
Praxis Medicines
@praxismedicines
Praxis is translating genetic insights into the development of therapies for central nervous system disorders characterized by neuronal imbalance.
ID: 1114316732120862720
http://www.praxismedicines.com 05-04-2019 23:59:46
430 Tweet
523 Followers
311 Following

BBRFoundation
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Join the fight to cure #mentalillness. Since 1987 BBRF has awarded more than $462 million in #mentalhealth research grants worldwide. Give the gift of recovery:
NAMI Massachusetts
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Robert Shapiro
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doctor, advocate; tweets my own; retweet ≠ endorsement; tweet content ≠ medical advice; headachedoc.bsky.social
NAMI
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Ingo Helbig
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Child Neurologist, epilepsy genetics researcher, blogger
Epilepsy Foundation of America
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Kris Pierce
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Rare disease/disability advocate. Founder SCN2A Asia Pacific /Co-Founder of GETA Health Sector Patient/Consumer Engagement Victorian Women Honour Roll 2022
National Institute of Mental Health (NIMH)
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Mental Health America
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Prof Ingrid Scheffer
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Laureate Professor of Paediatric Neurology at @unimelb, @theflorey, @austin_health, @RCHMelbourne. Research epilepsy, classn, genetics, speech & mentorship
Neurology Journal
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Neurology is the most widely read and highly cited peer-reviewed neurology journal. It is the medical journal for the American Academy of Neurology.
Christian Rubio
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Dravet Syndrome Foundation
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The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.
National Organization for Rare Disorders (NORD)
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National Organization for Rare Disorders (#NORD) is the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay.
Epilepsy Society
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Transforming lives through advocacy, research & care 💜[email protected] 01494 601 400📞Info- our website
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Biotech reporter @statnews. Dog ❤️er. Polk Award winner. #COYS. Said one analyst: The likes of Adam Feuerstein attack viciously. On Signal: stataf.54
The American Brain Coalition
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Nonprofit organization, seeks to advance the understanding of the functions of the brain, and to reduce the burden of brain disorders through public advocacy.
Parkinson's Foundation
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The Parkinson's Foundation makes life better for people with Parkinson's through expert care and research. Free Helpline: 1-800-4PD-INFO (473-4636)
Peter Halliburton
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MDS
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MDS is a professional society of clinicians and other healthcare professionals interested in movement disorders. #movedisorder @MDJ_Journal | @MDCP_Journal
U.S. Pain Foundation
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Facial Pain Association
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Non-profit serving people affected by neuropathic face pain. #facialpain #trigeminalneuralgia #facepain
CURE Epilepsy
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CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 18 countries to date.
Neurocritical Care Society
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Multidisciplinary organization whose mission is to improve outcomes for patients with critical neurological illnesses. #NCS2025 @NeurocritCareJ @CuringComa
NINDS
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David Schull
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President of Russo Partners, a communications firm that works with innovators in healthcare and technology — and the home of the Sports-Health Alliance
Ana Mingorance
@cnsdrughunter
🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others. @cnsdrughunter.bsky.social
American Epilepsy Society
@amepilepsysoc
We support research and education for professionals working towards a world without epilepsy. RTs ≠ endorsements. Also @amepilepsysoc.bsky.social.
American Chronic Pain Association
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Our Mission is to facilitate peer support, education, hope, and motivation for individuals living with pain and those treating pain conditions.
American Brain Foundation
@abfbrain
We bring researchers and donors together to cure brain diseases and disorders. #CureOneCureMany 🧵 americanbrainfoundation 🦋 abfbrain.bsky.social
Child Neurology Foundation
@child_neurology
A national non-profit working through advocacy, research and education to ensure optimal care for children living w/neurologic conditions #ChildNeurology
Thomas Berk, MD FAHS
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Neurologist and Headache Specialist Medical Director of @neurahealthco Adjunct Professor @JeffHeadacheCtr
MyEpilepsyTeam
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The social network for people living with #epilepsy. Join our 50,000 members today: MyEpilepsyTeam.com #epileptic #seizures #SUDEP #epilepsyawareness
WorkBoard
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The leading Strategy Execution Platform powering the digital operating rhythm for companies around the globe. #OKRs
Journal of Clinical Neurophysiology
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Official Journal of the @ACNS_org | Publishing & Disseminating High Quality #ClinNeurophys Research Worldwide | RTs ≠ Endorsement |
International SCN8A Alliance
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The International SCN8A Alliance is working collaboratively with families, clinicians and researchers to advance the understanding of and treatments for SCN8A.
Aayushi Pratap
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Business Reporter @ C&EN Formerly@Forbes@GenomeWeb@Hindustan Times ||@ColumbiaJourn @PharmaCorrespondent @eurekalert fellow||
FamilieSCN2A
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Our vision is to find effective treatments and a cure for SCN2A disorders.
WorldMentalHealthDay
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Uniting the world on October 10th for the official #WorldMentalHealthDay. Join us to promote awareness of #MentalHealth in people all over the world.
thestarr
@starr_coalition
Creating collaboration between Stakeholders in Advocacy, Treatment and Brain Health Research.
SynGAP Research Fund (SRF)
@curesyngap1
#SYNGAP1 🧬 = 🧠NDD DEE causing #Epilepsy #Autism #ID #Sleep #GI. Incidence = 6️⃣.1️⃣/💯k ICD10 syngap.fund/F78A1 syngap.fund/10 🎙
Indigenous Circle of Wellness
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Culturally Inclusive & Holistic Counseling Services |In-Office & Tele-therapy options | Native Womxn Owned Group Private Practice
Elli Brimble
@idreamofgenes
Neurogenetics Counselor now @ciitizen @invitae @foxg1research
CureGRIN
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CureGRIN is a parent-run foundation committed to improving the lives of people living with GRI disorder. #RareAsOne #GRIdisorder #raredisease
SCN2A Europe
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Fighting for a SCN2A cure - acting locally in Europe, networking globally around the world
SCN2A Families UK
@scn2au
Here to support families affected by SCN2A related conditions in the UK
National Organization for Tardive Dyskinesia
@nationaltardive
National Organization for Tardive Dyskinesia (NOTD) is the first and only national organization in the U.S. dedicated to those afflicted by tardive dyskinesia.
CACNA1A Foundation
@cacna1a
Nonprofit dedicated to a brighter future for those with CACNA1A variants. On a mission to fund life changing research while supporting families along the way.
Rare Epilepsy Network
@rareepilepsy
Rare Epilepsy Network (REN) is working with urgency to collaboratively improve outcomes of rare epilepsy patients & families via research and advocacy.
NAMI Advocacy
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Gov't relations arm of @NAMICommunicate. NAMI champions better care for all people affected by mental health conditions. This account is not monitored 24/7.
Yeji Jesse Lee | 이예지
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senior healthcare reporter @law360, formerly @businessinsider, @globeandmail I reach out at [email protected]
Movement Disorders Policy Coalition
@movedisorders
MDPC brings together advocacy groups, health care providers & patients to inform policy impacting patient-centered care for people with movement disorders.
The Notorious EEG (M. Scott Perry MD)
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Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Ciitizen
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CoalitionCHAMP
@coalitionchamp
CHAMP: Coalition for Headache and Migraine Patients: Bringing together patient orgs & curating info for people w/headache, migraine, & cluster diseases.
Gemma Carvill, PhD
@carvilllab
rare disease geneticist | epilepsy | epigenetics | iPSCs | mentor & genetics MedEd | tweets about science, lab fun & occasionally my tiny hooman