Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
ID: 510484741
http://www.rarebeacon.org 01-03-2012 16:28:52
22,22K Tweet
12,12K Followers
10,10K Following
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Mike D
@n0madd
Global nomad. Tech/health/bio-sciences/rare disease focus. 20+ years abroad. Believer in making the world better.
Unique
@unique_charity
Unique supports & informs anyone born w/a rare chromosome or gene disorder, their families & carers. Eurordis Patient Organisation Award winner. rarechromo.org
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Hetty Brant Alba
@hetty72
Exhausted unpaid carer single parent 3 autistic sons also @dcaarchives
Global Genes
@globalgenes
Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
SWAN UK (syndromes without a name)
@swan_uk
SWAN UK (syndromes without a name) is run by @GeneticAll_UK offering support and information to families of children with undiagnosed conditions. #undiagnosed
Genetic Alliance UK
@geneticall_uk
National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign Rare Disease UK and support network @SWAN_UK.
Ivan Mawanda
@ivanmawanda
#Author for ivanmawanda.com/think-you-can, #Creative, #consultant, #Systemanalyst
Saeed Anwar
@saeedanuj
Bengali SF writer | Trynna damage my head permanently for genetic disorders & therapies @UAlberta | Sometimes overcaffeinated | Retweets ≠ attestation | 🇧🇩
macharia c
@macharia_c
Genomics England
@genomicsengland
We’re working to enable faster and deeper genomic research, to bring genomic healthcare to all who need it.
Genomics Education
@genomicsedu
NHS England's Genomics Education Programme. Providing knowledge, skills and experience in #genomics #NHSgms #genomes100K #NHS #GenomicsConversation
Medics4RareDiseases
@m4rarediseases
Medics4RareDiseases is driving an attitude change towards rare diseases amongst medical students and doctors in training #DareToThinkRare
Jen Kammerer
@touringgirl
PharmD research informaticist; dog owner & reformed cat fan; avid outdoor enthusiast; yurt dweller; passionate about faith, family, community, & health tech!
Cambridge Rare Disease Network (CamRARE)
@camraredisease
Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam m.youtube.com/watch?v=49D6CW…
Genetics in Medicine
@gimjournal
Genetics in Medicine, an official journal of @TheACMG Site use policy: bit.ly/gimconduct. Cover Photo "Sharing My Produce" by S.A.M. Steiner, MA, IMH-E
RDI
@rarediseasesint
Rare Diseases International - the global alliance of rare disease patients & families
Patient Worthy
@patientworthy
We're a resource for engaging, informative content and rare patient news, well done.
James Fasham
@jamesfasham
🧬👨⚕️Genetics doctor & PhD 💻 💬 Social media: @ESHGsociety @JMG_BMJ and @BritSocGenMed. 🤖 @DiseaseGenes bot creator (#Genetics #Genomics #RareDisease)
Madison Bowe
@madloveinsp
29 year old variety streamer living with a Rare Disease called Stiff Person Syndrome. Mirage Main on Apex Legends #SOT Twitch.tv/madlove_inspir…
Madison
@madi_james1
MA Newspaper Journalism @CityUniLondon. Words for @MarlboroNews, @EpigramPaper, @Empowordjournos, @GRVMedia, @HCBristol, @eurordis. ⭒ @keaneofficial aficionado.
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Stemnovate Limited
@stemnovatel
Your drug discovery partner providing platform for targeted drug development
ERDERA
@erdera_org
#ERDERA- The European Rare Diseases Research Alliance
ASY SWIFT
@asyswift
M Waseem
@mwaseem28963071
online earnings without investment
KENNEDY COALITION
@rallyroundrfkjr
Mr. @RobertKennedyJr is a beacon for all the independent-minded Americans who choose to associate and make this coalition pact a reality. —@RandellHynes
Ariwaro Ikegima
@ariwaroikegima
I am an open book
David Adeleke
@davidad69489610
Abby Turnwald (she/her)
@pedsgcabby
Pediatric genetic counselor, neurogenetics, advocate for the rare disease community, let’s talk about sibling health
Raihan Amin
@raihana29411002
My heart is always for you, whenever I think about you, I want to be with you for a long time.🫠
Shadrake Niyonita
@sniyonita
I’m Deaf my phone number is +61 405983547
BobVWaal
@robertvanderw17
MegK
@drmugekeskin
Assoc. Professor, Endocrinology, Ankara Bilkent City Hospital
medisentio, diagnostic accuracy
@medisentio1
M.D. / internal medecine / medisentio.com author / Euro-optimist/ drone enthusiast / H.sapiens like you
Malik Ilyas
@malikil9662993
Pakistan Zinda Bad
Mehdi gh🍌
@mehdigh03485708
Jo
@cross460688
i am terribly sorry if you don't like my harsh honesty. But I don't like your sugar-coated bullshit!
Cara
@caraearth
Interessiert an Natur,Art,Sience und Politik.Lügner,Korruption und Kriminelle sind mir zuwider. Fan vom lebenslangen Lernen,Frieden und Mutter Erde. share≠like
Delia Douglas
@de60013delia
Fayzur Rohman
@fayzurrohm12851
ILaura H Parhusip
@ilaurahannap
Dr Imada Laura H P is a medical doctor with 25 years work experiences with mostly muscular dystrophy social work. My Virtual Hospital via telp 62217271766.tx
CytoCync
@cytocyncbiz
CytoCync ™ offers a simplified approach to Health Software Services. #HealthTech #BioTech #MedTech #PharmaTech
Goddess
@goddess360213
RABIU ALIYU
@rabiualiyu27535
Waziri Bamaiyi
@bamaiyiwaz749
Sajibe Chakma
@chakmasaji74376
Antonio Moreno López
@novotnymic81734
Último análisis de bolsa española, 300% de beneficios en 3 días Únete para aprender gratis:chat.whatsapp.com/BEu3jr2xnrqDYo…
ALFRED SAMUEL
@engr_opeyemi_12
I am like Mount Zion that cannot be moved
Ye Min Lwin
@yeminlwin446861
GO RARE
@goraredisease
Rare Disease Advocacy group committed to driving bold change for patients worldwide. Join our herd if you’re tired of the way things are. The time is now.
Lama 🍒Sunita
@sunitalama58620
Arunabha Dey
@bigfatgeologist
dilip Shah
@dilipshah163771
Rare Disease Research Network (RDRN)
@the_rdrn
Building a rare disease research network for a patient-led approach
MD JAHANGIR ALAM
@mdjibon7212
VintageGreen72
@woodmeilejeune
Medical Researcher & Advocate, Mom to a 16-year-old rescue 🐶, Civil rights fighter, Sports fanatic — love & kindness ❤️ wins 🙏🏻💕🫶🏻| Cal Poly SLO Alum
McDoanea
@mcdoaneaplp6jp
Keanu
@maria5223870412
This is a fan page dedicated to the talented Keanu Reeves and it's not affiliated with the actor in any way.
Solace Nutrition
@solacenutrition
Safe, reliable, and effective nutrition formulas that help individuals with unique metabolic nutritional needs and chronic diseases.
Taylor Kane
@rarelikeher
Patient engagement consultant, #raredisease advocate, author, speaker, founder @remember_girls, and more!
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
The Arithmetic of Compassion
@aofcompassion
The Arithmetic of Compassion is a nonprofit group of researchers dedicated to raising awareness of psychological barriers to compassion.
Sreyanshree Sahoo
@sreyanshree
•Studying B.Pharm at Institute Of Pharmacy & Technology Salipur, Cuttack •Completed D.Pharma at Institute Of Pharmacy & Technology Salipur, Cuttack
Atul Kumar 🌎
@atulsearth
Charity Fundraising Training & Coaching. Founder: Environmental Thinking Institute (ETI). Author & Podcast: Alien Places. Actor: occasionally.
NHS Genomic Medicine Service
@nhsgms
Information for and from the NHS Genomic Medicine Service 🧬 #Genomics. england.nhs.uk/publication/ac…
MCI
@mci37158618