Our latest #WeeklyWarrior is Amy, a passionate patient advocate, public speaker, program developer, & educator. Amy was diagnosed with Systemic Scleroderma at the age of 19. Read more of Amy's story here:
rarepatientvoice.com/weekly-warrior…
#scleroderma #PatientAdvocate#PatientStory
Our latest #WeeklyWarrior is Keyla, a 38 year-old living with Crohn's disease & other chronic conditions & care partner to a 13 year-old with ulcerative colitis. Read her story here: rarepatientvoice.com/weekly-warrior…
#Crohns #ChronicIllness #PatientStory
Tyesha is our latest #WeeklyWarrior.
"I have Spinal Muscular Atrophy Type 3. I was diagnosed at 28 years old after having some weakness. I could no longer walk without assistance so I got a rollator walker at the age of 41. I am on a gene therapy medicine called Eversdi."
Kait from Monterey, CA is our latest #WeeklyWarrior. She lives with Miserable malalignment syndrome (MMS), a rare condition that can cause pain and discomfort in the joints.
#PatientStory #surgery #ChronicPain
Vanessa from Austin, TX is our latest #WeeklyWarrior. Previously a physically active person, she has found new outlets for her creativity & is now a dedicated
#PatientAdvocate.
#ChronicIllness #DynamicDisabilities
Special shoutout to Farbs aka Nomess! You have been selected as our Weekly Warrior. Thank you for your hard work and dedication to the LFGO community 👏🥇
#WeeklyWarrior
Our latest #WeeklyWarrior is Sarah, mom and caregiver to her 11 year-old daughter living with Wiedemann-Steiner syndrome.
#RareDisease #GeneticCondition #FamilyCaregiver
Our latest #WeeklyWarrior is Brandee, who lives with #VonWillebrandDisease, a rare blood clotting disorder. She
Shares her story here.
#PatientAdvocate #BloodDisorders #RareDisease
Michelle is our latest #WeeklyWarrior. She began her chronic illness journey in 2012 at age 18 and was diagnosed with hypermobile Ehlers-Danlos syndrome, a genetic connective tissue disorder. She shares her story here.
#EDS #spoonie #PatientAdvocate
Brittany is our latest #WeeklyWarrior. After years of countless scans, surgeries, medical appointments, & the emotions that come with them, she’s here to talk about her #melanoma journey & the power of sharing your voice as a patient.
#PatientAdvocate #SkinCancer #Strength
Our latest #WeeklyWarrior is Rachel, whose life has been impacted by #narcolepsy with cataplexy. She is determined to raise awareness including accurate portrayals of this condition.
#PatientAdvocate #SleepDisorders
Your weekly dose of Saiyan Ru is here! 🌌🔥 Let's embark on another week of epic journeys and unforgettable moments. #WeeklyWarrior #SaiyanRu #EpicJourneys #UnforgettableMoments
Our #WeeklyWarrior is Mackenzie, caregiver to her son Josiah. He lives with Familial cold autoinflammatory syndrome, a rare genetic disorder characterized by episodes of rash, fever, and joint pain following exposure to cold.
Jamie is our latest #WeeklyWarrior. A mom of two living with #lupus, she shares about her invisible illness to make others feel supported in their own health journeys.
#PatientAdvocate #inspiring
Sunday Serenity with Saiyan Ru: Let's unwind and recharge for the week ahead with a splash of creativity and the calm strength of our favorite warrior. 🌅🔥 #SundayVibes #SaiyanRu #ArtInspiration #RechargeWithArt #WeeklyWarrior