Awareness
@ruudgrethe
Raising awareness about PANS - PANDAS - AE - BGE
ID: 1333835752455729157
01-12-2020 18:10:43
29,29K Tweet
1,1K Takipçi
4,4K Takip Edilen
JK
@j_b_kennedy
Slowly getting there
JJJ pronounced Jeh Jeh Jay
@jjason7
“Professional procrastinator, amateur comedian, and full-time dreamer. Swipe right if you're into sarcasm and left if you can't handle the heat.” Grok
C. M. Rubin (Cathy)
@cmrubinworld
#Forbes #Futurist #Filmmaker #Founder CMRubinWorld.com #Producer #PlanetClassroom #AI #VR #ML #Innovation #entrepreneurship #Youth2030 #Climate
Shane's Electrics ⚡️🇦🇺
@shaneselectrics
Social Housing Electrical life , 80’s ,Crazy Cat Fella , NFL , Seahawk’s , wannabe wood Crafter, Daddy , Beer , Star Wars & Trek.#PansPandashour
~Virginia~
@virginia_atk
No dejes de sonreir nunca, ni tan siquiera cuando estes triste, porque nunca sabes quien se puede enamorar de tu sonrisa.
SD
@saraducey
Soon to be x-xer. I am crushed that Twitter has been so ruined. Views my own.
Zuzička
@noonespecial000
I mainly tweet about magnesium. Don’t ask me my pronouns. If you do, they are me/mine. Prefer that Government leaves me alone.
Swiftsandswallows
@swiftsswallows
@swiftsandswallows.bsky.social My daughter had Severe ME/POTS & MCAS and died in 2024 I am also a parent and carer of a younger daughter with ME & POTS
Zack Williams, PhD
@quantpsychiatry
Autistic (+ADHD, OCD, Tourette's) autism researcher and trainee psychiatrist. Catatonia enthusiast, patient advocate, stats guy. Incoming PGY-1 at @UCLApsychres
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
Carol Garland
@garlandcarol
Phoebe Boag
@phoebsbo
Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. She/her.
NB
@np9000
Tick-Borne Infections & Pans/Pandas in the UK #Pans #Pandas #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME . Views my own. np9000.bsky.social
Susannah H
@firebug70
Mum. Carer for my son. Former English teacher. Holding on to hope. Researching #Lyme #ME #LongCovid #Pandas #Pans
Brian Fog
@useless_priest
ME, when triggered by SARS-CoV-2, is a subset of Long COVID | LC Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪 | No miners
Michael Corns
@michaelcorns33
field service engineer of 18years for faun-zoeller/otto
Dr Claire Taylor
@drclairetaylor
Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|long Covid clinic🏴Views my own
Hopeful
@hopesaxons
Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection. B12 deficiency
Jane Bird
@lindalahughes9
Raising awareness of the paediatric conditions PANS and PANDAS
PANS PANDAS UK
@panspandasuk
UK charity raising awareness and understanding of post-infectious neuropsychiatric disorders. We support families and campaign for better care.
Notes to my boy ✉️
@notestomyboy
Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
Joanne Holloway
@charmingangelco
Mom 2 girl with #Pans.Took 2.5 years & huge battle 2 get 2 diagnosis!Delays are damaging. Goal 2 raise awareness 2 end present suffering & stop future suffering
Paula Scott
@paulascottuk
As an experienced Virtual Assistant with over 30 years of expertise, I specialise in providing efficient, reliable and confidential administrative support.
Sarah Hughes
@shughesdr
laura aylott
@aylott_laura
Just a mum of 3 boys ! volunteer supporter of families & parents, interest in child development & trying to raise awareness of PANS PANDAS
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
Sarah O'Connell
@sarahoc_mecfs
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Dame Sa 🐝 3.5%
@longcovidhell
Raising awareness for #LongCovid and the need for treatment. I suffered heart, lung & eye damage from a 2020 Covid infection. 🦋 damesa.bsky.social
Kathryn Gillett
@kathryn_gillett
Raising awareness for PANS Paediatric Acute Onset Neuropsychiatric Syndrome. Mum, theatre lover, events.
James
@mfcired
Just a normal guy, that has lived with OCD for over 30 years but decided to retire his superhero cloak. KNOWLEDGE DISPELS FEAR
Diane
@diane_wild78
Swuiwe
@swuiwe56603
GDTRFB
@downwthesicness
dr.hasan fehmi cilli
@drhfehmicilli
Towes
@toweswen
Sreebalc
@sreebalc1561
Vikii💙
@vikii90155420
Wanting to learn more, for a better world, for my beautiful children. Have been inspired and frightened in equal measure since joining Twitter.
Ronald Smith
@ronaldsmit53532
Nadya
@nadya_281
expert forex trader....invest wait and earn 📊💰🧰🛠️
Happy Daddy
@the_happydaddy
A Dad of Daughters. PANS PANDAS Awareness. I have a Blog about Alcohol Addiction (Link Below)
romy derman
@dermanromy
Mum to one special daughter. #Senior Health Play Specialist #Portland Hospital ❤️.one step at a time 🌈
parent of pugs
@senmum05
ADHDer EDSer DV survivor living my best life mummy to children all ASD ADHD
Outrodo
@outrodo530
Clare McGinty
@mcgintyclare
Diana Prince
@dianaprincetl
Knowledge is my superpower
Celestino McCullough
@cmcculloug15088
Seathare
@seatharerr_lie
Cynthia Shelnutt
@blessed2behere0
No DM’s/No LISTS
Jacky Greenfelder
@jackygreen72327
Joni Day Rains
@liv4the_moment
Artist. I am CPP. Life is beautiful, hard & painful. Loss is what we know, our son, fathers, best friends. Be in the moment, cause it’s all we have. 🤫
Arif | Ghostwriter
@arifbharakda
I write words to build the reputation you want on Twitter. Views are my own and do not represent the views of anyone I work with or am affiliated with.
Dave Krueger
@earnestlyasking
Simon Fowler
@simonfowlerlon
“Emotions have taught mankind to reason.” Luc de Clapiers
NarcoVamp
@narcovamp
Cb
@cb5422471872703
IMSTUDNET
@shubhamtekade4
Lucy
@parentingpandas
Instagram parenting_pandas. Sharing the honest reality of parenting a PANDAS child. Raising awareness of PANS PANDAS. Advocating, learning, surviving, healing.
🇸🇩Hatem Salama
@hatem__salama
Father from Gaza | Trying to give my family a safe life outside war | Support our journey to freedom & safety (gofund.me/096cba2a)
ncweptsaprh
@ncweptsapr25812
Pioneer Wealth: Prof. Matthew’s AI + finance pros boost profits! Free 1st month. AI scans data, experts guide stocks/crypto. Click to join now!
Heidi Vosseler
@vosselerheidi
Liz That Girl CA
@lizthatgirlca
Brave magical realist, rollin' with it, baby! As long as we're able to laugh, there's hope...
prosper James
@prosperjam82509
With God all this are possible
Carol Edwards
@ocdtopics
Therapist turned writer & #OCD survivor, raising awareness for OCD & visual Tourettic OCD. Explore my books on Amazon for valuable insights. #ERP #ICBT #VTOCD
Gardner Harris
@gardner_ha44557
Bloody Scandal
@bloody_scandal
Exposing the scandal of the failure of doctors to diagnose&treat hypoxia: B12, folate, iron, copper, zinc deficiency. The account formerly known as jim_herd.
Suzaku has Long Covid/MECFS🥴🍉
@suzaku_is_tired
Long Covid / MECFS patient since March 2021 • 🇪🇦🇨🇵🇬🇧 •
InterestedObserver
@interes63923782
Here to observe the hive mind that is the X-verse. A true love of learning and knowledge. Open to the universe. Mom, wife, traveler, gardener, LCSW.
💧Ian Williams
@ianwill94901388
progressive atheist baby boomer🐀 2050 is too late!
Star
@starscia23