'You have 11 years to get better mommy. That is when I will be graduating from law school and we will practice law together. ' - My 11 year old son, consoling me today when he heard me crying in my room about having to close my law practice due to #LongCovid #NEISVoid #parenting

I’m 62.

And just been awarded a first class law degree.

Feel free to retweet. Please.

Weight, menstruation or anxiety. That is what doctors think of in the first appointment when a woman complains about pain or fatigue.

I just asked my husband this question. He seemed baffled at first and answered that it was, may be, a parrot? Answer a question with another question. My husband's secret to keeping our marriage strong.

Our 11 yo has not had a proper vacation in 5 years, because of my illness. Yet, everytime there is a school break, he is overjoyed at the prospect of 'vacation'. For him, vacation = more books, family movie & game time, playdates and deseerts. Bittersweet. #parenting in #NEISvoid

If you have dysphagia, doing swallowing exercises regularly is very crucial. For menstruating women - do these especially when during ovulation & in the luteal phase generally.

What a wonderful mum! I hope to be like her when my son visits me when I'm older.

Truer words have not been spoken. Encourage your children to read. That is one of the best things you can do as a parent.

Halfway into Inception, our son has started wondering about reality and we have paused our movie time. Thanks, Nolan! #movietwit

What intimacy? My poor husband is happy if he can just give me a hug without dislocating my shoulder or ribs. 🤣

Today one of our teachers took her class outside to sit and listen to the rain. I LOVE that one of our teachers took our children to sit and listen to rain. And then one of them wrote this. We're going to have it made into a sign to put in our outdoor learning area. 💕💕💕

My husband has been postponing this for a decade.

Several times a day. Alone. Into a pillow, inside the bathroom, with the oxygen machine on so no one can hear.

Your friendly reminder that ambulatory wheelchair-users exist. Sometimes we use wheelchairs and sometimes we stand up to take photos of blossom trees 😃

When a parent becomes chronically ill, they realise the true value of doing simple things with their child. I taught my son to make my chai yesterday (as I couldn't move my hands after a procedure). It was 10 minutes of unadulterated joy for both of us. #parenting in #NEISVoid

'Oh mommy, I know this pain!' - no child should ever have to feel or say this. My son & I sharing notes about pain from repeated dislocation of our hypermobile joints and regular headaches is the saddest thing in our lives. #parenting in #NEISVoid

I’m excited to share that we have a PhD position available in our group, at the Department of Biomaterials and Biomedical Technology (BBT), University Medical Center Groningen (UMCG). Please, read more about the position in our website: bit.ly/4aJZu1k

Watched the Martian with our 11 yo son. A great movie to watch for a family struggling with chronic illnesses. You solve one problem, then another & another & hope that if you solve'em all, you can come home. Resilience & ingenuity in the face of adversity. #parenting #movietwit

If you are chronically ill and married, having food in the freezer will save your marriage on a regular basis. Thank you for coming to my TED talk. #marriage #NEISvoid

Navigating a healthcare system is an essential life skill without which you might literally die. My 11 yo son (who has a rare disease) requests us to move him away from any doctor who does not believe his symptoms or tries to psychologise them with no basis. #NEISVoid