Made WITH Patients
@pfmdwithpatient
We partner WITH patients to develop new solutions and co-create methods for them to achieve their health goals. #MadeWithPatients #PatientEngagement
ID: 3944674342
http://patientfocusedmedicine.org/ 13-10-2015 07:53:16
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The BMJ
@bmj_latest
The BMJ is patient centred, evidence based, and independent. Help us improve the health of our world with the best science, journalism, education, and comment
Dr. Joy Buolamwini
@jovialjoy
Founder Algorithmic Justice League @AJLUnited | instagram.com/poetofcode -Bestselling Author of Unmasking AI 📚 Read Here: unmasking.ai
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
King's College London
@kingscollegelon
News from King's College London | King’s is a multi-faculty research-led institution & one of the top 10 UK universities in the world | Contact: [email protected]
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Valentina Strammiello
@valestrammi
Strategy Lead + #HTA @eupatientsforum. I post about #health, #patientengagement, #RWE, #EU. Views are my own.
Lucía Feito Allonca
@glucomundo
Profesional comprometida con los derechos de las personas que viven con #diabetes y otras #ENTs #globalhealth #UHC #digitalhealth #meaningfulengagement
Jan Geissler
@jangeissler
Patient activist and research patient advocate. Life is precious.
NHS Patient Safety
@ptsafetynhs
NHS National Patient Safety Team. To report a patient safety incident, please visit england.nhs.uk/patient-safety…
RisingTide
@risingtidegroup
We break through stagnation points.
Steve Gutzler
@stevegutzler
Inspiring Keynote Speaker on Emotional Intelligence and Human-Centered Leadership: Transforming Teams and Organizations One Leader at a time.
Marc Ramis Castelltort
@markramis
Chasing nature & science.
Begonya Nafría
@begonyanafria
@CovidWarriors Patient Engagement in Research Coordinator at @SJDbarcelona_es Coordinator of Share4Rare and KIDS Barcelona. PhD student. All views my own
Innovative Health Initiative
@ihieurope
We're an EU PPP funding health research & innovation under #HorizonEU. We also manage IMI projects. Find us europa.eu/!CBGHyv
Stefan Gijssels
@stefangijssels
Chair Patient Expert Center, Co-founder Digestive Cancers EU, Member of Board of Alzheimer Liga Vlaanderen, Brussels roots at least to 1700, #Nerviër #Molenbeek
Merck
@merckgroup
A leading science and technology company in life science, healthcare, electronics. Not intended for US&CA visitors. merckgroup.com/en/legal-discl…
David Gilbert
@davidgilbert43
Health Activist | Writer | Poet | Bird Lover |🇪🇺| #lufc | he/him | also at @DavidGilbert43.bsky.social
Parkinson's Europe 🌷
@parkinsonseu
🌷The leading voice for #Parkinson's in Europe since 1992 🌷Supporting the 1.2m Europeans with #Parkinsons and their families 🌷Founder of #WorldParkinsonsDay
Helen Bevan
@helenbevan
Change facilitator, strategist, speaker. Prof. of Practice in Health & Care Improvement @WarwickBSchool. Advisor @HorizonsNHS. Senior Fellow @TheIHI. Views own.
National Institute for Health and Care Research
@nihrresearch
Sharing news and information from the National Institute for Health and Care Research (NIHR). We fund, enable and deliver world-class health and care research.
Jenny Christensson
@para_jenny
Paraequestrian dressage rider, now riding icelandic for fun and excercise. RA since 1994, lead patient 24-7. Every statement here is mine alone!
Professor Lara Bloom
@larabloom
President & CEO @TheEDSociety•Prof of Practice Patient Engagement & Global Collaboration•Rare & Chronic Disease Advocate•🏳️🌈Gay•She/Her• Views my own
Mental Health Europe
@mentalhealtheur
Largest independent #mentalhealth NGO in Europe 🚀🇪🇺 | We stand up for #humanrights, fight stigma & advocate for better care Home of #EuropeanMentalHealthWeek
Lotte Groth Jensen
@grothjensen
Public Health Sociologist, Senior Researcher and Programme Manager in @DKFACT. Focusing on the consequences of implementing new technology in health care
Runcie C.W. Chidebe
@runciecwc
Cancer Control Advocate| Researcher| @commschols Awardee |MSc @MyBCU | ED @projectpinkblue |Alum @StateIVLP | @uicc YL Awardee | Curator #WikiAbuja #ChokeCancer
Galapagos
@galapagosglobal
We aim to transform patient outcomes through life-changing science and innovation for more years of life and quality of life | #PioneeringForPatients
Gilead Sciences
@gileadsciences
At Gilead, we set – and achieve – bold ambitions to create a healthier world for all people. Read more: bit.ly/2vbkoI7
Dr. Dawn Richards, PhD
@to_dpr
Living life with #Arthritis along for the ride. Posting & passionate about #Research, arthritis, #PatientEngagement. Opinions my own.
Nicole Sheahan
@nicolemsheahan
President, Global Colon Cancer Association
European Patients' Forum
@eupatientsforum
We are the leading voice of patient organisations in Europe. #EuropeForPatients
EU One Health
@eu_health
The official account of @EU_Commission Directorate-General for Health & Food Safety (SANTE): #OneHealth: connecting health of humans, animals & plants 👤🐾🌱
NIHR Involvement
@nihrinvolvement
We share learning, events and advice from @NIHRresearch on engaging patients, service users, carers and the public in health and care research
SynBioBeta
@synbiobeta
Biologize the Future May 5-8, 2025 San Jose Convention Center, California
IPPOSI
@ipposi
IPPOSI puts patient voices at the centre of healthcare & policy. Irish Platform for Patient Organisations, Science & Industry. Registered Charity: RCN: 20062934
Ylenia Paleari
@yllyscric
Builder of her new life... Can't look forward!
Myeloma Patients Europe
@myelomaeurope
A network of highly efficient, effective and sustainable myeloma and AL amyloidosis patient organisations across Europe
Jonathan Boote 🏳️🌈🇪🇺 #FBPE
@jonathanboote
Health & social care researcher. Associate member of @ICPHR. Ex #PPI lead of @ARC_EoE #Cat owner #Leukaemia survivor #Cricket lover #Rejoiner #Progressive.
Sally Crowe
@sally_crowe
Retired from public involvement in health and social care research, now 1:1 Coaching and Mentoring. Contributing to research, especially in cancer, & dementia.
EB Research Partnership
@ebresearch
EB Research Partnership funds research aimed at treating and curing Epidermolysis Bullosa (EB). 🦋 #HealEB 🔬 Find a cure
Helena Harnik
@hharnik
Conceptualiser, adventurer, world citizen
Mark Skinner
@mskinnerdc
Gilde Healthcare
@gildehealthcare
Gilde Healthcare is a Transatlantic growth capital investor focused on private healthcare companies including therapeutics, medical technologies and services.
Project PINK BLUE
@projectpinkblue
Cancer nonprofit| Awareness & Patient Navigation| Winner,Nelson Mandela-GMI Award| #WorldCancerDay Spirit Award| @uicc SPARC Award. We #ChokeCancer everyday...
Dr Eleanor Nwadinobi
@eleanorannnwadi
International President of Medical Women's International Association, Health, Gender and Human rights Expert. Consultant on Women, Peace & Security
Journal of Comparative Effectiveness Research
@journal_cer
The latest CER, RWE & HEOR for patients, researchers, policy makers & all stakeholders | IF: 1.9 | MEDLINE-indexed | from Becaris Publishing
Novavax
@novavax
Producing next-generation vaccines to help protect health through partnerships and R&D. See what’s developing at novavax.com & novav.ax/linkedin
Pain Alliance Europe
@pain_europe
PAE aims to promote awareness of chronic pain, promote a European policy on chronic pain, and reduce the impact of chronic pain on the European society.
Raquel Peck 🇧🇷 🇬🇧
@raqpeck
Consultant supporting change actors 🌎 | Ex CEO of @Hep_Alliance | Co-Founder @WGHLusofonia | #NOhep pioneer | #patientengagement #policy #rarediseases #health
Nneka Nwokolo
@drnnekanwokolo
HIV/STI doctor #PrEP #PrEPforwomen #menopause @chelwestFT #human #blacklivesmatter doesn’t mean others don’t #equityforall @Shadesofmenopause on Insta
Zack Pemberton-Whiteley (he/him)
@zpwhiteley
#PatientEngagement, #PatientAdvocacy, evidence, questions, perspective, gifs, collaboration & @PGtips. Views my own, repost ≠ endorsement
ERDERA
@erdera_org
The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
Prof Yvonne Gilleece
@profygilleece
HIV Dr | Chair @BritishHIVAssoc | Chair WAVE @EACSociety| @SWIFT_women Chair | Retired Goth | Smiths fan |Cyclist | Foodie | views own
Mª Laura García Bermejo
@garciabermejo8
Biomarkers & Therapeutic Targets Research, IRYCIS Scientific Director
Francesco Malandrini
@frances94603147
The Evidence Base
@theevibase
A free online hub covering the latest news, opinions and insights into real-world data, health economics and outcomes research, and much more.
The Augmented Pathologist
@augpath
Research Laboratory for Digital Pathology and Human Factors in AI @ Medical University Graz #digitalpathology #exAI #causability
Michael Hund
@michaelphund
CEO @ebresearch | A futurist in relentless pursuit of the greater good | Father | Philosopher | Founder | @YaleSOM | Kansas Jayhawk
EAHAD
@eahadnews
EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
NewLifeDigitalsCo | Digital Planners & Journals
@newlifedigitals
New Life Digitals Co, your one-stop shop for digital planners and journals! We are on the journey to being intentional for health and fulfillment. Come with us!
Long-Covid-Patienten in der Schweiz
@pwlcswitzerland
Patientenzentrierte Gemeinschaftsplattform für Long-Covid-Patienten in der Schweiz. #longcovid #healthequity #healthjustice #dataprivacy.Teil von @CareConnectlc
RMC Alliance
@rmcalliance
RMC Alliance is a non-profit bringing together clinicians, researchers, and patient advocates to better understand RMC. Tweets = RMC Alliance Staff
Patient Safety Management Network
@psmn999
For anyone working in the management of patient safety. A vibrant community that meet every Friday online. Together we can do better things.
EHC_Haemophilia
@ehc_haemophilia
The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
Bahija GOUIMI
@bahijagouimi
Carole Scrafton
@carolescrafton
Gilead Oncology
@gileadoncology
We’re committed to creating a healthier world by delivering transformational medicines to people living with cancer. Twitter guidelines: gilead.inc/3t1m7d5
Occuity
@occuity
Developing #optical #medtech screening & monitoring devices for some of humanity's greatest health challenges - #diabetes #myopia #glaucoma #alzheimers #pm1
TARA Project
@taraeuproject
Funded by the EU. Views and opinions expressed do not necessarily reflect the EU or HaDEA.
Laura Jacobs
@laura_j321
Research Involvement Manager at Parkinson's UK. Probably the occasional cat and rugby tweet too.
Robert Joyce - A 30 Minute Life
@a30minutelife
Patient Advocate, Patient Representative, #MultipleSclerosis #chronicpain #blogger #researchassistant #MS #a30minutelife #PPI