After a year of high profile failed #mnd #als trials, what part did misinformation (deliberate or otherwise), cursory press releases & other information challenges play a part? My 'devil is in the detail' series started 5 years ago. All posts still apply. onein300.com/the-devil-is-i…

MND Scotland and LifeArc have partnered to fund a PhD studentship to start in 2025 to increase research into improving MND diagnosis or identifying biomarkers for use in MND research or care.🔬 Interested?🔎 Find more information here: mndscotland.org.uk/phd-studentshi…

Join us on 27th Sept, 12 PM (🇬🇧) for the next ALS/MND Platform session, part of the Drug Discovery & Trials Optimisation working group! Dr Heather Marriott will present her work on ALS subtypes using machine learning! UK MND Research Institute DEMON Network #ALSPlatform #MND

It's been 3 years since we took the #united2endmnd MND Research Institute campaign to Parliament. We have sadly lost both Rob Burrow CBE & Doddie Weir OBE since but the UK MND Research Institute is now real. Thank you both. #mnd #als united2endmnd.org/2024/09/22/has…

Today would have been Rob’s 42nd Birthday 💔Rob was such a brave person who always tried, and gave his best in everything he did. But most of all he was a lovely kind caring person and I am so proud to call him my Son 💔🥲🙏🏉 God Bless you Rob xxxxxxx

Dear Antivaxxers, Early days, but this will be a tough one for you. Good luck. Best, Science.

We're proud to announce £1.27 Million funding for 3 exciting MND research projects as part of our Advancing Treatment Awards 🔬 This vital research is only possible because of the efforts of our fantastic supporters! Find out more about the projects 👇 myname5doddie.co.uk/whats-on/artic…

He is so cool!

Rozebalamin has been approved in Japan to treat #ALS #MND after a study of 130 people given high dose Vitamin B12 or placebo over 16 weeks. The treated group had slightly slower decline in ALSFRS. This is encouraging, but confirmation studies are needed. eisai.com/news/2024/news…

A game that means more 👊 The 745 game is a clash of codes and will debut on 17 November at AMT Headingly, Leeds. Raising funds for the MND community, legends of rugby union & league go head to head in this unmissable fixture! More info & tickets 👇 myname5doddie.co.uk/whats-on/artic…

So Proud 💔x

Lab research from the University of Aberdeen has discovered that ellorarxine, a new drug that mimics vitamin A, could protect neurons from damage, offering potential hope for a new future treatment. However more research is needed to confirm how it works in humans. ukmndri.org/2024/10/03/new…

Breaking News.🚨

New post coming on biomarkers in #als #mnd. What are they? Do we have some? Are they validated? Is there global consensus? What are the issues? What should we be aware of? #devilisinthedetail

At the age of 42, James Clarke was diagnosed with motor neurone disease. His widow, Lottie, tells Marina Fogle about the dignity with which he navigated the final years of his life thetimes.com/life-style/hea…

That’s my Son 🏉💔👍

Please take a look at UK MND Research Institute website ukmndri.org You can donate and/or arrange fundraising for its work led by Ammar Al-Chalabi Chris McDermott, Dame Pamela Shaw Neuroscience Institute & leading neuroscientists King's MND Centre Oxford MND Research UCL Queen Square Institute of Neurology & others at ukmndri.org/donate/