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On Usher Syndrome Awareness Day (18th) help us raise awareness for our underserved community and patient led organizations like Save Sight Now, who help fund vision saving research for those who have already lost their hearing and balance due to Usher type1b. #Ushersyndrome

Join Us! Thursday, December 2nd, 5pm PST for our annual virtual fundraiser - Gift of Vision. Help us halt childhood blindness related to #UsherSyndrome. All proceeds benefit Save Sight Now and the Foundation Fighting Blindness #WorldSightDay Tickets on sale now: one.bidpal.net/giftofvision/w…

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Janssen is a proud sponsor of Save Sight Now’s Annual Gift of Vision virtual event, an event dedicated to funding research to halt vision loss due to Usher syndrome type 1B, an ultra-rare inherited retinal diseases. Learn more and purchase tickets here: bit.ly/3HdqRlQ

With help from two #USH1B Swiss families, we launched Save Sight Now Europe. Growing our reach internationally gets us one step closer to funding and accelerating treatments for #Ushersyndrome as well as connects and strengthens our USH1B community. #parentled #fundingresearch

With help from Foundation Fighting Blindness and savesightnoweurope we now have the ability to collect tax exempt donations from the #UK #Switzerland and #Canada - Visit savesightnow.org to learn more and donate

Who's ready to have fun and support a great cause?✋Our virtual #fundraiser Gift of Vision is December 1st. Register Here 👉 one.bidpal.net/giftofvision/w… #UsherSyndrome

Design is a creative problem solving process that can be applied to any challenge: Learn how how Industrial Designers are helping to 'Save Sight Now' shar.es/af6BEp #DesignThinking #Nonprofit #Ushersyndrome

Word is spreading! Funding the successful creation of an #USH1B NHP provides a vital platform for testing therapies and demonstrates this rare disease community is organized, and here to support #UsherSyndrome researchers! Thanks OHSU News news.ohsu.edu/2023/02/13/ohs…

Thank you Lezla GoodenTV for sharing our story on CBS News Bay Area . Very Grateful for the opportunity to talk about Save Sight Now and the work we are doing to cure childhood blindness associated with #UsherSyndrome cbsnews.com/sanfrancisco/n…