#Rp Sick Cells --- Sickle cell disease is the largest rare disease in the U.S., discovered 115 yrs ago & the most common genetic blood disorder IN THE WORLD. Yet, delays and lack of funding have prevented SCD from being effectively treated. #SCDAdvocates #CureSCD

Are we good with 57% on access to care for #SickleCell? 😔

With many new medications available and on the horizon to treat #sicklecelldisease, there is still decreased awareness and confusion as to where they may fit in. Here’s a brief thread summarizing these medications and treatments. #sicklecellawareness #sicklecellmatters 1/

Thanks for challenging me Sickle the Cycle! Two organizations, I'd love you to contribute to are: TackleSickleCell which supports patients and families impacted by SCD and @STARSCDCure which aims to CURE patients! #Now4SickleCell #sicklecellawarenessmonth

#Now4sicklecell #sicklecellawarenessmonth

Will you take the challenge? #Now4sicklecell #sicklecell

Can anyone help me find a job in #Gaming? I’m teaching myself how to code and until I get good enough, I’d love to get a job doing story/writing dialogue for a company like BioWare or Electronic Arts. I do have my BA in English and Creative Writing so I’d love any advice I can get!

I don’t care how many times you’ve read “How to be an Anti-racist” by Ibram X. Kendi. How do you treat your Black patients with Sickle Cell Disease?

I'm discussing “Parenting a child with Sickle Cell Disease ” with #iFightForSickleCell. Today, Jan 12 at 7:00 PM EST on @joinclubhouse. Join us! joinclubhouse.com/event/lP0KbO3m #SickleCell #30forsicklecell #BlackTwitter

I recently watched Infographics Show’s video titled “Most Painful Things A Human Can Experience #4” and to my surprise, a pleasant surprise that is, they mentioned #SickleCell disease. (I do not own the rights to this video)

A child with #SickleCellDisease is not eligible for Make-A-Wish America unless certain criteria are met For #cysticfibrosis a diagnosis alone is sufficient Both are life-threatening w/ significant impact on quality of life The difference is race(ism) Make-A-Wish America How do we change this?

I’ve been looking forward to this arriving. An entire textbook dedicated to #sicklecell. This is incredible, and I hope it finds its way into medical schools, nursing programs, and more.

YALL! The #SickleCell Registry bill (HB 3673) that I staffed PASSED the full house today on third reading with a 113 - 30 vote! Now the bill moves on to the Senate and prayerfully to the Governor’s Desk! 🙌🏾 #TXLege

I can’t bear to listen to my own voice but hopefully I said some important things! Also Twitterless Halimat is a superstar, rising MS3 at @UCMED_Diversity @UCHealthNews and ASH MMSAP awardee x2!

9 out of 10 strokes in kids with #sicklecell are preventable yet many children go unscreened and untreated ashclinicalnews.org/online-exclusi…

#WorldSickleCellDay #WorldSickleCellDay2021