Many bulbar onset ALS people see a dentist first, complaining of their bite being off, jaw spasms, a lisp. Dentists can be trained to examine the tongue for fasiculations, ask questions. Advise pt to see PCP for neurology referral. Early dx is key. #EndALS #KICKALS #ADA #MND

Thank you Gus Bilirakis for being an ALS champion! Your vote for passage of #Act4ALS helped get promising drugs in bodies through Expanded Access. And thank you for funding at $75m in the 118th House. We must fund research for this 100% fatal disease.

Shout out to the IAA Veterans team!

Please Muhammad Yousaf do the right thing and honor the humanitarian assignment request. #ALS is 100% fatal. You had a history of sensitivity to families in crisis. My family benefitted from #USAF policies in the 1960's that allowed my cousin to be with family in his final months.

Education to providers is needed for quicker dx. Let's get PLWALS in trials more quickly.

The ALS community appreciates your support. Veterans are 2-10x more likely to be dx with ALS. Please Rep. Brett Guthrie advocate FDA regulatory flexibility for promising #ALS treatments.on both drug and biologic sides of FDA.

I lost speech within 2 yrs of ALS dx. Today I listened to this podcast interview recorded 3 yrs ago, 5 wks after dx. Surreal to hear my voice again. I hope my grands can listen someday and know more about me. #EndALS #MND #KickALS tcpca.org/every-square-i…

Thank you Senator Dick Durbin for your compassionate leadership. Please keep ALS research funding at $40m for the CDMRP. We must support our Veterans who served us. ALS is 100% service related. Our Veterans deserve treatments and cures. #EndALS

In a 100% fatal disease like ALS, we must have regulatory flexibility from the FDA. We do not fit in a 10 year cycle of drug development, as we die too quickly. #ENDALS #KickALS

I am sitting with my awesome OTs working on bodywork and eye gaze. This is typed with my eyes. #EndALS

Thank you Mike Quigley for supporting funding for Act for ALS. You are a hero to the #ALS community for standing strong in the fight. We must discover treatments for this 100% fatal disease. #ENDALS Deb Paust Troy Fields Nicole Cimbura @lisamack238 Jill Brattain

G I'm grieving the horror of 9/11, and the lives lost Sect of Defense Lloyd Austin's words today resonate, "...amid the horror and grief...and with hearts breaking, Americans looked within themselves and felt called to give back." #EndALS #911Anniversary #NeverForget

It never gets easier. #ALS is brutal. Still 100% fatal. The ache is deep for the losses ALS brings. I so miss eating, speaking, walking, breathing. #EndALS

A wedding is coming! Any tips for navigating a mother-groom dance at the wedding reception when you have advanced ALS? For all the joy of the wedding celebration and the chosen song, I envision feeling somewhat awkward in those minutes. #ENDALS #MND #ALS

My husband and I watched this event. Learning from others who were living with tracheostomies gave me courage to have the surgery 5 monthe later. #ENDALS

Today we sold 2 of my bicycles. I cried. From a 5 year old balancing on 2 wheels, biking brought adventure and freedom. I biked to elementary school 4th -6th grades. As an adult, biked hundreds of miles in 15 states and 3 countries. I miss my active life. #EndALS #MND #adventure

Hi friends. I'm Sandra's daughter, Rachael. Jesus called her home peacefully on November 12th. She finished her race and we know her impact was great. Thanks for joining us on this ALS journey. Our family would love to hear your "Sandra story" - rb.gy/xzw6z0 . #endALS

Sandra's Celebration of Life service will be on Monday, November 20th at 5pm EST at Tates Creek Presbyterian Church in Lexington, Ky. All are welcome to join the celebration of this extraordinary woman. It will also livestream here: tcpca.org/live #endALS

Sandra chose to walk her ALS journey publicly in hopes of helping others. She chronicled it here caringbridge.org/visit/sandrama… #endALS

You're invited to join us today as we celebrate the life of Sandra Marlowe at 5pm EST, watch the livestream at tcpca.org/live #ENDALS