Protein recommendations in adults with #PKU - Where are we at and where to next? Our narrative review in Clinical Nutrition authors.elsevier.com/a/1cCh9xUE3YrQR

Do you have #Phenylketonuria #PKU? (adults in the UK) We are investigating your experience of diet in PKU - please consider taking part in survey! surveymonkey.co.uk/r/PKUsurvey If you have PKU, or are a health professional working in PKU please re-tweet to increase patient voice.

Ahead of #AHPsDay, we spoke with research dietitian Sarah Firman about her role. She told us how her National Institute for Health and Care Research Pre-Doctoral Fellowship is helping her to research the rare disease phenylketonuria. #AdaLovelaceDay21 #YourPathInResearch bit.ly/ResearchDietit…

People with #Phenylketonuria should restrict dietary protein to avoid #phenylalanine then supplement with #PheFree protein What is the the impact on protein status in #PKU? Our scoping review of 70 studies by Sarah Firman Oliver Witard Majella O'Keeffe PhD RD 👉🏽doi.org/10.1016/j.clnu…

Adults w #pku 1. Massive thank you to ppl who contributed 2. Read this brilliant paper on survey results re #pku diet, knowledge & perceptions of diet Well done Sarah Firman (dietitian, researcher) & Kevin Whelan 👏👏👏 VERY interesting - click on link onlinelibrary.wiley.com/doi/10.1111/jh…

Podcast on how knowledge & attitudes to diet associate with diet adherence in #PKU Podcast by awesome Sarah Firman on our research with Dr Radha Ramachandran (great interview James Nurse The Journal of Inherited Metabolic Disease) Podcast👉🏽on.soundcloud.com/nTUD Paper @JHNDEditor👉🏽onlinelibrary.wiley.com/doi/10.1111/jh…

Great to discuss our research on the associations of knowledge, perceptions and dietary behaviours in adults with #PKU. Thanks James Nurse The Journal of Inherited Metabolic Disease and @JHNDEditor for having me on the #podcast

A fantastic piece of work looking at adults with PKU and exploring attitudes towards and knowledge of the diet. Collated just prior to sapropterin introduction this will form an interesting baseline too. #pku #phenylketonuria

Our crossover podcast on #pku in adults with @JHNDEditor feat. Sarah Firman is now even easier to listen to. Apple: podcasts.apple.com/gb/podcast/die… Spotify: open.spotify.com/episode/1bxSMj… Castbox: castbox.fm/channel/JHND-P… Kevin Whelan

Listen to the podcast regarding our paper on #PKU and #Diet with James Nurse The Journal of Inherited Metabolic Disease @JHNDEditor interviewing Sarah Firman Details👇🏽

It is #RareDiseaseDay. We are researching diet management of #PKU #PhenylKetonUria Here we describe how people with PKU manage their diet👉🏽 onlinelibrary.wiley.com/doi/10.1111/jh… Here we describe all studies ever done on protein status and body composition in PKU👉🏽 doi.org/10.1016/j.clnu…