Ovid Therapeutics
@ovidrx
Conquering brain conditions with courageous science.
Our guidelines: bit.ly/2tqxeid
ID: 3140532993
http://ovidrx.com 06-04-2015 14:24:32
1,1K Tweet
1,1K Followers
288 Following
pharmalot
@pharmalot
The latest news and views about the pharmaceutical industry, with @EdSilverman of @Statnews, ex-WSJ.. tips: [email protected]
BIO Convention
@bioconvention
#BIO2022 June 13-16
FasterCures
@fastercures
FasterCures, of @MilkenInstitute, is working to build a system that is effective, efficient, & driven by a clear vision: patient needs above all else.
FierceBiotech
@fiercebiotech
The dominant B2B news brand for biotech. Delivering news, revealing insights straight to your inbox.
Epilepsy Foundation of America
@epilepsyfdn
#EpilepsyAwareness & Education | FREE #SeizureFirstAid Certification | 24/7 Helpline (1-800-332-1000) | Unwavering ally for people w/ #epilepsy & #seizures.
Epilepsy Alliance Florida
@epilepsyafla
Epilepsy Alliance Florida is a nonprofit supporting over half a million Floridians impacted by epilepsy and their caregivers through comprehensive services.
FirstWord Pharma
@fwpharma
The latest global #pharma news, insights, analysis, and views providing you with an information edge. FirstWord Pharma. Where people who know first, go first.
Matthew Herper
@matthewherper
Writing and events at STAT. This is biology's century; Every data point has a face. ‘21 Polk Award. Signal: MattHerper.92
Meg Tirrell
@megtirrell
Medical correspondent @CNN
Luke Timmerman
@ldtimmerman
Biotech journalist. Founder @TimmermanReport.
Daphne Zohar
@daphnezohar
Founder & CEO of @SeaportTX. Co-founder Karuna Tx (now at BMS). Founding CEO & now Senior Advisor @PureTechH. Co founder/host @BiotechCH. Board EC @IamBiotech
ICNApedia
@icnapedia
Official twitter page of the International Child Neurology Association (ICNA): Dedicated to promoting education and research in child neurology worldwide.
Alnylam Pharmaceuticals
@alnylam
Leader in #RNAiTherapeutics, having pioneered this innovative approach to silencing the genes that cause disease. Community guidelines: bit.ly/2FcRhJy.
NFXF
@nfxfoundation
News and information from the National Fragile X Foundation about Fragile X syndrome, FXTAS, FXPOI and the other Fragile X-associated disorders
NYU FACES
@nyufaces
FACES (Finding A Cure for Epilepsy & Seizures) is focused on improving the quality of life for people affected by epilepsy though research/education/awareness.
END EPILEPSY
@endepilepsy
@epilepsyfdn leads the fight to #EndEpilepsy . Learn more. EndEpilepsy.org
FAST
@cureangelman
Dedicated to finding a cure for Angelman syndrome, to bring practical treatment into current medical practice as quickly as possible.
Dravet Syndrome Foundation
@curedravet
The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.
eParent
@eparentconnect
Online media source providing articles, a Special Needs Resource Directory, current news, & blog for families of children & adults w/ #disabilities. #EPconnect
EveryLife Foundation
@everylifeorg
Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
Adam Feuerstein ✡️
@adamfeuerstein
Biotech reporter @statnews. Dog ❤️er. Polk Award winner. #COYS. Said one analyst: The likes of Adam Feuerstein attack viciously. On Signal: stataf.54
Miracle Flights
@miracleflights
We provide free flights to sick children in need of life-changing medical care not available in their local communities.
PhRMA
@phrma
We represent America's innovative biopharmaceutical research & biotechnology companies. @SteveUbl CEO
World Orphan Drug Congress USA
@orphanconf
Get regular updates on #WorldOrphanUSA! April 22-24, 2025 | Boston Convention & Exhibition Center 👉 Register here: terrapinn.com/bookwodc_tw
Young Epilepsy
@youngepilepsy
Epilepsy can be one of the most frightening and isolating conditions a child can experience. With your help, we can change that. Together we create possible.
National Human Genome Research Institute
@genome_gov
Funding research at the forefront of genomics to improve human health. Formerly the Human Genome Project. genome.gov/privacy.cfm
Bruce Booth
@lifescivc
Early stage biotech VC. Recovering scientist. Opinions expressed are solely my own and do not express the views or opinions of Atlas Venture.
Dup15q Alliance
@dup15q
Foundation for the National Institutes of Health
@fnih_org
The Foundation for the National Institutes of Health (FNIH) builds and nurtures scientific partnerships to make important health discoveries possible.
RareDiseaseFdn
@rarediseasefdn
Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research. linktr.ee/Rarediseasefdn
CURE Epilepsy
@cureepilepsy
CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 18 countries to date.
Epilepsy Action Events
@epilepsyevents
Celebrating the thousands of people taking part in fundraising events for @epilepsyaction to create a world without limits for people living with epilepsy.
RareShare
@rareshareorg
RareShare is a social platform building communities for patients, families, and healthcare professionals affected by rare medical disorders.
Dr. Rebecca Burdine - (Black lives matter!)
@rburdine1
Using zebrafish to study human disease and disorders. Advocate for those with Angelman Syndrome. Opinions my own. [email protected]
Ana Mingorance
@cnsdrughunter
🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others. @cnsdrughunter.bsky.social
Rare Diseases Clinical Research Network
@rarediseasesnet
NIH-funded network fostering collaborative research among 20 teams of researchers, patients, and clinicians, each focused on a group of rare diseases.
Genetic Alliance UK
@geneticall_uk
National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign Rare Disease UK and support network @SWAN_UK.
American Epilepsy Society
@amepilepsysoc
We support research and education for professionals working towards a world without epilepsy. RTs ≠ endorsements. Also @amepilepsysoc.bsky.social.
CDKL5 - IFCR
@cdkl5_ifcr
501(c)(3) dedicated to advocacy, research & cures for #CDKL5 Deficiency Disorder - a Developmental & Epileptic Encephalopathy (DEE). Formerly used @CDKL5_USA
Amy Dockser Marcus
@amydmarcus
Health and science reporter for The Wall Street Journal, author of We the Scientists (2023) @riverheadbooks
angelmanuk
@angelmanuk
UK charity(1021882) run by and for those affected by the genetic condition Angelman Syndrome and interested professionals.Our patron is director Gareth Edwards.
The Mighty
@themightysite
Making health about people: When we ask how you’re doing, we actually want to know! Download our free app to join a community that gets it ✨
Jeremy Levin
@jmaxlevin
Lifelong commitment to patients, their families and defeating disease through innovation. Driven by facts & hard data. Inspired by speaking out & compassion
Rebecca Spalding
@rcurtisspalding
Person on the internet.
Wendy Chung
@wendykchung
Chief of Pediatrics, Boston Children's Hospital & Director of Clinical Research, Simons Foundation Autism Research Initiative (SFARI).
RUN
@rareundiagnosed
RUN for those affected with rare/undiagnosed conditions: Raise awareness. Urge insurance companies to reimburse WGS. Network to find answers. #RareUndiagnosed
Dr. Stephen M. Hahn
@stevefda
24th Commissioner of Food and Drugs - @US_FDA This account is now archived.
Timmerman Report
@timmermanreport
Timmerman Report is an independent biotech publication. Subscribe today! timmermanreport.com/individual-sub…
Terry Jo Bichell
@tjbichell
Politics and Science, in equal measure. Rare disease biomarkers and outcomes specialist. DCDP Exec Comm at large.
Rare In Common
@rareincommon
MANY VOICES. ONE MISSION. A user-generated short-film about the inspiring people in the rare disease community — Rare in Common.
Patient Worthy
@patientworthy
We're a resource for engaging, informative content and rare patient news, well done.
Luke Rosen
@lukebrosen
Dad of two remarkable kids. Founder of KIF1A.org & Rescue7.org. Works with families affected by neurological diseases & cancer. Firefighter. Baseball & hockey.
John Maraganore 🇺🇦🇮🇱
@jmaraganore
Founding CEO of @Alnylam. Pioneered RNAi therapeutics as a whole new class of medicines for patients. Now bioentrepreneur-at-large. Opinions are my own.
KIF1A.ORG
@kif1a
We connect families affected by KIF1A and relentlessly work to accelerate research. We need to find treatment for this rare neurodegenerative disease. Fast.
DEE-P Connections
@dee_pconnection
Connecting families with severe developmental & epileptic encephalopathies to information, resources and each other
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
X4 Pharmaceuticals
@x4pharma
With rare resolve, we drive progress for people living with rare immune disorders.
SwanBio Therapeutics
@swanbiotx
Fueled by a unique company culture, we are researching & developing life-changing gene therapies for people with devastating inherited neurological conditions.
Obsidian Therapeutics
@obsidian_tx
Unlocking the promise of cell & gene therapy
NeurologyLive®
@neurology_live
Delivering healthcare professionals treating neurological diseases quality and relevant information to help achieve the best patient care possible. #MindMoments
seizureplans
@seizureplans
Are you ready for a seizure emergency? Make sure to have a seizure action plan in place.
Angelini Pharma Italia
@angeliniphit
Accendiamo la speranza di una #salute migliore. Dal 1919. Siamo parte di Angelini Industries. Informativa privacy: bit.ly/2ZVcpON
FRAXA Biotech Games™
@biotechgames
When biotech companies gather, good things happen | competition+camaraderie+networking | promoting #biotech | benefiting #FragileX #autism @FRAXAresearch
Alex Azar
@secazar
Alex Azar was the 24th Secretary of the U.S. Department of Health & Human Services. Privacy policy: hhs.gov/privacy.html This account is retired.
Rare Disease Live
@rarediseaselive
RareDiseaseLive is dedicated to empowering the rare disease community through education.