Rebecca O'Connor (@rebeccaoco) 's Twitter Profile
Rebecca O'Connor

@rebeccaoco

public affairs @PensionBee | cofounder @goodmoneygirl | columnist @theipaper | author #ESG | lately, #longcovid #longcovidkids

ID: 18312153

linkhttp://www.pensionbee.com calendar_today22-12-2008 18:05:19

9,9K Tweet

4,4K Followers

4,4K Following

Rebecca O'Connor (@rebeccaoco) 's Twitter Profile Photo

Chronically ill children are being pushed out of the state school system because it cannot wait for their recovery and health needs cannot be met in school. Also, the sadness of possibly pulling a child out who wants to go back when well is a trauma I am struggling with.

PANDA Mama (@pandamama2024) 's Twitter Profile Photo

It is #PansPandasHour 🕗8pm-9pm If you have a platform on here, we would appreciate a retweet, our children are too important to misdiagnose. Awareness & early intervention = Best prognosis. #ChildHealth #CYP #YouthMentalHealth #BrainHealth

It is #PansPandasHour 🕗8pm-9pm
If you have a platform on here, we would appreciate a retweet, our children are too important to misdiagnose. Awareness & early intervention = Best prognosis. 
#ChildHealth #CYP #YouthMentalHealth #BrainHealth
Royal Hansen (@royalhansen) 's Twitter Profile Photo

"Six million children are living with Long COVID. Their symptoms disrupt memory, energy, mood, and development, keeping them out of school, sidelined from friendships, and left without answers." longcovidfamilies.org/advocacy/pedia…

Victoria (@so__victoria) 's Twitter Profile Photo

Toby Young This is a dangerous and ill informed article. I have pots and it has been devastating and hugely debilitating. It’s not just being dizzy. Many of us were misdiagnosed and gaslight by our GPs for years and the today the lack of NHS specialists means many of us can’t even get the

Michael Alexander (@michaeltikus) 's Twitter Profile Photo

The DWP PIP system doesn't have a category for POTS, the closest in the system is 'tachycardia'. Funny how the prevalence of tachycardia as the primary condition for which was PIP awarded has increased ~10 fold since the start of the pandemic... #LongCOVID #MECFS

The DWP PIP system doesn't have a category for POTS, the closest in the system is 'tachycardia'. Funny how the prevalence of tachycardia as the primary condition for which was PIP awarded has increased ~10 fold since the start of the pandemic... #LongCOVID #MECFS
Erin M (@erinapn1) 's Twitter Profile Photo

Toby Young My now 17 year old. Can’t eat or drink (has no peristalsis from oesophagus to end of large bowel), neurogenic bladder, 3x stomas to try to feed her and eliminate waste (but her gut doesn’t want to absorb so often she has iv nutrition into her heart), a central line into her heart

<a href="/toadmeister/">Toby Young</a> My now 17 year old. Can’t eat or drink (has no peristalsis from oesophagus to end of large bowel), neurogenic bladder, 3x stomas to try to feed her and eliminate waste (but her gut doesn’t want to absorb so often she has iv nutrition into her heart), a central line into her heart
GC (@thepotspostman) 's Twitter Profile Photo

I am so tired of people mocking POTS, EDS and MCAS like they are all some little TikTok trend. Who in their right mind would want to pretend to have an illness for clout? We don’t want attention. We want answers. We want support. But instead of support we get headlines and

I am so tired of people mocking POTS, EDS and MCAS like they are all some little TikTok trend. 

Who in their right mind would want to pretend to have an illness for clout? 

We don’t want attention. 
We want answers.
We want support. 

But instead of support we get headlines and
Johnny Timpson (@johnnytimpson1) 's Twitter Profile Photo

Rebecca O'Connor Erin M The fact that he is a Peer underscores the real need to address the chronic underrepresentation of people with disabilities in the UK House of Commons House of Lords together with devolved assemblies and local government.

Sam Carlisle (@samcarlisle) 's Twitter Profile Photo

Sun readers get it. This is their response to my piece about parents' worry over #EHCPs being axed. Government needs to allay fears and explain how they are going to give disabled children the same rights under their new SEND reforms. The Sun Disabled Children's Partnership

Sun readers get it. This is their response to my piece about parents' worry over #EHCPs being axed. Government needs to allay fears and explain how they are going to give disabled children the same rights under their new SEND reforms. <a href="/TheSun/">The Sun</a> <a href="/DCPcampaign/">Disabled Children's Partnership</a>
Rebecca O'Connor (@rebeccaoco) 's Twitter Profile Photo

Both my boys now diagnosed with post covid PANDAS. Explained to us as: covid created a hole in the blood brain barrier - strep from blood enters brain, autoantibodies attack brain. My eldest is 15 months past infection and only just diagnosed (privately). Healthcare is failing

Anne Marie 💜 (@annesmithmcc) 's Twitter Profile Photo

Kirstie Allsopp Kirstie, have you considered the FACT that millions of ppl are struggling with chronic health conditions CAUSED by Covid infections? And that many ppl DO NOT WANT to go into unmitigated office spaces to be constantly reinfected during an ongoing pandemic (World Health Organization (WHO))? #CleanTheAir

Rachel Gross, MD, MS (@rachelgrossmd) 's Twitter Profile Photo

Millions of children are living with #LongCOVID. Their symptoms disrupt memory, energy, mood, and development, keeping them out of school, sidelined from friendships, and left without answers. Join us for #PediatricLongCOVIDAwareness Week. longcovidfamilies.org/advocacy/ped...

Erin M (@erinapn1) 's Twitter Profile Photo

I can point to tests that show the profound physiological nature of my child’s illness. So could the clinicians who tried to take her away from us. But still they tried, at great cost to my daughter, and our family. We are a pattern, not an anomaly. There is unthinkable

Rebecca O'Connor (@rebeccaoco) 's Twitter Profile Photo

Really need to hold this woman, who lost her child to ME, as she speaks truth to the nation. She literally has nothing else to lose and is speaking only to help others

Arthur (@unreal_arthur) 's Twitter Profile Photo

Sarah Boothby, “Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed…”

Sarah Boothby, “Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed…”