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One of the standout aspect of REDRESS 2023 was the narratives from PAGs- from tales of resilience to stories of hope. It underscored the importance of concerted efforts to advance our understanding and treatment of rare genetic dis Indian Prader-Willi Syndrome Association Cure SMA Foundation of India 🇮🇳 Tata Institute for Genetics and Society, India #Rettsyndrome

Privileged to be a part of the REDRESS 2023 organising committee. It was not just a meeting of professionals; it was a convergence of passion, expertise, and lived experiences!!! Tata Institute for Genetics and Society, India #raregeneticdisorders

It was wonderful to have attended #campus dusty dylan event National Centre for Biological Sciences and the opportunity to hear the narratives that shaped this campus into what it is today. Tata Institute for Genetics and Society, India Harvinder Khera

Lace up your shoes and join us as we run to raise awareness and support for those fighting rare diseases. Together, we can make a difference! Organised by ORDIndia #RareDiseaseAwareness #RunForACause 🏃‍♂️💪#Racefor7 Tata Institute for Genetics and Society, India

Every step counts towards raising awareness about these unique medical challenges. Let’s keep pushing for research on early diagnosis and therapeutics…and inclusivity in healthcare. Tata Institute for Genetics and Society, India #runforacause #RareDiseaseAwareness

Sir Ratan Tata was an epitome of entrepreneurship, integrity & philanthropic vision which transformed the social & economic fabric of our nation. Your legacy will live on! Privileged & proud to be part of TIGS !

If you are working on any aspect of RGD, don't miss your chance to present at the #REDRESS2024 Summit on Rare Genetic Disorders! Submit your poster abstracts by 22nd Oct and be part of impactful discussions with leading experts/stakeholders under one roof. Tata Institute for Genetics and Society, India

This year the #RareDiseaseDay is observed on 28 Feb. We along with National Centre for Biological Sciences are pleased to announce a few contests with the theme 'What is #Rare?' for all to participate! More details: forms.gle/oGUtXFgQonYjaR… Celebrate creativity & raise awareness for #rarediseases!

Unleash your creativity, spread the word, share your talent, and amplify the voices of the rare disease community. Submit your entries in different categories with the theme: 'What is Rare?' lnkd.in/dBKRKjmK

Did you know, Why is #February considered as the #RareDisease Month? We've launched a campaign on Rare Genetic Disorders and we'll be sharing one #RareDisease fact every day until 28th of this month! Stay tuned! Let’s make #rare visible! National Centre for Biological Sciences Bangalore Life Science Cluster (BLiSC)

Day 3 Join us in raising awareness for #RareDiseases! Today we want you to know: How many people are affected by rare diseases worldwide & in #India? Help us spread the word by reposting & sharing with National Centre for Biological Sciences Bangalore Life Science Cluster (BLiSC) Let's make rare visible! #RareDiseaseDay2025

Day 4 Join us in raising awareness for #RareDiseases! Today we want you to know: The diversity of #rarediseases Visit 𝙂𝙚𝙣𝙏𝙄𝙂𝙎: db.tigs.res.in/gentigs/index.… with National Centre for Biological Sciences Bangalore Life Science Cluster (BLiSC) Spread the word by reposting & sharing Let's make rare visible! #RareDiseaseDay2025

Day 5 Join us in raising awareness for #RareDiseases! Today we want you to know: Which age group is the most affected with #RareDiseases? with National Centre for Biological Sciences Bangalore Life Science Cluster (BLiSC) Spread the word by reposting & sharing Let's make rare visible! #RareDiseaseDay2025

On #RareDiseaseDay2025, we came together to raise awareness & foster discussions on #rarediseases with National Centre for Biological Sciences The event started off with an insightful live art competition, where the participants expressed their creativity on the canvas on the theme What is rare? 1/3

Runa Hamid and Deepti Trivedi gave brief talks as researchers and shared nuances about rare diseases A special thanks to Keya Hatkar, an young author and a disability advocate for a thought provoking session on the need for #inclusivity and awareness on rare diseases 2/3

Bangalore Life Science Cluster (BLiSC) campus students presented a skit on neuromuscular disorder challenges! Through shared commitment, we reaffirm our dedication to advancing #RareDisease research & care. Thank you to everyone who joined us—let's make #Rare visible! ✨ 3/3

Teaming to make ‘Rare Visible‘