ProjectCASK (@projectcask) 's Twitter Profile
ProjectCASK

@projectcask

An innovative rare disease non-profit driving breakthroughs in treatments and a cure for CASK gene disorders.

ID: 1688697043928141824

linkhttps://linktr.ee/ProjectCASK calendar_today07-08-2023 23:42:16

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ProjectCASK (@projectcask) 's Twitter Profile Photo

🎙️✨ The latest episode of [ The Roar ] is here! youtu.be/U07wVFxzkzM This episode, we’re diving into: + Rare Disease Day advocacy—thank you! + Research updates + The Ultra Rare Collection fundraiser @ultrararecollection + Federal budget cuts & advocacy for Medicaid