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Rare Patient Voice
@rarepatientvoic
We help clients find rare and non-rare disease patients and caregivers for studies, and connect patients and caregivers with paid research opportunities.
ID:2189258191
https://www.rarepatientvoice.com/ 12-11-2013 00:06:40
1,8K Tweets
1,9K Followers
3,5K Following
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Our latest #WeeklyWarrior is Rachel, whose life has been impacted by #narcolepsy with cataplexy. She is determined to raise awareness including accurate portrayals of this condition.
#PatientAdvocate #SleepDisorders
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The Quirk's Media #MRX Event in London gathers client-side researchers & vendors, featuring concurrent tracks of 30-minute sessions on all aspects of marketing research. Visit us for how we can connect you with patients & family caregivers for research studies.
thequirksevent.com/london-2024/
![Rare Patient Voice (@rarepatientvoic) on Twitter photo 2024-05-02 14:26:50 The @QuirksMR Event in London gathers client-side researchers & vendors, featuring concurrent tracks of 30-minute sessions on all aspects of marketing research. Visit us for how we can connect you with patients & family caregivers for research studies. thequirksevent.com/london-2024/ The @QuirksMR Event in London gathers client-side researchers & vendors, featuring concurrent tracks of 30-minute sessions on all aspects of marketing research. Visit us for how we can connect you with patients & family caregivers for research studies. thequirksevent.com/london-2024/](https://pbs.twimg.com/media/GMlJmJvWkAEmhKi.jpg)
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Congratulations to the winner of our #WODC raffle, Michele Herndon of the Undiagnosed Diseases Network Foundation (UDNF)!
#conference #raffle #undiagnosed
![Rare Patient Voice (@rarepatientvoic) on Twitter photo 2024-04-30 21:07:35 Congratulations to the winner of our #WODC raffle, Michele Herndon of the @UDNForg! #conference #raffle #undiagnosed Congratulations to the winner of our #WODC raffle, Michele Herndon of the @UDNForg! #conference #raffle #undiagnosed](https://pbs.twimg.com/media/GMcSJBZX0AA42ub.jpg)
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Rare Patient Voice is very proud to sponsor the Researcher of the Year category for the @Quirks 2024 Marketing Research and Insight Excellence Awards! Nomination portal opens today.
#MRX #MarketResearch #insights
![Rare Patient Voice (@rarepatientvoic) on Twitter photo 2024-04-22 13:32:47 @rarepatientvoic is very proud to sponsor the Researcher of the Year category for the @Quirks 2024 Marketing Research and Insight Excellence Awards! Nomination portal opens today. #MRX #MarketResearch #insights @rarepatientvoic is very proud to sponsor the Researcher of the Year category for the @Quirks 2024 Marketing Research and Insight Excellence Awards! Nomination portal opens today. #MRX #MarketResearch #insights](https://pbs.twimg.com/media/GLxdUt7XMAARhky.jpg)
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The WODC USA 2024 is in Boston next week! Don't forget to use our special discount code EXH50 for 50% off your pass! Put Rare Patient Voice on your exhibit hall agenda - visit us in booth #431 &enter to win a $100 Amazon gift card!
terrapinn.com/conference/wor…
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Read some exciting news about the Rare Patient Voice Field Operations Team!
rarepatientvoice.com/congratulation…
#promotions #TeamWork #success
![Rare Patient Voice (@rarepatientvoic) on Twitter photo 2024-03-22 14:24:28 Read some exciting news about the @rarepatientvoic Field Operations Team! rarepatientvoice.com/congratulation… #promotions #TeamWork #success Read some exciting news about the @rarepatientvoic Field Operations Team! rarepatientvoice.com/congratulation… #promotions #TeamWork #success](https://pbs.twimg.com/media/GJR_3kOWcAEGoSr.jpg)
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RPV will be at PAP in Philly! Visit the Rare Patient Voice booth and enter to win a $100 Amazon gift card!
![Rare Patient Voice (@rarepatientvoic) on Twitter photo 2024-03-19 15:22:24 RPV will be at PAP in Philly! Visit the @rarepatientvoic booth and enter to win a $100 Amazon gift card! RPV will be at PAP in Philly! Visit the @rarepatientvoic booth and enter to win a $100 Amazon gift card!](https://pbs.twimg.com/media/GJCwXOeWUAA_T24.jpg)
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Helping connect clients with rare & non-rare disease patients & family caregivers eager to share their opinions & experiences through research participation is what we do. Visit our website for thoughts from some RPV community members on participating: rarepatientvoice.com/for-patients/t…