sicklecell_alliance_tz (TSDA) Pushing Sickle cell disease agenda forward in Tanzania.#Vunja_Mduara Pima jua hali yako ya Siko Seli chukua hatua sahihi Sickle Cell Programme, MUHAS SickleInAfrica Wizara ya Afya Tanzania 🇹🇿 Ummy Mwalimu MP🇹🇿 Julie Makani deo matanda Arafa Salim Said

Book Launch by SCAF Nigeria: Sickle Cell Disease in Sub-Saharan Africa. Registration link us06web.zoom.us/meeting/regist…. REDAC Sickle Cell Disease Research Network Africa Baba Inusa Dr. Maria Berghs, @Nkechi Eunice Ndirangu-Mugo NIGERIA'S LIFELINE — HHI💉 Dr. K(Kanayo Nwankwo)

Have you signed up for the Sickle Cell Disease in Sub-Saharan Africa book launch yet? Click the link to sign up- bit.ly/SCDBookLaunch

SickleInAfrica members who are national coordinators of@ASH_hematology Consortium on Newborn Screening in Africa (CONSA) recently attended the CONSA annual meeting in Zambia. Dr Jonathan, Program Manager of our Clinical Coordinating Center, presented on behalf of SickleInAfrica.

New Publication: Consensus-driven target product profiles for curative sickle cell disease gene therapies. Download full article at sciencedirect.com/science/articl…. Congratulations to SickleInAfrica members who are authors on the paper. Julie Makani ASGCT

In a recent article in The Lancet, some SickleInAfrica members outline priorities for global sickle cell disease research: new therapeutic targets, gene therapy, sustainable funding, ethical & social issues etc. Article: thelancet.com/journals/lance… Nchangwi Syntia Oby Nnodu UCT Health Sciences

A number of SickleInAfrica members recently participated in the HEROES Sickle Cell Disease S)CD Master Class in Tanzania from July 19-21th. Representatives included Dr Mwashungi A Oby Nnodu Dr Hilda Tutuba, Prof Léon Tshilolo, Dr Vivian Paintsil agnes jonathan, Julie Makani

Three staff members from the Sickle Africa Data Coordinating Center, Victoria Nembaware, Valentina Essomba & Khuthala Mnika are attending the 65th McKusick course on Human & Mammalian Genetics &genomics. Many thanks to Wellcome Connecting Science & AfSHG for funding. Dr. khuthala mnika The Jackson Laboratory

A new publication authored by some SickleInAfrica members report on the the development of a customized next-generation sequencing panel for hydroxyurea pharmacogenomics. Full article: pubmed.ncbi.nlm.nih.gov/39026269/. Congrats to the team. Sianaeli Julie Makani ASH

L'Initiative Africaine des Maladies Rares (ARDI) et le Centre de Référence des Maladies Rares de l'Université de Kinshasa vous invitent à un webinaire programmé sur la #Drépanocytose en RDC. Orateur: Prof Léon Tshilolo-Co-Chair SickleInAfrica Steering Committee. REDAC Sickle Cell Disease Research Network Africa

We’ve established the largest and most comprehensive sickle cell disease longitudinal registry in Uganda, currently operating in 4 regional referral hospitals with more to come, to support data-driven research efforts in the area. This registry is already supporting several

A new publication led by the #SickleInAfrica Uganda site reports on the development of a sickle cell disease registry in Uganda & how it could be used to facilitate SCD research (Article: bmcmedinformdecismak.biomedcentral.com/articles/10.11…). Principal Investigator: Prof Sarah Kiguli Makerere University College of Health Sciences. NIH NHLBI

A recent publication led by Sianaeli provides an update on the activities of the SickleInAfrica Consortium including plans for four multi country studies on sickle cell disease. Congrats to all authors. Full text: thelancet.com/journals/lanha… The Lancet Haematology NIH NHLBI #sicklecell

Julie Makani, Siana Nkya, Daima Burkina, and Obi Nnodu describes the efforts of SickleInAfrica NIH NHLBI annual #sicklecell meeting

September is #SickleCellAwarenessMonth! Let's unite to raise awareness, support those living with SCD, and advocate for better care. Together, we can ARISE above the challenges and bring hope to the Sickle Cell community. 💪🏽❤️ #ARISEForSCD #SickleCellStrong

Well done Dr Kevin Esoh and Dr Arthemon Nguweneza. Thank you for your contributions to the SickleInAfrica consortium

Congrats to Dr Gwendolyn Kandawasvika (MD, PhD), on her graduation from UCT with an MPhil in Paediatric Neurology. Dr Kandawasvika is co-Principal Investigator of the SickleInAfrica site in Zimbabwe. Dr Kandawasvika, we wish you the very best #UCTGrad2024 Patience Kuona

Dr. Ruth Namazzi; " proper Transitioning from Paediatric care to Adult Care helps in comprehensive care for sickle cell disease". Adult warriors shouldn't lose touch with their previous clinics for easy referencing/histology. Ministry of Health- Uganda NHLDS The Joint Clinical Research Centre

Ballet the silence, Shine the Light on Sickle Cell Anemia! Special thanks to The Dance Studio 🇺🇬 ,together we shall combat sickle cell disease Ministry of Health- Uganda Alexandra Power-Hays, MD KCB BANK UGANDA Kingsley children's medical centre SickleInAfrica Raising Hope International Friends Simon Kaheru Walt Disney World Andrew Kyamagero Omuntu Wawansi.

Registration date has been extended until tomorrow 12 September, 5PM EST