Hello everyone, we're excited to launch our twitter feed for the Registry for Pulmonary Hypertension in Neonates (RePHyNe)! #curePH #neotwitter #PPHN #pulmonaryhypertension #neoheart #neohaemodynamics

Was your baby diagnosed with pulmonary hypertension (PH)? We are looking for parents of babies with PH to help our research team determine what are the most important outcomes to study. To register your interest: ac.pulse.ly/hmg8v0yvju Bliss Baby Charity Miracle Babies PHA UK

Thanks PHA UK for advertising our study! Please get in contact with our team if you are a parent of an affected child who had pulmonary hypertension diagnosed as a baby: phauk.org/RephyneRegistry #neoPH 👶🫀🫁

Thanks for the re-tweet Research @ LWH Follow the link to register your interest: redcap.liverpool.ac.uk/surveys/?s=3HP… Bliss Baby Charity Miracle Babies PHA UK 🫁🫀👶

Only a few weeks left to be involved in part 1 of our research study! Please contact with our team if you are a parent of an affected child who had pulmonary hypertension diagnosed as a baby: phauk.org/RephyneRegistry 👀 Part 2: our survey, will launch very soon! #neoPH 👶🫀🫁

Thanks PHA UK for advertising our NeoPH COS study in your new issue of Emphasis - page 9! 👶🫀🫁 #NeoPH #NeonatalPH #PHighters

Can you help our study looking at what outcomes are most important to study in newborn babies with Pulmonary Hypertension ? 👶🫁🫀 #PH #NeoPH If so register your interest here redcap.link/kf3d965j

Was your baby diagnosed with #PulmonaryHypertension? Researchers from The University of Liverpool have launched the second stage of their study into neonatal PH, and they are looking for parents and guardians to complete a 2-stage survey... cont 🧵...

This survey is also open to adults with PH who were diagnosed as babies. You can register your interest in completing the questionnaire at bit.ly/RePHyNE_study This survey is also open to anyone who took part in stage one of the study, which we advertised earlier this year.

We have launched our Delphi Survey on what outcomes are most important to study in newborn babies with Pulmonary Hypertension ? 👶📷#PH #NeoPH If you have experience caring for babies with PH please contribute by registering for the survey here redcap.link/kf3d965j

Professionals, researchers, parents and patients! Final call to share your insights on important outcomes in neonatal pulmonary hypertension. Your contribution can help shape future care and understanding. Take part here: redcap.link/t8jkxgdy Thank you 🫀🫁 #PH #NeoPH

***Project update*** We’re excited to report that RePHyNe has now launched! This is the first step in creating a global registry of Neonatal Pulmonary Hypertension. Find out more or get involved here: rephyneregistry.com #PH #NeoPH

🚨 Recruitment is underway, and we’re excited to share the first edition of our quarterly RePHyNe newsletter! Dive into the latest updates: 🔗 rephyneregistry.com/wp-content/upl… #PH #NeoPH #RePHyNe

Exciting update! RePHyNe has joined the National Institute for Health and Care Research Associate Principal Investigator Scheme 🔎 Learn more: NIHR.ac.uk/AssociatePISch… 📷 Sign your centre up to the registry: rephyneregistry.com #RePHyNe #NeonatalResearch #PH #NeoPH #NIHR #ClinicalResearch #PIPathway