Santhera
@santhera
#Santhera is passionate about improving the lives of patients suffering from a rare disease. #Duchenne #DMD #neuromuscular #theirfutureourfocus #raredisease
ID: 56680903
http://www.santhera.com 14-07-2009 12:31:48
435 Tweet
764 Followers
229 Following
kiraqa
@kiraqa
I am a Mom to 4 amazing kids. One of them, Connor, who is 15, has Duchenne Muscular Dystrophy and Autism.
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
LOO xx
@licklelou
#cureDMD , help find a cure, save my son and thousands of others living with Duchenne Muscular Dystrophy xxx
Jared Aronson
@madhousetees
T-shirt designer and artist, that won't let living with Duchenne Muscular Dystrophy stand in my way. I believe that if you are laughing you are living!
Chris Berwick
@chris_berwick
Living with #Duchenne Muscular Dystrophy
CureDuchenne
@cureduchenne
We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
Michael Gilman
@michael_gilman
Scientist, entrepreneur, ex-biopharm exec, former FM radio jock, lifelong hockey fan, aspiring guitar player, #immigrant. CEO @ArrakisTx. Just @gilman on...
Antish Rupear
@antish_lfc
34 yr/o LFC fan.. Duchenne Muscular Dystrophy Warrior #YNWA #LFC
Parent Project Muscular Dystrophy (PPMD)
@parentprojectmd
Let's advance the research evolution. #EndDuchenne
Muscular Dystrophy Association
@mdaorg
MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Chad Studebaker
@c_r_stud
✝️Father of 2 great sons: Noah & Jacob. Married my Best Friend, Tracy. Loving life. Fighting 2 Cure Duchenne Muscular Dystrophy. Huge Ohio State Fan. ⭕️🙌🏻🌴⭕️
National Organization for Rare Disorders (NORD)
@rarediseases
National Organization for Rare Disorders (#NORD) is the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay.
Adam Feuerstein ✡️
@adamfeuerstein
Biotech reporter @statnews. Dog ❤️er. Polk Award winner. #COYS. Said one analyst: The likes of Adam Feuerstein attack viciously. On Signal: stataf.54
John Carroll
@johncendpts
47 yrs before the mast. Invented FierceBiotech, founded Endpoints News w/ 230,000 subs. Devoting time to the big showdown with Merkel cell carcinoma . We'll see
Lesley - FPL ⚽️
@weggster
Managed to offend Fess Hole. My laugh triggers fire alarm systems. Music junkie. Gig addict. Incompetent Fantasy Football Manager. Potty mouth. #FPL
Time4Duchenne
@time4duchenne
Strijd mee tegen de ziekte van Duchenne en sponsor ons team!
Etac4Duchenne
@etac4duchenne
Dance for Duchenne
@danceduchenne
Dance for Duchenne | Jaarlijks benefiet muziek festival | Voor spierziekte Duchenne | DJ's | Muzikanten | We can dance, they can't, so let's dance for them!!
Brad Loncar
@bradloncar
#Biotech, Founder of @BiotechTVHQ, KC native, @univmiami hurricane.🧬🙌
A Duchenne MD Cure
@helpothers2011
Please pray for a cure for Duchenne Muscular Dystrophy! Boys across the world including our sons Easton and Logan MUST have it!
Duchenne Apeldoorn
@duchennesports
Vrienden van Duchenne Apeldoorn organiseert onder andere de Duchenne Sate Party en de Duchenne Triathlon vriendenvanduchenne.nl
Robert Nelsen
@rtnarch
Company founder and venture capitalist focused on disruptive innovation, esp. biotechnology. Active angel in tech. Fierce Optimist.
TREAT-NMD®
@treat_nmd
Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world
Sara Nayeem
@saranayeem
Invest in emerging biopharma co's as EVP, Investments at Enavate Sciences. Prior NEA and Avoro Ventures. I post advice for biopharma exec's and emerging VCs.
DuchenneResearchFund
@duchennerf
Finding a cure for Duchenne muscular dystrophy, a devastating muscle-wasting disease that causes paralysis and early death. #dmd duchenne.org.uk
Stichting Duchenne
@duchennepp
Duchenne Parent Project vecht voor genezing of behandeling van spierziekte Duchenne, betere zorg&hulpmiddelen! Doe mee via duchenne.nl NL15INGB0000818818
RondouFonds4Duchenne
@rf4duchenne
Move Duchenne
@moveduchenne
Move Duchenne biedt het platform voor iedereen om acties te organiseren om geld op te halen voor onderzoek naar de ziekte van Duchenne. Kom ook in actie!
Duchenne Dad
@duchennedad
Cinco Hombres
@fivemengorunnin
#manfriday for @Average2Ironman and raising funds & awareness for Duchenne Muscular Dystrophy harrisonsfund.com
Ryan Riley
@ryans_rainbow
I am 4, and I am full of life, I love my family and all things Disney and Mario. I've recently been diagnosed with Duchenne Muscular Dystrophy.
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Joining Jack
@alljoinjack
We are joining Jack in the fight to find a cure for duchenne muscular dystrophy. Will you?
Duchenne_SanDiego
@duchenne_sd
We are committed to working with individuals and organizations in the San Diego region and beyond to positively impact the lives of people with Duchenne.
AdamArticuno
@adamarticuno
27 🇬🇧 | 1x Cat 🐱 | Metalhead 🎸 | Gaming 🎮 | Pokemon 🐭 | Gigs & Festivals 🎶| #PowerchairFootball @NPFC2 ⚽️ | DMD ♿️ | Social Media Officer 🖥️
JustNBed
@justnbed
I'm Justin! a streamer from bed with Duchenne muscular dystrophy, taking on Fortnite and more 🎮 | Rolling through life! tiktok.com/@justnbed
Duchenne Sucks
@monacohandicaps
My only dream: kick Duchenne out of this world#AMM
End Duchenne
@endduchenne
Support the fight to #endDuchenne. Follow @ParentProjectMD
Duchenne UK
@duchenneuk
Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. We are the leading Duchenne muscular dystrophy charity in the UK.
Terri Ellsworth
@terriellsworth
Duchenne Advocate/Rare Disease Activist Mom, Designing Mom-Creating awareness & advocating for approval of safe & effective drugs. Words are always my own.
Action Duchenne
@ad_love_run
Myopathie Duchenne
@myopathiedu
Aidez nous à aider les enfants atteints de la myopathie de Duchenne, Allez suivez nous! :)#Projet #SVT #3ème #téléthon2013
Little Hercules Fdn
@lhf_endduchenne
We serve the rare disease community through access advocacy and good policy. Patients and families first.
WalkingtoEndDuchenne
@toendduchenne
“Walking to End Duchenne” has been created by a mother joined by friends and family willing to walk anywhere to end Duchenne muscular dystrophy.
Sheep of Wall Street
@biohazard3737
Investor. Disclaimer: Not financial advice. Might buy or sell any securities without disclosures.
StBeatDuchenne
@stbeatduchenne
World Muscle Society
@worldmusclesoc
The WMS is a global, multidisciplinary community committed to advancing the science of neuromuscular disorders. Join us in Vienna for #WMS2025.
ANIL with Duchenne
@anildmd
A father of a Duchenne boy, He has suffered from Duchenne for 5 years, needs to access 51 exon skipping therapy🙏🤗
Michelle Solly
@msollender
The Lady Who Can Tell Time. Currently Taking Care of My Chicken, Head of Macro
Duchenne Data Foundation
@duchennedf
Bringing data to life to improve the world of dystrophinopathies
Nicky's page - Duchenne Muscular Dystrophy
@s_duchenne
Follow Nicky on his journey with Duchenne Muscular Dystrophy and help us raise awareness
Duchenne Centre NL
@duchennecentrum
Centre of expertise considering care, treatment and research for #Duchenne and #Becker muscular dystrophy.
Parent Project Duchenne Russia
@parentrussia
ПЕРВЫЙ РОДИТЕЛЬСКИЙ ПРОЕКТ был создан для улучшения качества жизни пациентов с мышечной дистрофией Дюшенна в Российской Федерации.
Duchenne Muscular Dystrophy Foundation Kenya
@duchennek
DMDFK supports Boys in Kenya with Duchenne Muscular Dystrophy.
Fight To Survive Duchenne Muscular Dystrophy
@toduchenne
we do a mix off videos from magnet food challenges to duchenne muscular dystrophy videos
Team McClean
@team_mcclean
Ethan McC is a 16yr old with the terminal illness Duchenne Muscular Dystrophy. He loves Ice hockey, fast cars/bikes, going fast. Life is short enjoy each day !
Duchenne CT
@duchennect
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Never Again Duchenne
@neveragaindmd
We are a non-profit organization dedicated to raising money for research and a cure for Duchenne muscular dystrophy.
CureDuchenne
@cure_duchenne
Email: [email protected] Insta: cureduchenne Facebook: Cure Duchenne Twitter: CureDuchenne
John Maraganore 🇺🇦🇮🇱
@jmaraganore
Founding CEO of @Alnylam. Pioneered RNAi therapeutics as a whole new class of medicines for patients. Now bioentrepreneur-at-large. Opinions are my own.
Duchenne MD Dad
@duchennemddad
Husband, and father to 2 beautiful boys with my 7 year old Stanley being diagnosed with dmd in 2017. All opinions and emotions my own.
World Duchenne Organization
@worldduchenne
Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
The Duchenne Registry Australia
@duchenneregaus