Riaan Research Initiative (@riaanresearch) Twitter Following • TwiCopy

VettaFi

@vetta_fi

VettaFi is a provider of indexing, data & analytics, industry leading conferences, and digital distribution services to ETF issuers and fund managers.

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Melissa M. Monroe, PhD

@triplemmeaning

Acupuncture | Author award-winning MOM’S SEARCH FOR MEANING | Treehugger | Words @NYTimes @LAReviewofbooks @Slate @Insider @iamwellandgood @backpacker

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Sarah Willey

@willey774

PR professional/journalist, wife, mom of two young women. Media Relations Director w/ @UMassChan Tweets, RTs are my own

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Eden Lord

@emlord

CEO @tda4rare, @my_rare_id, Rare Disease Advocate "We need a National Emergency Treatment Database For Rare Disease Patients" lnkd.in/exw2Fe2

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Sikh Research Institute

@sikhri

SikhRI is a global non-profit organization providing educational resources to Sikhs to think critically based on Guru Granth Sahib’s paradigm of IkOankar.

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LUMC Leiden

@lumc_leiden

Officiële X-account van het Leids Universitair Medisch Centrum. Vacatures: bit.ly/42484EK Pers en media: bit.ly/2FtsU8Y

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Van Duesterberg PhD

@vancanwin

Patient Scientist Discovering a Cure For My Blindness and Helping Others While I Am At It. Postdoc @UCSF. Follow my journey at patientled.org

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Peter Halliburton

@phalliburton

Raising $$ for #SYNGAP1 🧬 gene therapy // @cureSYNGAP1 501(c)(3) Board // Carter & Presley’s Dad // @cyberark Channel Sales // TX 🇨🇱

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Jurgen Marteijn

@marteijnlab

The Marteijn lab studies, at the Erasmus MC and Oncode institute, the effects of DNA damage on transcription and its repair.

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Inkquisitive 🎨

@inkquisitive

Professional Dreamer

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Yuri Deigin

@ydeigin

Drug developer of Alzheimer’s/CNS gene therapies YouthBioTx.com | Vitalist & longevity maximalist | DRASTIC cofounder DrasticScience.com |🇺🇦🇨🇦

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Jazzy B

@jazzyb

The Crown Prince Of Bhangra

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Ethan Perlstein bio/acc

@eperlste

ceo @PerlaraPBC (@ycombinator W16), ceo @epalrestat, ceo @endrarediseases, solo vc @AngelList, evo pharmacologist, mTOR worshipper, cofounder of K&L, $CURES

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American Turban

@americanturban

Founded in 2010, American Turban is a blog by Rupinder Singh about Sikhs and Sikhi in America. See the blog for more.

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Sikh Coalition

@sikh_coalition

The Sikh Coalition is a community-based organization that works towards the realization of civil and human rights for all people.

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Sarita Edwards

@saritaedwards

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Andy Kaczynski

@kfile

CNN senior politics reporter | Co-founder @TeamBeansFund - funding childhood cancer research in memory of my daughter [email protected]

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Neurology: Clinical Practice

@neurologycp

Neurology® Clinical Practice is an official publication of the American Academy of Neurology.

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Kathryn Atchley

@kat_atchley

Just a person

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Haico van Attikum @haicovanattikum.bsky.social

@haicovanattikum

Full professor at Leiden University Medical Center. Studying DNA repair in chromatin and its link to human disease.

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Collie McKellipops

@colinmckellips

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David Sinclair

@davidasinclair

Professor @Harvard researching why we age & how to reverse it. Author & host of Lifespan. Mission: Extend healthy life for all. Views are entirely his own 🙏✌️

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La Jolla Labs Inc.

@lajollalabs

La Jolla Labs was founded by leaders in RNA therapeutics to leverage advances in automation and computing to build the world's fastest drug discovery pipeline.

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Stephanie Fischer

@rarepov

#Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.

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Ro Khanna

@rokhanna

A vision for a new economic patriotism. Let’s invent it, make it, & buy it in America. Pro-worker, pro-union, pro-family, pro-growth. Text me: (650) 999-9610

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Nasha Fitter

@nashafitter1

Co-founder @foxg1research; curing rare genetic disorders. Married to gorgeous brit @oliverroll. Mom of three. Lover of fiction, food, art & travel.

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Alok Tayi

@aloktayi

Building a community to find & fund treatments for rare diseases w/ @VibeBio Also: @biotech2050pod

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UMass Chan Giving

@umasschangiving

News, updates and info about UMass Chan Medical School and the people and organizations who support it.

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Evan Eichler

@eichleree

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ravinder singh

@ravisinghka

Sikh,philanthropist, 23 Years of coordinating aid with Khalsa Aid,humanitarian & passionate about human rights.All views my own:Kidney recipient

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The Sikh Network

@thesikhnet

The Sikh Network, an open collective of Sikh Activists & Professionals #SikhManifesto #UKSikhSurvey #350SikhWomen #MakeSikhsCount2021 | THE SIKH NETWORK PODCAST

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Özlem Altıntaş

@ozlem_altintas_

Molecular Biology and Genetics Healthy aging, AMPK, DNA damage&repair, C. elegans @bilkentuniv #postech @eth_en

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Carmelyn P. Malalis

@carmelynmalalis

Head of Impact @levelforwardinc; drawn to sightings of unicorns, mermaids & compassion; Former Chair & Commissioner @NYCCHR. She/her.

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Lamming Lab

@lamminglab

All views solely of Dr. Lamming and do not necessarily reflect views of my employers, funders, or societies. Retweet≠Endorsement. @[email protected]

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Courageous Parents Network

@courageouscpn

Courageous Parents Network is a non-profit organization that orients and empowers parents and others caring for children with serious illness. #Pedpc

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Sarah Matthews

@matthews16sarah

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Luke Rosen

@lukebrosen

Dad of two remarkable kids. Founder of KIF1A.org & Rescue7.org. Works with families affected by neurological diseases & cancer. Firefighter. Baseball & hockey.

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The Scheibye-Knudsen Lab

@scheibyeknudsen

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Kimberly Aldinger, PhD

@kaaldinger

Bluesky or LinkedIn | app deleted

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Project 8p

@chromosome8p

Project 8p is a non profit committed to finding treatment with translational research, advocacy and data sharing for Chromosome 8p disorders.

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Effie Parks

@onceuponagene

Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓

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Pierre Caron

@caronpierre13

@IBS_Grenoble @IRIG_Grenoble @cea_grenoble | CNRS researcher | @Prelights | @EDRA_Webinars

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SynGAP Research Fund (SRF)

@curesyngap1

#SYNGAP1 🧬 = 🧠NDD DEE causing #Epilepsy #Autism #ID #Sleep #GI. Incidence = 6️⃣.1️⃣/💯k ICD10 syngap.fund/F78A1 syngap.fund/10 🎙

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Malan Syndrome Foundation

@malansyndrome

Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene.

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KAT6 Foundation

@kat6foundation

We support individuals who are living with KAT6A and KAT6B syndromes around the world. 🧬 We advance research aimed at developing treatments.

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CureSPG50

@curespg50

To help children affected by the SPG50 disease

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CureGRIN

@curegrin

CureGRIN is a parent-run foundation committed to improving the lives of people living with GRI disorder. #RareAsOne #GRIdisorder #raredisease

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Giulia Massaro

@drgiuliamassaro

Lecturer and group leader working on gene therapy viral vector technologies @School_Pharmacy | @UCL GTx Viral Synthesis Facility | @_BSGCT | @aisuk_info

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Andelyn Biosciences

@andelynbio

Andelyn Biosciences is a biopharmaceutical CDMO Pioneering Solutions That Turn Hope into Reality™

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Martijn Luijsterburg

@luijsterburglab

The Luijsterburg lab at the LUMC in Leiden investigates DNA repair mechanisms during gene transcription.

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Simran Kaur

@simrank44821442

Rare disease researcher + geneticist + cell and molecular biologist + emerging leader + home maker + proud mum + ....

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George Yakoub

@george_yakoub_m

Enthusiast of Genome Maintenance and Post-translational Modifications, PostDoc @LUMC @luijsterburglab

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Institute for Gene Therapies

@gene_therapies

Gene therapy is transforming how we treat diseases. But today’s healthcare system can’t realize its potential. We’re changing that.

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Sandra Báez

@sandrabez9

Docente e investigadora de la Universidad de los Andes

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LUMC Global

@globallumc

LUMC Global is a platform for international connectivity in research, education and healthcare initiated by the Leiden University Medical Center @LUMC_Leiden

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Sikh Scientists

@sikhscientists

Developed the first-ever Sikh Scientists networking platform. If you are a Sikh in Science, Join now sikhscientists.com is NOW LIVE !! Open to Collaborate !!

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The Rare Disease Company Coalition

@rarecoalition

We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve. #OneRareVoice

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Jaggawocki

@jag13054409

Without Hate, Without Fear. Canadian living in The Bay reppin #raptors #bluejays #49ers . Trying to spread positive vibes one interaction at a time.

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Raiden Science Foundation

@raidenscience

Give kids suffering from UBA5 disease a chance to live a healthy life.

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The KCNC1 Foundation

@kcnc1foundation

Supporting research to find a cure for all those impacted by KCNC1-related disorders. 501(c)(3) Operating under The Rare Village as our fiscal sponsor.

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