Rare Disease Clinical Trial Network, Ireland
@rare_trial
HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
ID: 1625209531012681738
http://rarediseaseresearch.ie 13-02-2023 19:05:35
858 Tweet
880 Followers
1,1K Following
Catherine Whittinghill Illingworth
@cwillingworth
Dantista | PhD Student @UCLA | "Sharpen here, reader, your eyes to the truth, for the veil is now surely so fine that passing within is easy." Purg. 8.19-21
Dr Roisin McMackin
@roisintcdneuro
Researching MND and HD with EEG+TMS. Email [email protected] (terrible at twitter DMs!) Asst. Prof. of Physiology@TCD All views my own
Sinéad McGlacken-Byrne
@smcgb
Paediatric endocrinologist & clinician-scientist @GreatOrmondSt @UCLChildHealth @Cambridge_Uni
Mike Masterson
@lillyvonschtupp
Procrastinator extraordinaire! Predominantly retweets. Knows a little about disability hopefully.
A-T Society
@atsociety
The A-T Society supports people living with the disabling and life-limiting condition ataxia-telangiectasia and funds research to find a cure.
BTF Thyroid
@britishthyroid
We're a patient organisation dedicated to providing evidence-based information & support, and funding research, to help people live better with thyroid disease.
Séimí Ó Deóraidhín 🇮🇪
@jamiedorrian1
Innealtóir i Sláinte Phoiblí if you see me post an indirect assume its for you
@RawsthorneMat
@rawsthornemat
#MentalHealth Service User (&) Researcher #DataScience #PeerSupport #DigitalHealth #RFT #depression #ADHD bsky.app/profile/rawsth…
Çiğdem Emirza Cilbir
@cgdemrza
Physiotherapist, PhD
Kaf.Vod
@kafuionline
Public Health Advocate -Clinical Research Management - Natural medicine enthusiast - Neglected Tropical Diseases - Afrocentric
Roisin Dolan
@roshdolan
Consultant Plastic & Reconstructive Surgeon @irishhandsurg
David Smadja 🎗️🧡
@davidmsmadja
Professeur d' Hématologie @hopitalpompidou @univ_paris_cite Team Director "Endotheliopathy and hemostasis disorders" @parcc_inserm VP @asso_resiste
JWMDRC
@jwmdrc
John Walton Muscular Dystrophy Research Centre, Translational and Clinical Research Institute, Newcastle University #dmd #sma #lgmd #fshd #dm1 #gne #col6 #cnm
Sean Ennis
@drseanennis
Geneticist of 45 years’ experience. Specialist in rare diseases, genomic medicine, population genetics and more!
Evidence Synthesis Ireland
@evidsynirl
Building #EvidenceSynthesis capacity | @UniOfGalway | @CochraneIreland | @HRBIreland & #HSCRandD Newsletter eepurl.com/dGKBmD @evidsynirl.bsky.social
FionaMHamilton
@drfionahamilton
clinical psychologist & neuropsychologist, work with young people with disabilities. opinions my own. @drfionahamiltonpsy.bsky
Diana Marinello
@dianamarinello
badass photo ninja
@badassfotoninja
award winning news photojournalist & experiencer w/ passion 4 ufo, punkrock & guns. Full Heterochromia & webbed toes. i also pet stray cats & get bit often
UCD Health Affairs
@healthucd
We work with UCD health science schools to provide a formal channel for cooperation & collaboration between clinial partners & UCD #ucdhealthaffairs
Feargal Helly
@hellyfeargal
Kilkenny Native, Medical Doctor Dublin.
Hailey Carroll
@haileykcarroll
Sarcoma Research Fellow @svuh and @ucddublin
PK
@pyehk
Endocrinologist & Physician, MD, FRCPI. Leinster rep/Communication Officer @IrishEndocrine Views are my own. RTs are not endorsements.
Michelle Maher
@michellemaher_
Endocrinology SpR | NUI Galway graduate | Runner | Sea-dipper
Tharun Kandhuri
@k_tharun18
Keara
@kearbeara
Mother | #Spinabifida , #Scoliosis , #Disability rights♿️ | Current affairs🌎 | Sports⚽️ | Travel✈️ | Arts🎨 | Full of beans ☕️💁🏼♀️
Aslihan Cakmak
@cakmakaslihan
Lizzie Dunn
@lizziieedunn
ipek köroğlu
@ipekkrolu370783
Jacqueline
@jacquel88399485
Real Sandra
@sandramo1___
(~‾▿‾)~
CytoCync
@cytocyncbiz
CytoCync ™ offers a simplified approach to Health Software Services. #HealthTech #BioTech #MedTech #PharmaTech
Pilly
@pillyeleven
Charlotte
@c_eckstein62
Tathirt
@tathirtzvbi7
Tectonic Platforms
@tectonicintel
Clinical Trial Reliability Factors Applied to Investment Decisions
NewMexicoRareDisease
@nmraredisease
🦓 Digital source for New Mexico Rare Disease Community.
Sewdeesh
@sewdeeshphtb
Lirsarez
@lirsarezmgs
Ruchi Pratihar
@ruchi_291190
Medical Affairs IQ
@medaffairsiq
Surviving Medical Affairs - one bad slide at a time. Best practices, real talk, and the latest in Med Affairs. Not legal/regulatory advice.
Penny Henry
@pennyhenry08
Unifora
@unifora_
Unifying Clinical Research and Tech | ClinTech Consulting. Book a free Introductory Assessment 👇👇👇
jon
@celiacjon
Moujahed Hana
@moujahedha
Rare's Medicine
@raresmedicine
Rare's Medicine – because "rare" is medicine. Making rare diseases common knowledge. #RareDisease | @ClaudioP_MD
Padiporn Vasinanukorn Limumpornpetch
@drpadiporn
Endocrinologist, and proud mom of two lovely boys
Anusuiya Bora
@bora_anusuiya08
PhD Bioinformatics @Deakin | Precision Medicine | Biotechnology
SPR
@socpedresearch
Society for Pediatric Research. Our mission: Creating a network of multidisciplinary researchers to improve child health. #pediatrics #pedresearch #SPR
Naomi
@naomi2001_01_01
Former Origins BA Chanel Beauty Analyst/Patients participating in AMED IRUD/Stroke survivor/Violin/Shaku Jikyo 釈慈敬/臨床美術士/社会的処方 リンクワーカー学び中 #確かさの階段 #宇宙でリハビリ #奇跡の脳
ANZ Vasculitis Society, '26 Vasculitis Wkshop host
@anzvasc
The ANZ Vasculitis Society, for better treatment of #vasculitis by research/education/advocacy. Host, 22nd Int Vasculitis Workshop, Melbourne Feb 21-26 2026