simonewalsh (@simonewalshrgn) 's Twitter Profile
simonewalsh

@simonewalshrgn

Chair and Programme Manager of Irish Research Nurses and Midwives Network

ID: 920911740421967873

calendar_today19-10-2017 07:17:23

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Diagnosis of a rare disease is not a destination, it’s the beginning. Julian G Barwell speaking with Alex and Chris McQuade on Fragile X syndrome and the journey travelled by the patient and family. UKCRF Network #crfconf24 Rare Diseases Ireland HealthResearchBoard

Diagnosis of a rare disease is not a destination, it’s the beginning. <a href="/JulianBarwell/">Julian G Barwell</a> speaking with Alex and Chris McQuade on Fragile X syndrome and the journey travelled by the patient and family. <a href="/NIHR_UKCRFN/">UKCRF Network</a> #crfconf24 <a href="/RareDiseasesIE/">Rare Diseases Ireland</a> <a href="/hrbireland/">HealthResearchBoard</a>