#pwME #MEAwareness

People face difficulties in many parts of the world, but since all seven billion of us live on this one planet we should be united and stand in solidarity with each other. When this blue planet is viewed from space, there are no national boundaries to be seen.

#pwME faces a constant struggle with a variety of pains, nausea, fatigue, dizziness, brain fog, isolation etc. My friend Aida a #mewarrior for 30 years describing the struggles so well; “This illness make me envy a tightrope walker” #MEAwarenesshour

Last time I; Saw my mum - 7 months Fully dressed - 1 year Showered - 2 years + Walked on grass - 3 years Tested my sofa - 4 years Jogging - 7,5 years #MEAwareness #SeverME #SevereMeWeek2021 #SevereMEDay #LifeIsHard

I struggle to handle the misunderstandings or the lack of understanding of my illness and the life I have to put up with. I want people to understand, but I have to let that go. Why do I care so much? #SevereMEDay

#SevereMEDay2021

Jeg blir så rørt når Magnus tenker på alle som har gledet seg til matchen, og ikke ønsker en rask remis. #Konge #2sjakk

Negative emotions like attachment and anger are part of our lives, but there are antidotes to them. We need to reflect not only on the damage anger and fear can do, but also on the benefits to be found in cultivating compassion and non-violence and find a balance between them.

Gratulerer Magnus Carlsen 👑🐐💪🏻 Et fantastisk sjakkår (selv om litt gjenstår), dette gjør mitt liv som syk mye mye lettere. Tusen takk alle #TeamCarlsen #2sjakk #vgsjakk #nrksjakk

Third Xmas without a shower. That’s wired and sad. So is ME! #MEAwarenesshour #XmasTreats #pwME

If you need some calming and wonderful Xmas music I will recommend “It’s snowing in my Piano” by Bugge Wesseltoft And it’s ME friendly too (at least to me)🙏🏻 Merry Christmas friends💫 🎄 ✨ #MEAwarenesshour #pwME open.spotify.com/album/2GVRqMDD…

I have already been outside more this year, then whole of last year 🙏🏻 Am I getting better? To much hope/ to little hope, I feel both can be wrong after 8 years with this condition🤷🏻‍♀️ #meawarenesshour #pwME

3 år uten dusj 5 år siden sist vennebesøk 3 years without a shower 5 years since I saw a friend May this situation end 🙏🏻 #MEAwarenesshour #MEAwarenessmonth

#MEAwarenessmonth

Thank you to #pwme and others, for your kindness and constant rooting for me to get better. I believe so too, but this condition is a rollercoaster ride with a lot downsides. And #chronicillness is a lonesome thing, you make it less lonely💙🙏🏻💙 #meawarenessmonth

#CasperRuud altså, dette er så rått 💪🏻🙌🏻🏅🏆🧡 Og etter 20 år i topptennis er det rart at Nadal ikke har funnet seg ei god truse å spille tennis i 😂🙈 #GrandSlam #FrenchOpen

We need to think of each other as sisters and brothers, and to be concerned with each other’s welfare. We must seek to lessen the suffering of others. Rather than working to acquire wealth, we need to do something meaningful, directed toward the welfare of humanity as a whole.

Noen planer om å vise/gjøre «Vår mann i Teheran» tilgjengelig igjen NRK?

Jeg får virkelig tro på fremtiden når jeg ser responsen på spleisen til ME-forskning ved Haukeland. 262 950 kr etter 3 døgn. Helt fantastisk! 🥳 Men ingen grunn til å stoppe nå. Gi gjerne et sårt og nødvendig bidrag til ME-pasienter du også. 🙏 Håp 🤗 spleis.no/project/240979…

Jeg håper 2023 blir året der @Folkehelseinst slutter fred med ME-pasienter og blir den uavhengige kunnskapsleverandøren de er ment å være - også på ME-feltet. Helse- og omsorgsdep Helsedirektoratet 🇸🇯 Directorate of Health Ingvild Kjerkol Jonas Gahr Støre lifewithmebysissel.wordpress.com/2022/12/21/vil…