We are so excited!! If you like working with people, community outreach, and are interested in #RareDisease research, then maybe you'd like to join our team! We'll have another #PPI post coming soon. Email [email protected] with any questions.

You've got one week left to apply to Cambridge Rare Disease Network (CamRARE) to join our new rare disease public partnership as a #PPI Coordinator! This is 1 of 2 posts, part-time for 15mos in the first instance. Apply here, we'd love to hear from you!! linkedin.com/jobs/view/3642…

Newsletter time! Learn more about our new Cambridge Rare Disease Network (CamRARE) #RareDisease #NIHR partnership, perhaps apply for one of our new #PPI #CoPro roles, and get a quick update of two #PatientLed proposals! Lots of great stuff happening this year! mailchi.mp/0c16ca3f3217/p…

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Less than 1 week to apply for our #PPI #CoPro #RareDisease post! Join our team and work with the wonderful Cambridge Rare Disease Network (CamRARE) & rare disease community to delivery a new patient-led platform! Hybrid working, potential for 3.5 days/week, band 6 NHS. Apply! nhsjobs.com/job/UK/Cambrid…

Are you part of the UK #RareDisease community? Interested in creating a new, community-led research network with us & Cambridge Rare Disease Network (CamRARE)? Have a look at all the flexible ways to be involved & let us know you're interest by completing our online form: cambridge.eu.qualtrics.com/jfe/form/SV_2r…

We want to help the rare disease community deliver their own research projects & make it easier for them to find new partnerships. We've teamed up with Cambridge Rare Disease Network (CamRARE) & now need you! Learn more here: cambridge.eu.qualtrics.com//CP/File.php?F… Funded by an National Institute for Health and Care Research Public Partnership grant

Interested in #RareDisease? Help us improve research opportunities by creating a new community-led network! Learn more & register interest here: cambridge.eu.qualtrics.com/jfe/form/SV_2r… Please share widely so we can include lots of voices! Cambridge Rare Disease Network (CamRARE) Beacon for Rare Diseases NIHR Cambridge Biomedical Research Centre Rare Disease UK

Are you a rare disease leader, contributor, connector, promoter or enabler? Our NIHR funded project with PLRH supporting patient-led #RareDisease #research needs you! learn more bit.ly/RareResearchNe… ✔️apply to join cambridge.eu.qualtrics.com/jfe/form/SV_2r… 📣Please share widely!

NEW, FREE online webinar for anyone interested in learning more about health data research in #Cambridge. Hosted by the fantastic NIHR Cambridge Biomedical Research Centre team on 29 August. Sign up below!

Do you live with a rare condition? Interested in research? Share your thoughts & help design a new community-led #RareDisease #Research network with Cambridge Rare Disease Network (CamRARE)! cambridge.eu.qualtrics.com/jfe/form/SV_9n…

There's a LOT going on in the rare community, so we've extended this survey until 24 Sept! If you're affected by a #RareDisease, consider sharing your thoughts on research design & help shape a new community-led research platform! Cambridge Rare Disease Network (CamRARE) Beacon for Rare Diseases Genetic Alliance UK

Newsletter time! Check out our October report to learn more about our community-led #RareDisease research network, developed with Cambridge Rare Disease Network (CamRARE), as well as new details on our #NF1, #PittHopkins, and idiopathic hypersomnia #SleepDisorders projects! mailchi.mp/d41147bb1c26/p…

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So many great upcoming #PPI #Research events happening in #Cambridge! Join us at the latest NIHR Cambridge Biomedical Research Centre Public Open Evening to learn how research is making at difference in hospital care.

#Cambridge! Come visit us at this wonderful, public, FREE evening event to learn all about healthcare research. NIHR Cambridge Biomedical Research Centre

For #RareDiseaseDay 29 Feb join this #research webinar. Our MD Jo & the PLRH are talking about our @NIHRcommunity funded project to build a #RareDiseaseResearchNetwork platform to share patient led ideas, knowledge & to build partnerships 🎟️Bit.ly/RDDbrc

Do you live with idiopathic #hypersomnia? Our latest patient-led project is aiming to repurpose an existing drug as a new treatment for IH. If you are affected, please answer our anonymous survey & help design the study! Hypersomnia Fdn BritishSleepSociety cambridge.eu.qualtrics.com/jfe/form/SV_6f…