Paddy McEntegart
@pmcen09
ID: 64213364
09-08-2009 17:29:30
380 Tweet
107 Followers
860 Following
Promin Metabolics Are these available in Ireland??
An excellent talk by Bernadette Sheehan Gilroy, will really hit home to any family with a child affected by PKU, thank you for all your work and effort for the PKU Community.
Great news for the #RareDisease community and #PKU families across Ireland. Thank you #RAiNAllIreland Leo Varadkar Simon Harris TD
Today PKU Association IE celebrates #RareDiseaseDay2023 ‘Individually rare, collectively common’ We stand together with people and families within our community here in Ireland, throughout Europe and globally 🤝🏻 #RareDiseaseDay2023
Thank you for listening and sharing. I'm currently on maternity leave from The Irish Times but would love to know the answer, if anyone has looked into this since. Access to dietitians seems like a vital component of health and wealth being for most chronic conditions.