Thank you Brian Wallach for all you’re doing and thank you Barack Obama for helping raise awareness in this fight to #EndALS #MN03

To clarify: the funding has not yet been allocated. The appropriations committee included the additional funding in their draft budget. The full House and the Senate still have to approve. But rest assured, the groups leading this effort—I AM ALS and ALSA-will get this done.

Last week I was in the hospital with a blood clot in my lungs. Today I’m in Washington DC. Tomorrow I’m taking my power chair to the Hill to meet with Rep. Dean Phillips 🇺🇸 and others to discuss issues impacting the ALS community. #MN03 #EndALS #ALSAdvocacy

Had a great meeting with Rep. Dean Phillips 🇺🇸 and his staff yesterday. A huge thank you Congressman for signing on this week as a co-sponsor to eliminate the SSDI waiting period for those living with ALS. You are an #ALSChampion. #MN03 #ALSAdvocacy #EndALS

Announcement one: Met with NIH, Senator Dick Durbin and Sen. Lisa Murkowski yesterday. It was a great first meeting and step towards building a true partnership to accelerate the first to #EndALS. Much more to come. As I said yesterday, rest will be on the schedule...some day...

ALS. MS. Parkinson's. Alzheimer's. Huntington's. Frontotemporal Dementia. They are all linked. They all have no cure. We can change that. We will change that. Cure one. Cure all. #CuresForAll We are the ones we’ve been waiting for.

The House of Reps just voted to approve $10 million more per year in funding for #ALS research, a doubling in funding for a DoD-led program. Thank you Mike Quigley, Rosa DeLauro, Archive: Nita Lowey, and the other #ALSChampions who made this possible. x.com/iamalsorg/stat…

Woman wins battle for rare disease council in Minnesota | kare11.com kare11.com/article/news/w…

Thank you Tina Smith for signing on this week to co-sponsor S.578 to waive the 5 month SSDI waiting period for those living with ALS. Together you and Senator Amy Klobuchar are MN’s #ALSChampions in the Senate. #EndALS #ALSAdvocacy

Lessons for #ALSTrials-this echos insights from Dr. Bedlack’s research dukealsclinic on barriers for participation and why research offerings are a part of comprehensive care at ALS Centers of Excellence through @ALSA_MNNDSD nytimes.com/2019/06/20/wel… via The New York Times

Thank you Rep. Brian Fitzpatrick 🇺🇸, Rep. Ken Calvert, Rep. Jason Crow, and Rep. Terri A. Sewell for being #ALSChampions.

Thank you Rep. Dean Phillips 🇺🇸 for being an #ALSChampion and defending access to non-invasive ventilators for those with ALS. #MN03

In honor of #4 Lou Gehrig's "Luckiest Man" #80YearsAgo, I'm drafting 4 champions to join the fight to #EndALS & join IamALS.org 1.) Inheritance of Hope 2.) Isaiah Lufkin 3.) ALS News Today 4.) Mayo Clinic Neuro After you join, pick your 4 in the #ALSdraft

Signed! Who’s next?

Thank you Steve Gleason - "Live Impossible". Who else can jump in and sign?

On July 24th, we held a groundbreaking meeting with U.S. FDA and BrainStorm to discuss the potential breakthrough #ALS treatment, #NurOwn and efforts to speed treatment access to the ALS patient community. Read more about the meeting results here: iamals.org/news/press-rel…

Our partners at Google will be presenting our joint publication “Personalizing ASR for Dysarthric and Accented Speech with Limited Data” at the Interspeech 2019 conference. arxiv.org/abs/1907.13511 This exciting work presents an approach to improve ASR for people with ALS.

Many in the ALS community are aware that FDA has been working to finalize a guidance to industry to assist sponsors in the clinical development of drugs and biologics for the treatment of ALS. We expect to finalize that guidance by the end of next month.

What is ALS? Check out the video.

I am grateful for the leadership and support Rep. Dean Phillips 🇺🇸 has brought to the fight against ALS. Than you for being one of the #ALSChampions and taking it to the next level by joining the new bipartisan #ALSCaucus. #MN03