🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Skin Indentation is a symptom of EDS/Long Covid/Pots/ME. #LongCovid #EDS #Pots #pwME

Diagnosed with FND years ago. To now find out my IFNa is 10x the highest control and greater than all patients in our Amatica Health cohort. Maybe the FND diagnosis was perhaps… incorrect 🤔

England is a great nation. A great people. Let’s cherish our past, not forget it. Happy St George’s Day! 🏴󠁧󠁢󠁥󠁮󠁧󠁿

“I posed these questions to the doctors and scientists.. Most agree that #LongCovid patients experience cognitive issues and other neurological symptoms likely fueled by brain inflammation.”

Have you taken a JAK STAT inhibitor for Long COVID or ME? I'm working on a story of these drugs (baricitinib, abrocitinib, upadacitinib, and others) which are currently being investigated in clinical trials for the disease. Reach me at: [email protected] or dm for signal!

On DNA Day, we recognize the importance of genetics in understanding health conditions such as Hereditary alpha-tryptasemia \(HαT\). It’s a day to learn, support, and advance our knowledge. Explore our resources for insights into HαT: buff.ly/1nCsAVl

📢 If you're planning a paper on #POTS, #MECFS and #LongCOVID, consider submitting it to the new Special Issue that I am guest-editing for the Journal of Clinical Medicine. 🩺 mdpi.com/journal/jcm/sp…

x.com/i/article/1915…

Shaney Wright I dunno, but i’ve been taking 400mg day and night just hoping it’ll lower my chances of long covid (if the virus gets me again) - can confirm, it helps with the air hunger.

Everyone in my comments:

Good news for #MCAS patients (of which there are many in #LongCovid and #MECFS groups). Researchers in Bonn have been able to turn off the MRGPRX2 receptor in mice. Important news!! And no, MCAS is not just an allergy but a complex immunological disorder t-online.de/gesundheit/akt…

1) Another interesting study Gemma Samms and Chris Ponting. They looked closely at data on ME/CFS in the UK biobank and found that some of these may not be very reliable.

Hyperbaric oxygen therapy (HBOT) does not seem to cut it for #LongCOVID "10 HBOT sessions did not show more short-term benefits than placebo for long covid patients." Other studies are underway. pmc.ncbi.nlm.nih.gov/articles/PMC11…

Our analysis suggests Long COVID, inc. COVID-triggered ME/CFS, now ranks among the most burdensome diseases in the US — ahead of stroke, diabetes & COPD It’s a rough estimate, but the message is clear: this crisis can’t be ignored. We need to scale research, funding & support

Look, there's an elephant in the room. #LongCovid

Anyone know how to urgently get a home sleep study done in London this weekend? I’m currently in hospital, but all the departments I need are shut until Tuesday. I’m waking up every 40 seconds — possibly with central apnea. Thank you!!!

Not a fan of many of the names for viral-onset conditions. They don’t sufficiently reflect underlying pathophysiology. POTS, for example, just reflects the fact that people with it have a high heart rate on standing. Chronic Neuroimmunovascular Disease would be more appropriate.