New pre-print from Prof Jonathan Edwards: The Concept of ME/CFS qeios.com/read/NXCXM1 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

1) The results of the FITNET-NHS trial have just been published, the biggest randomized trial for children and adolescents with ME/CFS. Here’s a brief overview of its main results. mecfsskeptic.com/fitnet-nhs-a-s…

Urgent need for help: The situation is very dire. I'm really afraid Is there any doctor, researcher or parent that is familiar with my situation and very severe me willing to have a video call with me and a local doctor? Or get in contact with the local doctor to discuss my

Preprint article by Prof Jonathan Edwards on “The Concept of ME/CFS”: qeios.com/read/NXCXM1 Highlights the need for physician-led services, better care, more research and “some humility” from doctors. Being discussed on S4ME forum: s4me.info/threads/the-co… 1/

Out now, our News in Brief post for w/c 28th Oct. Providing headlines and links to further reading for #MECFS, #LongCovid, and related news, advocacy, and research. Topics covered this week: News, articles and advocacy Coming events & Research s4me.info/threads/news-i…

"Worryingly, not only has the psychological medicine approach failed but its proponents have shown no recognition of their lack of understanding of either the illness or research methodology needed to identify effective treatment."

A thread for nine #MECFS, #LongCovid, and related research papers from w/c 28th October 2024. Links are to our forum discussion threads, where abstracts, links to paper, analysis and discussion can be found. Inclusion does not equal recommendation. 1/10

We are calling on the NIH Director to Fund the ME/CFS Research Roadmap to begin the work of finding solutions for the millions living with ME/CFS. Please sign and share now! US signers: bit.ly/FundRoadmapUS International signers: bit.ly/FundRoadmapGlo… #pwME #MECFS

If my math is correct, we are 4 dollars away from $750 for this fundraiser! Gracias with all my heart to all who've given ❤️. Can we reach our goal & beyond? Save Liz Nevra is at a crisis point & all donations help towards urgent care & ensured safety 💜 gofundme.com/f/save-nevra

Very pleased to include our first bed-bound ME participants tomorrow in the first home visits of this particular study.

Stock images often miss the harsh reality of life with #MECFS. The Deutsche Gesellschaft für ME/CFS offers a powerful photo series depicting the true burden of this illness. Free for use, they accurately portray ME, helping to correct the narrative. buff.ly/4f7WXjJ

Attention, voters: Before you head to the polls today, here are a few things to remember: ✅ Check the ID requirements on your local board of elections website as some laws have changed. ✅ Verify your registration status before heading to the polls by visiting

#NIH needs input to develop a Disability Research Strategic Plan. The plan will help advance disability research to improve health & well-being of people with disabilities. Listen in to the next in a series of discussions on 11/12 at 2 p.m. ET: bit.ly/4fWPEeT

Please retweet pw#MECFS and #LongCovid

1. Prof Edwards: “When I first took an interest in ME/CFS I was horrified not only by the poor quality of methodology in studies but also by the vilification of critical patients by the academics producing studies that deserved that criticism.”

The Science for ME forum has published its first factsheet which gives an introduction to ME/CFS. It was created following extensive discussion among forum members. s4me.info/docs/WhatIsMEC… Factsheets on other topics related to ME/CFS are in the pipeline. #MEcfs #PwME

A Proposed Mechanism for ME/CFS Invoking Macrophage FcγRI and Interferon Gamma qeios.com/read/8GI3CT #MECFS

I think that the #me community needs a discussion about how we are still letting the term Chronic Fatigue syndrome anywhere Near this #mecfs.