satish (@satisht24) 's Twitter Profile
satish

@satisht24

#SpinalMuscularAtrophy - Genetic rare disorder kills SMA kids day by day,there is medicine #Risdiplam in
in India, Can not afford the cost, Pls save my SMA Son

ID: 883249917069713409

calendar_today07-07-2017 09:02:45

4,4K Tweet

333 Followers

18 Following

Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ (@curesmaindia) 's Twitter Profile Photo

#SMAawarenessMonth Day 14: Stairs are no longer a barrier! Stair-climbing wheelchairs are revolutionizing accessibility, empowering #SMArtWarriors like Debosmita Ghosh to conquer previously inaccessible spaces! #SMA #BattleAgainstSMA #AccessibilitySolutions #InclusiveDesign

#SMAawarenessMonth
Day 14: Stairs are no longer a barrier! Stair-climbing wheelchairs are revolutionizing accessibility, empowering #SMArtWarriors like Debosmita Ghosh to conquer previously inaccessible spaces!  #SMA #BattleAgainstSMA #AccessibilitySolutions #InclusiveDesign
Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ (@curesmaindia) 's Twitter Profile Photo

Healthcare professionals! Join the Clinical Care Symposium at #SMArtCon2024 to discuss the latest #SMA management strategies, standards of care & innovative treatments. Engage with experts, share complex cases & enhance patient outcomes. Register at curesmaindiasmartcon.com

Healthcare professionals! Join the Clinical Care Symposium at #SMArtCon2024 to discuss the latest #SMA management strategies, standards of care & innovative treatments. Engage with experts, share complex cases & enhance patient outcomes. Register at curesmaindiasmartcon.com
Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ (@curesmaindia) 's Twitter Profile Photo

#SMAawarenessMonth Day 17: Discover the healing power of aquatherapy for #SMA ! Water-based therapy can Improve mobility & strength, Enhance flexibility & range of motion, Boost cardiovascular health & Reduce muscle spasms & pain! Amazing progress in #SMArtWarriors like Anfal!

Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ (@curesmaindia) 's Twitter Profile Photo

#SMAawarenessMonth Day 18: Meet Divyesh, a 5yr old #SMArtWarrior from Chennai! Despite single-parent struggles, he's receiving @SPINRAZA treatment! With the medical team and Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ support he is showing promising improvements! Let's support his hopeful future! #SMA

#SMAawarenessMonth
Day 18: Meet Divyesh, a 5yr old #SMArtWarrior from Chennai! Despite single-parent struggles, he's receiving @SPINRAZA treatment!  With the medical team and <a href="/curesmaindia/">Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ</a> support he is showing promising improvements! Let's support his hopeful future! #SMA
Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ (@curesmaindia) 's Twitter Profile Photo

#SMAawarenessMonth Day 19: Meet Al Mira & Al Faiz in school with their peers! Inclusive education empowers children with #SMA to reach their full potential. Let's break down barriers & create a supportive community where EVERY child thrives! #InclusiveEducation #BattleAgainstSMA

#SMAawarenessMonth
Day 19: Meet Al Mira &amp; Al Faiz  in school with their peers! Inclusive education empowers children with #SMA to reach their full potential. Let's break down barriers &amp; create a supportive community where EVERY child thrives! #InclusiveEducation #BattleAgainstSMA
Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ (@curesmaindia) 's Twitter Profile Photo

#SMAawarenessMonth Day 20: Empowering #SMA affected at work: Provide accessible facilities, flexible arrangements, disability awareness & equal opportunities. Inspired by #SMArtwarriors like Dr. Archana Vijayan, conquering dreams while battling #SMA! #Inclusion #BattleAgainstSMA

#SMAawarenessMonth
Day 20: Empowering #SMA affected at work: Provide accessible facilities, flexible arrangements, disability awareness &amp; equal opportunities. Inspired by #SMArtwarriors like Dr. Archana Vijayan, conquering dreams while battling #SMA! #Inclusion
#BattleAgainstSMA
Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ (@curesmaindia) 's Twitter Profile Photo

Exciting news! #SmartCon2024 has been accredited by the Delhi Medical Council as an approved CME credit program for medical students! Enhance your knowledge & skills with us! For more details on the event, check: curesmaindiasmartcon.com Roche Pharma India Novartis India Impact Guru

Exciting news! #SmartCon2024 has been accredited by the Delhi Medical Council as an approved CME credit program for medical students! Enhance your knowledge &amp; skills with us! For more details on the event, check: curesmaindiasmartcon.com
<a href="/rocheindia/">Roche Pharma India</a> <a href="/NovartisIndia/">Novartis India</a> <a href="/ImpactGuru/">Impact Guru</a>
Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ (@curesmaindia) 's Twitter Profile Photo

SMArtCon2024: A Resounding Success! ๐ŸŽ‰ Thrilled to announce that our event exceeded expectations! Dynamic discussions, empowering sessions & unforgettable connections made. Heartfelt thanks to esteemed guests & panelists ๐Ÿ™ Let's keep the momentum going ๐Ÿ’ช & make a difference !

SMArtCon2024: A Resounding Success! ๐ŸŽ‰
Thrilled to announce that our event exceeded expectations! Dynamic discussions, empowering sessions &amp; unforgettable connections made. Heartfelt thanks to esteemed guests &amp; panelists ๐Ÿ™
Let's keep the momentum going ๐Ÿ’ช &amp; make a difference !
Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ (@curesmaindia) 's Twitter Profile Photo

HEALTHCARE FOR ALL! Let's celebrate our right to healthcare and request #UrgentTreatmentAccess4SMA in India! With collective action, we can create a brighter future Ministry of Health President of India #right2life #right2health #curesmaindia #battleagainstSMA #acchedinkabayenge

HEALTHCARE FOR ALL!
Let's celebrate our right to healthcare and request #UrgentTreatmentAccess4SMA in India! With collective action, we can create a brighter future
<a href="/MoHFW_INDIA/">Ministry of Health</a>
<a href="/rashtrapatibhvn/">President of India</a>

#right2life #right2health  #curesmaindia #battleagainstSMA #acchedinkabayenge
Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ (@curesmaindia) 's Twitter Profile Photo

On this Rare Disease Day, we honor the strength, resilience, and courage of all those living with Spinal Muscular Atrophy (SMA). Your journey is one of extraordinary determination, and your perseverance inspires hope and progress in the fight against rare diseases.

On this Rare Disease Day, we honor the strength, resilience, and courage of all those living with Spinal Muscular Atrophy (SMA). Your journey is one of extraordinary determination, and your perseverance inspires hope and progress in the fight against rare diseases.
Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ (@curesmaindia) 's Twitter Profile Photo

You are not aloneโ€”there is a community standing with you, advocating for better treatments, greater awareness, and a future where SMA no longer limits dreams. Together, we believe in breakthroughs, in support, and in the power of never giving up.

Tata Institute for Genetics and Society, India (@tigs_india) 's Twitter Profile Photo

This research summit is being organised in collaboration with National Centre for Biological Sciences Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ and IIT Kanpur. If you are someone who is working on Rare Diseases in general and #SMA in particular, do consider applying. Watch this space for more details!

Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ (@curesmaindia) 's Twitter Profile Photo

Heartfelt thanks to Kerala Government | เด•เต‡เดฐเดณ เดธเตผเด•เตเด•เดพเตผ for pioneering SMA treatment in India! A pre-symptomatic baby received #Risdiplam medicine at just 2 weeks old, marking a historic milestone.Kudos to Dept. of Health & FW, Govt. of Kerala for their unwavering support to patients with SMA! #SMAawareness #KeralaHealthcare

Heartfelt thanks to <a href="/iprdkerala/">Kerala Government | เด•เต‡เดฐเดณ เดธเตผเด•เตเด•เดพเตผ</a> for pioneering SMA treatment in India! A pre-symptomatic baby received #Risdiplam medicine at just 2 weeks old, marking a historic milestone.Kudos to <a href="/KeralaHealth/">Dept. of Health & FW, Govt. of Kerala</a> for their unwavering support to patients with SMA! #SMAawareness #KeralaHealthcare
satish (@satisht24) 's Twitter Profile Photo

Letโ€™s create awareness to prevent SMAโ€ฆ join us in #RunforSMA to create awareness , it will help to prevention of the disease , so we can avoid future generation suffering #Runforkids Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ Roche Novartis Biogen

Letโ€™s create awareness to prevent SMAโ€ฆ join us in #RunforSMA to create awareness , it will help to prevention of the disease , so we can avoid future generation suffering  #Runforkids <a href="/curesmaindia/">Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ</a> <a href="/Roche/">Roche</a> <a href="/Novartis/">Novartis</a> <a href="/biogen/">Biogen</a>
Lokesh Nara (@naralokesh) 's Twitter Profile Photo

SMA Type-1 is a rare and devastating genetic condition that weakens a childโ€™s muscles and slowly takes away the ability to move, breathe and live normally. Yet little Punarvika from Kurnool, AP, is a true braveheart - fighting this battle with extraordinary courage. Her

satish (@satisht24) 's Twitter Profile Photo

Respected sir Lokesh Nara thanks a lot for your support to SMA kid #Punarvika,more kids & adults suffering from SMA in AP, you understand challenging life of #SMAkids, kindly come up with solution like Kerala model to allocate some funds for treatment to win #SMABattle,Thank you

Srilakshmi Nalam (@srilakshminalam) 's Twitter Profile Photo

Lokesh Nara Cure SMA Foundation of India ๐Ÿ‡ฎ๐Ÿ‡ณ thanks Lokesh Nara garu for timely support helping save Punarvika from life-threatening #SMA . Many kids & adults suffering from SMA in AP waiting with hope. The Kerala model for SMA care can be adopted to save many more previous lives. #SaveSMALives #APCares