Sasha Damouni Ellis (@sashadamouni) 's Twitter Profile
Sasha Damouni Ellis

@sashadamouni

Founding Partner, Damouni Group. Formerly at Vir Biotech, Marinus Pharma & Bayer. Healthcare Bloomberg reporter in a previous life. Opinions are my own.

ID: 26141091

linkhttp://www.damounigroup.com calendar_today24-03-2009 01:10:30

2,2K Tweet

3,3K Followers

695 Following

Sasha Damouni Ellis (@sashadamouni) 's Twitter Profile Photo

Philadelphia landmarks light up this evening for #RareDiseaseDay2021 thanks to Marinus @GregoryFCA. Other locations include: One and Two Liberty Place, Lincoln Financial Field, Boathouse Row, Pennsylvania Convention Center, Wells Fargo Center, Subaru of America

Marinus (@marinuspharma) 's Twitter Profile Photo

We're marking #WorldCDKL5Day by celebrating the #CDD community of children, families, and advocates who drive our mission forward each and every day. Learn more about CDD and the ways you can get involved: cdkl5.com/cdkl5-resource… #CDDAwarenessMonth #CDKL5Forward #CDD

We're marking #WorldCDKL5Day by celebrating the #CDD community of children, families, and advocates who drive our mission forward each and every day. 

Learn more about CDD and the ways you can get involved: cdkl5.com/cdkl5-resource…

#CDDAwarenessMonth #CDKL5Forward #CDD
Sasha Damouni Ellis (@sashadamouni) 's Twitter Profile Photo

Feels like a lifetime, but just four years after leaving the Bloomberg newsroom, I now have my own B-Unit and access to the terminal. Gone from an employee to a client. Now, if only I could remember all the functions! Bloomberg Bloomberg

Feels like a lifetime, but just four years after leaving the Bloomberg newsroom, I now have my own B-Unit and access to the terminal. Gone from an employee to a client. Now, if only I could remember all the functions! <a href="/business/">Bloomberg</a> <a href="/Bloomberg/">Bloomberg</a>
Marinus (@marinuspharma) 's Twitter Profile Photo

Furthering our commitment to advancing innovative treatment options for patients with seizure disorders, Marinus is thrilled to announce its exclusive collaboration with Orion Pharma for European commercialization of investigational ganaxolone. businesswire.com/news/home/2021…

Furthering our commitment to advancing innovative treatment options for patients with seizure disorders, Marinus is thrilled to announce its exclusive collaboration with <a href="/OrionPharma/">Orion Pharma</a> for European commercialization of investigational ganaxolone. 

businesswire.com/news/home/2021…
Sasha Damouni Ellis (@sashadamouni) 's Twitter Profile Photo

Proud of all the teamwork behind the scenes to be able to announce these achievements! @MRNS After struggling with its sole drug for years, Marinus rides positive data to a commercialization deal in Europe - endpts.com/after-struggli…

Sasha Damouni Ellis (@sashadamouni) 's Twitter Profile Photo

With all the attributes of a strong biotech leader, comprising of an innovative nature, empathy & patient-centricity, we're proud to have our CEO ranked among these inspiring executives $MRNS Top 25 Biotech CEOs of 2022 | The Healthcare Technology Report thehealthcaretechnologyreport.com/the-top-25-bio…

The Rare Disease Company Coalition (@rarecoalition) 's Twitter Profile Photo

Thank you Tracy Beth Høeg, MD, PhD for continuing to address challenges in #raredisease drug development so that companies dedicated to rare diseases can bring scientific #innovation to patients with urgent medical needs. #OneRareVoice

Marinus (@marinuspharma) 's Twitter Profile Photo

Today, the FDA approved our treatment for seizures associated with #CDKL5 deficiency disorder (CDD) in patients two years of age and older, marking the first approved treatment indicated specifically for seizures in this rare form of epilepsy. Learn more: bit.ly/3CV1ljH

Today, the FDA approved our treatment for seizures associated with #CDKL5 deficiency disorder (CDD) in patients two years of age and older, marking the first approved treatment indicated specifically for seizures in this rare form of epilepsy. Learn more: bit.ly/3CV1ljH
Sasha Damouni Ellis (@sashadamouni) 's Twitter Profile Photo

I’m so honored to be part of an FDA approval of our first treatment. It has been amazing to work with the patient communities, the advocacy groups, our regulatory, clinical, scientific, legal and all the other team Marinus 🎉

CDKL5 - IFCR (@cdkl5_ifcr) 's Twitter Profile Photo

We are thrilled to share this news with our community! Successfully completing a clinical trial in a rare disease like ours is an incredible feat, and an announcement about the 1st ever targeted seizure drug to treat #CDKL5 Deficiency Disorder is certainly something to celebrate!

Marinus (@marinuspharma) 's Twitter Profile Photo

Our CEO, Scott Braunstein, talks about the importance of today’s FDA approval. Our treatment for seizures associated with #CDKL5 deficiency disorder (CDD) is now FDA approved in patients two years of age and older. Read more: bit.ly/3CV1ljH

Our CEO, Scott Braunstein, talks about the importance of today’s FDA approval. Our treatment for seizures associated with #CDKL5 deficiency disorder (CDD) is now FDA approved in patients two years of age and older. Read more: bit.ly/3CV1ljH
Marinus (@marinuspharma) 's Twitter Profile Photo

We’re excited to share The Lancet Neurology has published pivotal Phase 3 results for our investigational medicine for the treatment of seizures associated with #CDKL5 deficiency disorder (CDD). bit.ly/3vp4C7M

We’re excited to share <a href="/TheLancetNeuro/">The Lancet Neurology</a> has published pivotal Phase 3 results for our investigational medicine for the treatment of seizures associated with #CDKL5 deficiency disorder (CDD). bit.ly/3vp4C7M
Endpoints News (@endpts) 's Twitter Profile Photo

When Marinus Pharmaceuticals completed its turnaround and finally pushed its sole drug across the FDA finish line, the company noted it would sell the priority review voucher it received for its efforts. On Thursday, Marinus revealed the buyer. endpts.com/novo-nordisk-n…

Sasha Damouni Ellis (@sashadamouni) 's Twitter Profile Photo

I am delighted to announce the launch of Damouni Group, a force in strategic communications, corporate affairs and content creation. Thank you to all who have supported me on this journey! businesswire.com/news/home/2024…

Adam Feuerstein ✡️ (@adamfeuerstein) 's Twitter Profile Photo

To put these new $AKRO data into context, patients with cirrhosis due to MASH have a severe form of the disease with few treatment options outside of a liver transplant. Once MASH progresses to cirrhosis, median survival is about five years, three times shorter than for

John Carroll (@johncendpts) 's Twitter Profile Photo

Interesting deal with GSK paying $1.2b upfront to license a mid-stage MASH drug from Sophie Kornowski's Boston Pharmaceuticals. Quite an endorsement of the Ph2 data in hand. Sophie was John Reed's BD chief at Roche back in the day. Clearly, she learned a lot. Elizabeth Cairns has

David Sinclair (@davidasinclair) 's Twitter Profile Photo

Announcing “K-Dense”, a multi-agent AI scientist that has already made a new discovery in aging research 🧵 Ashwin Gopinath & @BioStateAI tinyurl.com/3dmraa5k

Announcing “K-Dense”, a multi-agent AI scientist that has already made a new discovery in aging research 🧵 <a href="/ashwingop/">Ashwin Gopinath</a> &amp; @BioStateAI
tinyurl.com/3dmraa5k