PiNSA - Primary Immunodeficiency Network SA
@pinsa_za
PiNSA is a NPO, patient driven association dealing with Primary Immunodeficiencies (PID) to ensure that PID people in SA receive optimal treatment and support
ID: 335915302
http://www.pinsa.org.za 15-07-2011 13:09:17
582 Tweet
318 Followers
836 Following
Albert Arnó
@alarno
I used to be a MD, now #ehealth & #ai man. Father of 2. Passionate about technology. Maybe geek. Genetically optimistic!!!!!! linkedin.com/in/alarno
Cleveland Clinic
@clevelandclinic
Your source for health news, tips and information from a nationally ranked and globally recognized hospital.
Hector Guidos Morales
@hectorguidos
Immunologist and Allergologist, PID, allergies, genetic diagnosis. NITAG-SLV. Member of ASAAIC, ASOPEDES, COLMED, AAAAI, ACAAI, EAACI, CIS, ESID, LASID y ALACI
Yoni - יוני (and Rebecca too)
@primary_immune
Human. Jew. Israeli. הודו לה' כי טוב כי לעולם חסדו Closed on Shabbat
ALIVE with Liliane
@aliveliliane
At ALIVE, our CEO Liliane is dedicated to empowering 1 million women worldwide with boundless positivity, endless possibilities, and unwavering joy, igniting th
Eric Topol
@erictopol
physician-scientist, author of SUPER AGERS tinyurl.com/3w76us9a and Ground Truths: erictopol.substack.com
Martine Pergent
@martinepergent
Patient advocate: IPOPI president, IRIS cofounder, ERN-RITA - Consultant: Strategic communication, sprint facilitator Views are mine.
Júlia Bier
@bier_julia
Views are my own
Journal of Allergy and Clinical Immunology
@jacionline
The Journal of Allergy and Clinical Immunology is an official publication of the American Academy of Allergy, Asthma, and Immunology.
Immune Deficiency Foundation
@immunedeficienc
The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency.
Dr Mariolina Salio 😷💙 💜 she/her
@maosalio
Experimental Immunologist, unconventional T cell lover. Swimmer. Tweets my own.
Bio21 Institute
@bio21institute
Bio21 Institute
RareShare
@rareshareorg
RareShare is a social platform building communities for patients, families, and healthcare professionals affected by rare medical disorders.
Boaz Palterer
@palterer
MD PhD | Former Clinical Immunologist @AOUCareggi | PGY-2 Peds Resident @TheBCRP @BostonChildrens @harvardmed | Exploring #Autoimmunity and #Immunodeficiency
Cecilia Poli
@cecipolih
Happy mom of 4. Pediatric immunologist and rheumatologist. Researcher in inborn errors of immunity/autoinflammatory diseases/Rare Disease. @UDD_FM #PIDD #JMF
Davide Firinu
@davidefiri
Associate Professor of Internal Medicine, University of Cagliari #autoimmunity #rarediseases @univca
Dr Emily Edwards
@emmye1984
English Immunologist, Group Leader - Primary Immunodeficiencies Group at Monash Uni, #PrimaryImmunodeficiencies Views are my own.
MyPOPI
@mypopioficial
Información, humor, tips y más sorpresas relacionadas con los perros
IPOPI
@ipopi_info
IPOPI is the association of Primary Immunodeficiency national patient organisations. Improving awareness, access to early diagnosis and optimal treatments.
Kim Good-Jacobson
@kimljacobson
Immunologist; Head of B cells, Antibody, Memory lab. Also on 🦋 Non-lab life alias: Kim Jacobson. Views my own.
Jeffrey Modell Foundation (JMF)
@info4pi
JMF is a global nonprofit dedicated to #PrimaryImmunodeficiency Advocacy, Research, Education, Newborn Screening & Genetic Sequencing to #CurePI worldwide 🌎
Elissa Deenick
@elissadeenick
Immunologist, living and working in Sydney. Scientia A/Prof @UNSW @GarvanInstitute
Vanessa Carter AMR 🇬🇧🇿🇦
@vcarteramr
#AntimicrobialResistance Patient Advocate • Chair @WHO Taskforce of AMR Survivors • @AfricaCDC Civil Society Champion • Founder of @theAMRnarrative
AAMRI
@aamri_aus
The Association of Australian Medical Research Institutes (AAMRI) is the voice and peak body representing medical research institutes across Australia.
Nizar Mahlaoui M.D., M.P.H., Ph.D.
@mahlaouinizar
#PrimaryImmunoDeficiencies #PID #ePIDemiology @CEREDIH @SCETIDE #NECKER & #Founder #Coordinator @LaSuiteNecker #Transition #AYA #RareDiseases #PrixGalien2019
ESID
@esidsociety
European Society for #Immunodeficiencies | PID | Diagnosis-Treatment-Management | Foster Research-Cooperation-Education | Join us at #interplay2025 Meeting!
Susanne Larsson
@sossiq82
Has Primary immunodeficiency, SLE, Systemic Lupus Erythematosus and MMN Multifokal Motor Neuropathy
Stuart Tangye
@stutangye
I work and live in Sydney, trying to unravel the complexities of the immune system. I also quite like going to the beach! Views are definitely my own!
Mickael ESSOUMA
@minkonda26
M.D./S.D.I.M/ELU HOMOSEXUEL Psaume 23:5
Megan Guros
@gurosmegan
Biotech Student, CVID Patient, Sports and Music Enthusiast
Casanova Lab
@casanova_lab
We're a research lab at Rockefeller University (NY) and Necker Hospital (Paris) studying human genetic and immunological determinants of infectious diseases.
BogunovicLab
@bogunoviclab
Studying human immunogenetics to unveil new biological paradigms explaining susceptibility to infection and/or inflammation. #children #immune defects #genetic
Jessie - PID Care China
@jessiequmeng
Spreading love and compassion to PID patients and their families across China.
_ERNRITA
@_ernrita
ERN for Rare Immunodeficiency, autoinflammatory, autoimmune and paediatric rheumatology Diseases - For all patients with rare immune disorders in Europe
Johan Prevot
@johanprevot
Executive Director @ IPOPI All views strictly personal.
Silvia Sánchez-Ramón
@silviaschzramon
Clinical immunologist, researcher and associate professor of Immunology at Hospital Clínico San Carlos, Complutense University of Madrid
IDFA
@idfaustralia
The Immune Deficiencies Foundation Australia is a not-for-profit organisation and registered charity caring for people who have PID -Primary Immunodeficiencies.
The Clinical Immunogenomics Research Consortium
@circa_genomics
CIRCA is a national, Garvan-led collaboration of medical and scientific professionals that investigates the genetic causes of rare immune diseases.
UCL Division of Infection & Immunity
@uclinfectimm
Tweets from the @UCL Division of Infection and Immunity.
PPTAEurope
@pptaeurope
The European division of @plasmaproteins, where we engage with policymakers & patients in 🇪🇺, to advocate for patient access to #plasma-derived therapies.
AllaboutAPDS
@allaboutapds
Focused on raising awareness of Activated PI3K Delta Syndrome (APDS) – a rare primary immunodeficiency. Brought to you by Pharming Group NV.
David Gate
@dgatelab
Director, Abrams Research Center, Northwestern Neurology. The Gate lab studies the immune system in neurodegenerative diseases.
RareDiseaseGenomicsRSA
@raregenomicsrsa
"Until every African patient with a Rare Disease is diagnosed!" Research group at Stellenbosch University, directed by Prof Shahida Moosa @shahida_moosa
RARE-X
@rare_x_
PATIENTS' DATA POWERING PROGRESS - RARE-X is expected to become the largest data-sharing initiative focused on rare diseases. More to come.............
DISORDER: The Rare Disease Film Festival
@disorderrare
Two rare disease dads took their films for Menkes Disease and USP7 & built them into a festival for all films on rare disease. rarediseasefilmfestival.com
Joud Hajjar MD, PhD, MS
@hajjarjoud
Physician-Scientist, immunology, FellowCIS, adult primary immunodeficiency. Views expressed are my own and do not necessarily represent my employer.
Simon Pelham
@pelham_simon
Phan Lab
@labphan
B cells | Macrophages | Osteomorphs | #PrecisionImmunology | Cancer cell dormancy
Deenick Lab
@deenicklab
Doing Immunology research in Sydney
Francesco Saettini
@saettini_f
Pediatric immunologist and hematologist, Monza, Italy.
Ataxia and Me CIO 1184030
@ataxia_and_me
#Ataxia is a #raredisease affecting #Balance #Speech and #Coordination #Patients Helping Patients #MovementDisorder #Health #Medical #pharma
Graham Roberts
@profgroberts
Clinician & researcher: asthma, hayfever, food allergy, allergies. @3TR_IMI @UBIOPRED, #LEAPstudy, #BREATHE4T, IoW 1989 cohort. President @BSACI_Allergy
Martinez-Barricarte Lab
@mbarricartelab
Immunogenetics lab working on infectious diseases, immunotheraphy and inborn errors of immunity @ Vanderbilt University Medical Center. Views are our own.
immunoboys, MD/PhD
@immunoboys
An unholy amalgation of T cell tamer @dlwagner13 and kidney lover @lost_endorf
Immune Competence
@pidcompetence
A 501c3 non-profit patient organization dedicated to helping our community live a life they love.
Lenny 👩🏼✊🏼🌊
@lltaylor88
#TurnTexasBlue, #BidenHarris✊🏼 ✌️ 🌊 Occupational Therapist #ImmuneDeficiency, #CVID, #ME/CFS.
Tegan Dunmall
@tegamegadrive
Clinical Nurse Consultant in Adult Hamatological late effects, and Lung Cancer Care Coordinator. Pulmonary Arterial Hypertension Patient and Advocate
BRAGID
@bragid2
Brazilian Group for Immunodeficiencies
Asthma Causes
@asthmacauses
Asthma facts, symptoms, and treatment options
Carleena J Allred
@karleenabarber
Educated in Louisiana. Studied at Northshore Technical. Now on a journey to save lives...spread awareness for DIAGNOSTIC ANALYTICS donating plasma to save lives
You.Me.We South Africa
@you_me_we_sa
A collaborative network aimed at engaging government on the challenges faced by the NPO Sector
Public Journal Club
@publicjournalc
Passionates of immunology research. We have weekly Journal Clubs where we discuss trends in immunology research in the company of the first authors 🇲🇽 🌐
Michael Keller
@mkeller_cnh
Pediatric Immunologist & Clinical Researcher, Children’s National Hospital. #Tcellsrule
Jasnfatty
@jasnfatty
Daniloz
@stavodivalenza
voglio che scendano i lucci argentati
KORU Medical Systems
@korumedical
At KORU, our mission is to empower patients with the freedom to truly live.
Zweli Mkhize
@drzwelimkhize
MP | NEC Member | Former Minister of Health | Former Minister of Cogta | Former Kwazulu-Natal Premier | Former Treasurer-General | Former KZN Chairman
zarina zainudeen
@zainudeenzarina
Chantal Hargreaves
@chantalh88
Scientist. There’s no e.