…
EC Action Network
@ecactionnetwork
ECAN saves lives through public awareness of the link between heartburn and cancer and advocacy for better tools to fight EC! Esophageal Cancer Ends Here!
SGO
@sgo_org
The Society of Gynecologic Oncology
Bladder Cancer Advocacy Network
@bladdercancerus
Creating better todays and more tomorrows for bladder cancer patients and families since 2005.
Tigerlily Foundation
@tigerlilycares
Tigerlily Foundation’s mission is to educate, advocate for, empower and support young women before, during and after cancer.
Lung Cancer Connection
@lungcancerconne
Dedicated to raise awareness, increase patient & caregiver support, and advocate for the prevention, early detection, treatment & research of lung cancer.
Shirley Otis-Green
@sotisgreen
Passionate Palliative Care Consultant, Oncology Social Worker, Educator, Researcher & Advocate for Quality Interprofessional Care (she/her)
Dee Sparacio
@womenofteal
#ovca survivor; research advocate; author; co-moderator #gyncsm chat; COI: tinyurl.com/un7jhnfh Opinions are my own.
Allyson Whitney Fnd
@allyson4rare
AWF supports young adults with rare cancers by awarding life interrupted grants.YA's get entirely different cancer than other age groups! Help us join our team!
Dr. Jenna Reno
@jennarenophd
@RTI_Intl Researcher. #HealthComm #SciComm #HealthEquity #STEMinist Outdoor enthusiast ⛰🏃🏻♀️ Ruthless, unapologetic coffee drinker ☕️ Opinions are my own
Mark Lewis, MD, FASCO
@marklewismd
Director, GI Oncology, @Intermountain. Interests: neuroendocrine tumors, cancer syndromes, empathy (even had a Whipple myself). Tweets my own.
Shawn Carey
@shawncarey8
Fearless advocate for GBM and brain tumors. #fightformoe
Dr. Emily Drake
@ek_drake
#Postdoc @McGillMed • #CancerResearcher • Co-Founder #AYACSM • 🌎 #Speaker • Consultant • Knowledge Mobilization #Kmb • Views my own • Follow on Instagram!
Bend FC
@bendfctimbers
Premier boys and girls soccer club in Central Oregon
ParkinsonAssociation
@parkinsonassoc
Est. 2002 - Parkinson Association of the Carolinas (PAC) seeks to empower individuals and families impacted by Parkinson's disease.
Jeremy Adler, MD, MSc
@jeremyadlermd
Pediatric Crohn & Colitis-ologist, health services researcher. Believer in quality science & importance of prevention. All children deserve high quality care. 〽
GYN Cancer | #GYNCSM
@gyncsm
#gyncsm - a community for those impacted by gynecologic cancers Co-Founders: @womenofteal @btrfly12 Healthcare Moderators: @ShannonWestin @NitaKarnikLee
Rhiannon Evans
@drrhiannonevans
Lectures in Classics and Ancient History at La Trobe University. Co-hosts @RomePodcast.
IBC Research Fdn
@ibcresearch
Web-based, all volunteer non-profit working to improve the lives of those touched by inflammatory breast cancer (IBC) through the power of advocacy & action.
nwsarcoma
@nwsarcoma
No one should face sarcoma alone Providing hope, education, and financial support to PNW Sarcoma patients. bit.ly/NWSarcoma #DragonslayersUnite
IKCC Kidney Cancer
@ikccorg
The International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer.
#BTSM chat
@btsmchat
All things Brain Tumor Social Media. Follow here or bsky.app/profile/btsmch… . 1st ever Bsky chat: 3/30! Next X chat: being rescheduled
Guy Lipof - גיא
@project2program
Brain Cancer Care Partner, #BTSM | Solution Architecture, Oncology, Genomics | Chaotic neutral tweets are mine and don't represent my employer. 🇺🇲🇮🇱
Scott Haake, MD, PhD
@drscotthaake
Excited to learn more about kidney cancer, biomarkers, integrins, and ECM biology. Views expressed are my own, not any institution’s. RT/like not endorsement.
Twisted Pink
@twistedpinkorg
Mission: Provide hope and connection to people living with metastatic breast cancer by funding bold breakthroughs in research and awareness of the disease.
Dollar For
@dollarfor_
National nonprofit. We crush medical bills.
Action Kidney Cancer
@action4kc
Patients first & foremost: the only UK patient led, patient managed kidney cancer charity; supporting patients, carers and their families since 2006
MIB Agents Osteosarcoma Alliance
@agentsmib
MIB 'Making It Better' for Kids With Osteosarcoma through research, education, programs, & legislative action.
Dr. Kelly Shanahan
@stage4kelly
doctor, mother, woman LIVING with metastatic breast cancer. Grant reviewer. Conference goer. METAvivor board member. She/her. #NotDeadYet since 2013
McaWallace
@mcawallace
All who wander are not lost-avid global traveler. Cat lover, share this account w Ally cat. ❤️blues music. Deep fascination in the medical field, esp GI.
Emperors of Rome podcast
@romepodcast
Makers of Roman history podcasts. Now playing: Emperors of Rome and When in Rome.
KidneyCAN
@kidneycan
Our mission is to accelerate cures for #kidneycancer. We educate patients about clinical trials, advocate for research funding, and bring researchers together.
The NeuroCognitive Research Institute
@theneurocognit1
The NCRI is a nonprofit organization dedicated to improving health and well-being for patients with neurological diseases.
bluesky
@bluesky
🌐💬💙 From platforms to protocols. Join Bluesky: bsky.app/download
The Lincoln Project
@projectlincoln
"You cannot escape the responsibility of tomorrow by evading it today.” – Abraham Lincoln 🏴☠️ | Home of #TheBreakdown and LP Podcast
Cancer Final Girl
@cancerfinalgirl
3 time primary #cancer haver. The killer is inside the house & I'm still fighting. Currently battling #Astrocytoma (#braincancer). Be nice. #BTSM
Bask Health
@baskhealth
The Platform for Telehealth. Open APIs, E-prescribing, EMR, Pharmacy Fulfillment, and an Intake Builder. Built at enterprise scale for the everyday user.
My Health Story
@mhealthstory
Build, share and protect your health story. Helping people control their data to receive tailored care. Patient-founded by @soulacomau. In your App Store NOW.
ALK+ International
@alkpositiveint
Charity focused on funding & advocating for #research to improve the life expectancy of ALK+ #CancerPatients. #TogetherWeCan further ALK+ cancer research
Previvorship
@previvorship
@LeverhulmeTrust funded project investigating experiences of cancer genetic risk (#BRCA & #Lynchsyndrome) & social media. PI: @stefaniavicari @SocStudiesSheff
Cancer Canuck (Jason Manuge) 🇨🇦🦀💙
@cancercanuck
#StageIV #ColonCancer patient with mets to liver, spine, and legs. Advocate for #AYA cancer and patient inclusion. Not really a crab IRL. #AYACSM 🇨🇦 🦀💙
World of Women Wellness Warriors
@patientworldnet
Board-certified physician, author of Patient Empowerment 101, syndicated columnist, course creator. Physician on a Mission!
Toni Choueiri, MD
@drchoueiri
Senior Executive & Chief GU Cancers @DanaFarber; Prof Medicine @HarvardMed; 2021 Giants of Cancer Award; ⚽ lover; 🚲@PanMass, seen @msnbc @cnn @TODAYshow @GMA
Low Grade Glioma Registry
@gliomaregistry
Study run by Dr. Elizabeth Claus (@YaleSPH/@BWHNeurosurgery) to learn about the effects of low grade glioma tumors and their associated treatments on daily life
Megsie
@warriormegsie
Breast Cancer Survivor | Blogger | Advocate | Voice Over Actor | Cat Mom | BLM ✊🏾 | Mental Health Matters |Storyteller | Same handle on bsky! 💙