Our latest #WeeklyWarrior is Rachel, whose life has been impacted by #narcolepsy with cataplexy. She is determined to raise awareness including accurate portrayals of this condition.
#PatientAdvocate #SleepDisorders

The Quirk's Media #MRX Event in London gathers client-side researchers & vendors, featuring concurrent tracks of 30-minute sessions on all aspects of marketing research. Visit us for how we can connect you with patients & family caregivers for research studies.
thequirksevent.com/london-2024/

Congratulations to the winner of our #WODC raffle, Michele Herndon of the Undiagnosed Diseases Network Foundation (UDNF)!
#conference #raffle #undiagnosed

Visit us next week in booth #700 to learn how RPV can connect you with patients and family caregivers for research studies! Learn more about #ISPOR and register now:
ispor.org/conferences-ed…

Rare Patient Voice is very proud to sponsor the Researcher of the Year category for the @Quirks 2024 Marketing Research and Insight Excellence Awards! Nomination portal opens today.
#MRX #MarketResearch #insights

Rich, our latest #WeeklyWarrior , lives with primary progressive multiple sclerosis. He shares his story here.
#PPMS #patient #MS

Meet our team! Molly Mackey is part of our Field Operations group. Read more about her below.
rarepatientvoice.com/meet-our-team-…

RPV Founder and President often likes to express himself through song! Today he shares a new rendition of an old ditty, now about the Rare Patient Voice experience.

youtu.be/wlPGwapQeKQ

The WODC USA 2024 is in Boston next week! Don't forget to use our special discount code EXH50 for 50% off your pass! Put Rare Patient Voice on your exhibit hall agenda - visit us in booth #431 &enter to win a $100 Amazon gift card!
terrapinn.com/conference/wor…

We’re exhibiting next week at IIEX North America 2024, the gathering for professionals  wanting to grow their businesses & careers in the research, analytics, and insights industry. Join us in Austin-use the RPV code to save 25% off registration
greenbook.org/events/iiex-no…

Just announced: RPV is the winner of the Global Health & Pharma Biotechnology Awards - Patient & Caregiver Advocacy Platform of the Year 2024! Read more about this honor:
ghp-news.com/ghp-unveils-th…
#advocacy   #biotechnology   #award

The RPV community of 145,000+ includes family caregivers as well as patients. Zack cares for his father, who was diagnosed with mild cognitive impairment (MCI) in 2022. 
#FamilyCaregivers   #patients   #opinions
youtu.be/TB39xTSDYQU?si…

We're stretching out and lacing up our sneakers again! RPV is a sponsor of the Marketing Research Education Foundation’s fourth annual Race Around the World for Education, which kicks off in just over three weeks. Read more:
runsignup.com/Race/MN/SaintP…

London calling! RPV will be at the @Quirk's Media London event, May 8-9! Use the code Q20 for a 20% discount off registration at thequirksevent.com/london-2024/re…
#MarketResearch #MRX

We're getting ready for IIEX North America 2024, the landmark gathering for professionals who want to grow their businesses and careers in the research, analytics, & insights industry! Join us in Austin- use the RPV code to save 25% off: RAREPATIENTVOICE25.
#insights #conference

Attending the MAPS 2024 Americas Annual Meeting? It's the largest global gathering of Medical Affairs professionals! Stop by the RPV booth to hear how we can connect you with the patients you need, and enter to win a $100 Amazon gift card raffle!
#MAPS2024

Read some exciting news about the Rare Patient Voice Field Operations Team! 
rarepatientvoice.com/congratulation…
#promotions #TeamWork #success

Our staffer in the spotlight is Jessica Bolden, who  joined RPV as a Business Development Associate in 2022. This role allows her to join her customer service skills with her previous administrative & sales background.
rarepatientvoice.com/meet-our-team-…

RPV will be at PAP in Philly! Visit the Rare Patient Voice booth and enter to win a $100 Amazon gift card!

Helping connect clients with rare & non-rare disease patients & family caregivers eager to share their opinions & experiences through research participation is what we do. Visit our website for thoughts from some RPV community members on participating: rarepatientvoice.com/for-patients/t…