#Lifesavingdrugs4cf #Kaftrio (@sade_39) 's Twitter Profile
#Lifesavingdrugs4cf #Kaftrio

@sade_39

We Need Everyone's Help
In Our Campaign For Access To ALL Precision Medicines For People With CF In The UK. Please join our FB group.
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ID: 841962267239407617

linkhttps://www.facebook.com/groups/1413623745325543/ calendar_today15-03-2017 10:40:22

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Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

"Balance for me with CF is about remembering that CF is a condition that I have and not who I am. But also remembering that looking after that condition allows me to be who I want to be" Ed finds motivation in the CF community, where do you find yours? #BalancingCF #CFWeek

Quest For A Cure (@cfquestforcure) 's Twitter Profile Photo

This. This is why we have to carry on the campaign for #trikaftaNext. It is a miracle #NextGeneration drug that is desperately needed for those with #cysticfibrosis

NHS England Media (@nhsenglandmedia) 's Twitter Profile Photo

BREAKING: NHS patients with cystic fibrosis will be among the first in Europe to benefit from the new triple therapy, NHS chief executive Sir Simon Stevens has announced

Chris Riches (@chrismriches) 's Twitter Profile Photo

So pleased and proud as a journalist that after an 18 month campaign in Daily Express with 189 articles on CF and telling the stories of 105 different #cysticfibrosis sufferers we can see this day. #dailyexpresscrusade4cf has been best thing I’ve ever been involved in. #kaftrio

Strawfie Challenge (@strawfie) 's Twitter Profile Photo

Thinking too of all the wonderful people who did not live to see this amazing day. Our thoughts are with you all and also your families and friends. Such a bittersweet day. #cysticfibrosis

#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

.Matt Hancock Thanks You told me you’d help & you did You’ve given my daughter Jess the chance to have a normal life where she can live with CF not die of CF Vertex Pharmaceuticals your amazing medecines will change lives forever #Kaftrio is a miracle Crispin Blunt Paul Scully💛

.<a href="/MattHancock/">Matt Hancock</a> Thanks You told me you’d help &amp; you did
You’ve given my daughter <a href="/jess_cranfield/">Jess</a> the chance to have a normal life where she can live with CF not die of CF  <a href="/VertexPharma/">Vertex Pharmaceuticals</a>  your amazing medecines will change lives forever #Kaftrio is a miracle <a href="/CrispinBlunt/">Crispin Blunt</a> <a href="/scullyp/">Paul Scully</a>💛
Oli Dillon (@olidillon) 's Twitter Profile Photo

Today was most amazing day NHS announced people with CF will receive #Kaftrio the game changing medicine that’s closest thing to a cure we can hv! Thank you Blake Dark Matt Hancock my mum Ali Dillon 💙 NHS @nhsCFwarriormum Chris Riches & all who campaigned! I’m off to plan my life!

#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

To all who don’t/won’t wear a mask, look at this young lad, Kaden Barton, He has cystic fibrosis He said “I’ve been wearing masks like this one every day Surprisingly it does not impact my oxygen levels! Wear a mask.” Be like people with #cysticfibrosis #WearAMask Cystic Fibrosis Trust💛

To all who don’t/won’t wear a mask, look at this young lad, Kaden Barton, He has cystic fibrosis 

He said “I’ve been wearing masks like this one every day
Surprisingly  it does not impact my oxygen levels! Wear a mask.”

Be like people with #cysticfibrosis
#WearAMask 
<a href="/cftrust/">Cystic Fibrosis Trust</a>💛
Jillian McNulty (@jilli09) 's Twitter Profile Photo

#lungfunction test update! It’s been 1 week on #trikafta #Kaftrio This drug is truly a #miracle Thank you Vertex Pharmaceuticals #cysticfibrosis #lifechanging #newzealand #canada #scotland #wales please make this drug available youtu.be/rttYTSZKfFk

Emma Corr (@emmakcorr) 's Twitter Profile Photo

Six months apart. Three kgs heavier, 6cm taller and no longer poorly every few weeks 💕 thank you Vertex Pharmaceuticals Matt Hancock NHS England Media Orkambi has changed our lives! Can’t wait for #Kaftrio 🙌🏻 #cysticfibrosis

Six months apart. Three kgs heavier, 6cm taller and no longer poorly every few weeks 💕 thank you <a href="/VertexPharma/">Vertex Pharmaceuticals</a> <a href="/MattHancock/">Matt Hancock</a> <a href="/NHSEnglandMedia/">NHS England Media</a> Orkambi has changed our lives! Can’t wait for #Kaftrio 🙌🏻 #cysticfibrosis
Jillian McNulty (@jilli09) 's Twitter Profile Photo

5 weeks ago I was on oxygen 24/7 in a wheelchair barely able to walk, I had abdo surgery just 12 days ago, 4 weeks ago came #mymiracle #trikafta Today I climbed #sligos highest mountain #knocknarea with my brother. If this doesn’t prove how powerful trikafta is then I don’t know!

5 weeks ago I was on oxygen 24/7 in a wheelchair barely able to walk, I had abdo surgery just 12 days ago, 4 weeks ago came #mymiracle #trikafta Today I climbed #sligos highest mountain #knocknarea with my brother. If this doesn’t prove how powerful trikafta is then I don’t know!
#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

#16 days or less till we get #kaftrio I can’t bear the wait anymore After nearly 20 years of waiting for this day, when #Cysticfibrosis can be a disease you live with, not die from, .Healthcare at Home🚚📦 from .Vertex Pharmaceuticals .King's College NHS 🙏🏻hope your all ready with our #kaftrio

Ali Dillon 💙 NHS (@alidilly) 's Twitter Profile Photo

2day I hv another success story Matt Hancock Blake Dark Joe Barnes 17, had years of declining health. He was too ill to be listed 4 transplant & spiralling downhill. Now he’s looking 4ward to going back 2 school he’s putting on weight & according to mum back to his cheeky self!

2day I hv another success story <a href="/MattHancock/">Matt Hancock</a> <a href="/blakeydark/">Blake Dark</a> Joe Barnes 17,  had years of declining health. He was too ill to be listed 4 transplant &amp; spiralling downhill. Now he’s looking 4ward to going back 2 school he’s putting on weight &amp; according to mum back to his cheeky self!
Chris Riches (@chrismriches) 's Twitter Profile Photo

express.co.uk/news/uk/132606… Daily Express delighted to report this story after 18 months of writing about Kaftrio’s existence & dreaming of a deal - it’s finally here, on the NHS & will now start to be rolled out!! Amazing!! #dailyexpresscrusade4cf Carlie Pleasant - Motherhood vs Cystic Fibrosis 🫁 Cystic Fibrosis Trust

#UK CF campaigner Sharon (@cfno1leftbehind) 's Twitter Profile Photo

Chris Riches Daily Express This couldn’t have happened without your amazing campaign which helped us win our fight for this miraculous drug #Kaftrio will give Jess hope for a longer healthier life What more could I ever give her I love you Jessica So happy for you🥰

Chris Riches (@chrismriches) 's Twitter Profile Photo

Heartbreaking. We all Daily Express are praying Ben travels to Geneva soon and gets his lifesaving double lung transplant. He should be able to get it here on #NHS. Cystic Fibrosis Trust Matt Hancock Blake Dark Boris Johnson Royal Brompton and Harefield #dailyexpresscrusade4cf @nhsuk express.co.uk/news/uk/134894…

Vertex Save Us (@vertexsaveus) 's Twitter Profile Photo

Loz's time is short. #trikafta can save her. If Loz lived where Vertex Pharmaceuticals saw a mkt, she'd have 'compassionate' access. Loz lives in #SouthAfrica where life expectancy w #cysticfibrosis is 21 & there's not enough profit. But she CANNOT just be left to die. That's why today..