Satvinder Kaur (@satvsonia) 's Twitter Profile
Satvinder Kaur

@satvsonia

Passion to bring the change in system, ALS care and Support India founder, Science/IT professional by education while majorly medical by experience.

ID: 1153281922476466176

linkhttp://alslifemanagement.weebly.com calendar_today22-07-2019 12:33:32

77 Tweet

67 Followers

61 Following

Arjun Singh (@arjunsing) 's Twitter Profile Photo

DFS Divyang Empowerment Ministry of Social Justice & Empowerment, GOI this is breach of #FundamentalRights of #Equality to #PwDs by selectively offering these provisions only to #PwDs of #government #dept and denying the same to PwDs of #govt run #PSU #insurance companies, #unfair #unjust PMO India President of India

<a href="/DFS_India/">DFS</a> <a href="/socialpwds/">Divyang Empowerment</a> <a href="/MSJEGOI/">Ministry of Social Justice & Empowerment, GOI</a> this is breach of #FundamentalRights of #Equality to #PwDs by selectively offering these provisions only to #PwDs of #government #dept and denying the same to PwDs of #govt run #PSU #insurance companies, #unfair #unjust <a href="/PMOIndia/">PMO India</a> <a href="/rashtrapatibhvn/">President of India</a>
Vineeth Jaison (@jaisonvineeth) 's Twitter Profile Photo

It was fantastic to meet Gourie-Devi Mam, Roop Gursahani Dr. Joy Desai, Dr. Mohammad Faruq CSIR-IGIB as well as patient support group founder Satvinder Kaur Very exciting discussions. Looking forward to the #als patient advocacy meeting #iancon2022 #AOCNIANCON2022 Ammar Al-Chalabi

ALS Care & Support India (@alscasindia) 's Twitter Profile Photo

Thank you #iancon2022 for giving us the privilege of being the voice of the Indian ALS community at your esteemed forum. рдЖрд╢рд╛ рд╣реИ рднрд╡рд┐рд╖реНрдп рдореЗрдВ рдРрд╕реЗ рд╣реА рдиреНрдпреВрд░реЙрдиреНрд╕ (рддрдВрддреНрд░рд┐рдХрд╛рдУрдВ) рдХреА рдЖрд╡рд╛рдЬрд╝реЗрдВ рдЧреВрдВрдЬрддреА рд░рд╣реЗрдВрдЧреА рдФрд░ рд╣рдо рд╕рдм рдорд┐рд▓рдХрд░ рдПрдХ рджрд┐рди ALS рдореБрдХреНрдд рднрд╛рд░рдд рдХреЗ рдирд┐рд░реНрдорд╛рдг рдореЗрдВ рдЬрд░реВрд░ рд╕рдлрд▓ рд╣реЛрдВрдЧреЗред #aocniancon2022

Thank you #iancon2022 for giving us the privilege of being the voice of the Indian ALS community at your esteemed forum. рдЖрд╢рд╛ рд╣реИ рднрд╡рд┐рд╖реНрдп рдореЗрдВ рдРрд╕реЗ рд╣реА рдиреНрдпреВрд░реЙрдиреНрд╕ (рддрдВрддреНрд░рд┐рдХрд╛рдУрдВ) рдХреА рдЖрд╡рд╛рдЬрд╝реЗрдВ рдЧреВрдВрдЬрддреА рд░рд╣реЗрдВрдЧреА рдФрд░ рд╣рдо рд╕рдм рдорд┐рд▓рдХрд░ рдПрдХ рджрд┐рди ALS рдореБрдХреНрдд рднрд╛рд░рдд рдХреЗ рдирд┐рд░реНрдорд╛рдг рдореЗрдВ рдЬрд░реВрд░ рд╕рдлрд▓ рд╣реЛрдВрдЧреЗред
#aocniancon2022
Satvinder Kaur (@satvsonia) 's Twitter Profile Photo

ALS still fighting to get its place in rare disease policy despite so many efforts as PALS life can be extended by many years with such support. But the policy implementation at ground level must happen for existing rare disease in policy #alscareandsupport #alscas #PMOIndia

Satvinder Kaur (@satvsonia) 's Twitter Profile Photo

We met courageous Rajeev, loving Seema and their family last week again, when we visited Mumbai after a year gap. So positive and inspiring man. Kudos to his spirit. God bless.

ALS Care & Support India (@alscasindia) 's Twitter Profile Photo

We welcome more people to join our cause and become a part of our volunteer team. If you have a passion for helping others and making a positive difference, we would love to have you on board with us. To learn more, please scan the QR code or visit the link in our bio. Thank you!

Sandra Abrevaya (@sabrevaya) 's Twitter Profile Photo

Today I put our groceries on our credit card because we have nothing left in savings or checking. 24-7 caregiving bankrupts families across the country. I am not sharing this for help, we will find a way through it. I just want the world to understand what ALS is. #EndALS

ALS Care & Support India (@alscasindia) 's Twitter Profile Photo

Let us stay focused on our mission, remain steadfast in the pursuit of excellence, and always doing the right thing. Together, we can achieve anything by combining faith and vision, hard work, determination, and dedication. #ALScasindia #alsindia #IamALS #ALSawareness

Let us stay focused on our mission, remain steadfast in the pursuit of excellence, and always doing the right thing. Together, we can achieve anything by combining faith and vision, hard work, determination, and dedication.

#ALScasindia #alsindia #IamALS #ALSawareness
Vijaya Bharati (@vijayatejasvi) 's Twitter Profile Photo

Office of KTR Election Commission of India Telangana CMO Narendra Modi My father he is suffering from Amyotrophic lateral sclerosis, he is on ventilator support at home, but he is mentally active. He wants to cast his vote online. Could you help! #vote #TelanganaElections2023 #TelanganaElections

<a href="/KTRoffice/">Office of KTR</a> <a href="/ECISVEEP/">Election Commission of India</a> <a href="/TelanganaCMO/">Telangana CMO</a> <a href="/narendramodi/">Narendra Modi</a> 
My father he is suffering from Amyotrophic lateral sclerosis, he is on ventilator support at home, but he is mentally active. He wants to cast his vote online. Could you help!
#vote #TelanganaElections2023 #TelanganaElections
ALS Care & Support India (@alscasindia) 's Twitter Profile Photo

On 3rd December, the World Disability Day, we shine a spotlight on the challenges faced by individuals battling (ALS), a Motor Neuron Disease (MND). A progressive neuro-degenerative illness, it leads to 100% immobility and the even snatches away ability to communicate.

On 3rd December, the World Disability Day, we shine a spotlight on the challenges faced by individuals battling (ALS), a Motor Neuron Disease (MND). A progressive neuro-degenerative illness, it leads to 100% immobility and the even snatches away ability to communicate.