My series of posts on the difficulties & challenges that our amazing #mnd #als researchers face. Some of these were prompted by the sad misinformation that has permeated our community over the years. But I hope my trust in science shows through (1/3) onein300.com/the-devil-is-i…

And in an attempt to balance what some might see as my critical & negative approach, my next post will be on scientific advances in #mnd #als research in the last decade. The changes, although they haven’t yet led to effective treatments, are significant, & very positive. (3/3)

For example if you find statistics interesting this post on p-values might be useful. I can’t believe this is nearly 3 years old now. And sadly it’s still applicable today. We have to push our scientists NOT to cut corners (2/3) onein300.com/2022/11/01/p-v…

At least she’s reversed an unethical and immoral decision?

"for that act of love, she is under police investigation." Alison Hume MP shares the moving story of her constituent, Louise Shackleton, who accompanied her husband to Dignitas.

Thanks to Prue Leith for joining us in Parliament today to make the case for a more compassionate law #YesToDignity

As a person living with #mnd #als - this choice means so much to me. Now, come the time that life becomes intolerable, I won’t have to consider travelling to end my life with dignity. Infact I may never have to now. Now, there is no stopping dignity. Historic humane vote.

Today is #MNDAwarenessDay, a moment to highlight the hidden realities of living with #MND. Our translational research projects aim to find treatments for MND through a national, coordinated approach. 👉 Discover more: ukmndri.org/2025/06/20/fro…

I wonder if they do any other colour than purple!?

"We have to bring the timeframe of a treatment forward... I want people to believe it's solvable." Challenge Works trisdyson speaking to The Times and The Sunday Times ahead of the #LongitudePrizeOnALS launch. Thank you to principal funders MND Association & our cohort of funders. bit.ly/4k8Ou1n

A £7M international challenge has been launched to speed up #ALS/#MND drug discovery. The Longitude Prize on ALS on ALS will harness #AI & global collaboration to identify new drug targets. Find out more👇 ukmndri.org/2025/06/25/lon…

🚨 We’re proud to be the principal funder of the £7.5M Longitude Prize on ALS - a global challenge aiming to accelerate drug discovery for ALS/MND using AI and one of the world’s largest patient data sets. The prize is designed and delivered by Challenge Works and backed by

RFK Jr's thimerosal thread is a masterclass in misinformation. Let's fact-check it line by line. 🧵

Pete Hegseth is vile. He could have just said politely “We disagree with your assessments” & moved on. But no he produced a vile, nasty and hate filled rant. Did the question expose an uncomfortable truth? America Is in a bad place getting worse by the day. So sad.

Check out this article from Brian Dickie (MND Association), exploring how #AI and quality data can transform treatment progress—and how the £7.5M #LongitudePrizeonALS aims to support #innovation through global collaboration. 🧠 Read here: bit.ly/4nmYqr3 #ALS #MND

Want to learn more about the £7.5M #LongitudePrizeOnALS? Join one of our welcome webinars to find out how the Prize works and how to get involved. Register here: 📅 9 July, 09:00 BST: bit.ly/3I6GGzT 📅 10 July, 17:00 BST: bit.ly/3GnE0gN #AIForGood #MND #ALS

Unbelievable pathetic item on #BBCBreakfast about bags on planes. Whilst the world burns, this is news?

Data, data, data. The more data researchers have the better the insights they can get. Sleep, as anyone with #mnd will know, becomes less relaxing & more a day to day focus on getting good sleep, Please fill this survey in if you can #als #mnd patients #united2endmnd

Please see the emails below and if you have #MND #ALS complete the survey and pass on. The more data the better

People with SOD1 MND don’t have time to wait. #PrescribeLife 📍Parliament Square Gardens, Westminster